Vol. 21, No. 1 addresses quality of life. In the issue, guest edited by Claire Parker, R.N., M.S.N., CPNP-AC and Nancy D. Bair, R.N., M.S.N., APRN, CNS-BC, health care providers discuss challenges people with pulmonary hypertension (PH) face beyond medical treatment.
“As providers of patients with pulmonary hypertensive vascular disease (PVHD) we direct the pathway for a patient’s medical care which has considerable impacts on their quality of life. It is imperative that our patients are viewed as people beyond their diagnosis,” the guest editors write.
“From Patient to Provider: How My Diagnosis Makes Me a Better Nurse,” by Allison Dsouza, B.S.N., R.N.
“Palliative Care and Pulmonary Arterial Hypertension,” by Laura Rhee, D.O.; Alisha Morgan, D.O., and Hilary DuBrock, M.D.
“Perspectives on Mental Health Evaluation in Pediatric Pulmonary Hypertension: A Call to Action,” by Claire Parker, R.N., M.S.N., CPNP-AC; Elise Whalen, M.S.N, APRN, FNP-C, CPN; Julia McSweeney, R.N., M.S.N., CPNP; Anna Brown, D.N.P., APRN, R.N., CPNP-BC; Usha Raj, M.D., M.H.A.; and Mary Mullen, M.D., Ph.D.
“Social Media Participation Among Parents and Caregivers of Children With Pulmonary Hypertension,”by Elise Whalen, M.S.N., APRN, FNP-C, C.P.N.; Melody Hellsten, D.N.P., APRN, PPCNP-BC; Gina Santucci, M.S.N., FNP-C, APNBC; Danita Czyzewski, Ph.D.; and Nidhy Varghese, M.D.
“PH Roundtable: Transitions in Pulmonary Hypertension,” a discussion with Parker, Bair Neal Chaisson, M.D.,Maddie Bonpin, a teenager with PH, and her mom, Liza Bonpin.