Read about PH and Quality of Life in PHA’s Professional Journal

The latest issue of Advances in Pulmonary Hypertension is now available online.

Vol. 21, No. 1 addresses quality of life. In the issue, guest edited by Claire Parker, R.N., M.S.N., CPNP-AC and Nancy D. Bair, R.N., M.S.N., APRN, CNS-BC, health care providers discuss challenges people with pulmonary hypertension (PH) face beyond medical treatment.

“As providers of patients with pulmonary hypertensive vascular disease (PVHD) we direct the pathway for a patient’s medical care which has considerable impacts on their quality of life. It is imperative that our patients are viewed as people beyond their diagnosis,” the guest editors write.

Articles include:

• “From Patient to Provider: How My Diagnosis Makes Me a Better Nurse,” by Allison Dsouza, B.S.N., R.N.
• “Palliative Care and Pulmonary Arterial Hypertension,” by Laura Rhee, D.O.; Alisha Morgan, D.O., and Hilary DuBrock, M.D.
• “Perspectives on Mental Health Evaluation in Pediatric Pulmonary Hypertension: A Call to Action,” by Claire Parker, R.N., M.S.N., CPNP-AC; Elise Whalen, M.S.N, APRN, FNP-C, CPN; Julia McSweeney, R.N., M.S.N., CPNP; Anna Brown, D.N.P., APRN, R.N., CPNP-BC;  Usha Raj, M.D., M.H.A.; and Mary Mullen, M.D., Ph.D.
• “Social Media Participation Among Parents and Caregivers of Children With Pulmonary Hypertension,”by Elise Whalen, M.S.N., APRN, FNP-C, C.P.N.; Melody Hellsten, D.N.P., APRN, PPCNP-BC; Gina Santucci, M.S.N., FNP-C, APNBC; Danita Czyzewski, Ph.D.; and Nidhy Varghese, M.D.
• “PH Roundtable: Transitions in Pulmonary Hypertension,” a discussion with Parker, Bair Neal Chaisson, M.D.,Maddie Bonpin, a teenager with PH, and her mom, Liza Bonpin.