Project Description

PH and HHT: Signs, Symptoms and Disease Management

Recorded on June 22, 2022
Murali M. Chakinala, M.D., discusses how to recognize the signs and symptoms of pulmonary hypertension and hereditary hemorrhagic telangiectasia (HHT) and the importance of early diagnosis and disease management. Patients Neeta Pai and Jenna Olitsky, who live with HHT and PH, share their diagnosis journeys and how they manage both conditions. This webinar was done in partnership with Cure HHT.

Resources

Pulmonary Hypertension & Hereditary Hemorrhagic Telangiectasia (pdf)

PH and HHT Facebook Support Group

About the Speaker

Murali M. Chakinala, M.D., FCCP
Dr. Chakinala is a professor in the Department of Internal Medicine, director of the Pulmonary Hypertension Care Centers (PHCC) and co-director of the HHT Center at the Washington University School of Medicine in St. Louis, Missouri. He is chair of PHA’s Scientific Leadership Council, chair of the PHCC Oversight Committee and a member of Cure HHT’s Global Research Medical Advisory Board. His interests include clinical management and clinical research in the areas of PH, pulmonary arterio-venous malformations, pulmonary thromboembolic diseases and end-stage lung diseases.

Murali Chakinala
Jenna Olitsky
Jenna Olitsky lives with HHT and pulmonary arterial hypertension (PAH). Jenna has a family history of HHT dating back generations and was genetically tested at a young age to confirm her diagnosis. In 2018, she was diagnosed with PAH. While managing both diseases can be difficult, she works full-time as an attorney. She enjoys traveling in the U.S. and internationally, spending time with her ultra-miniature goldendoodle Rosie and spreading awareness about HHT and PAH.

PHA thanks Janssen Pharmaceuticals, Inc. for its Diamond sponsorship of the PHA Connects fund, which sponsors patient education programming.