PHAR data has already yielded numerous academic contributions (as listed below).
- American College of Chest Physicians (ACCP) 2016
- American Thoracic Society (ATS) 2016
- Characterization of Centers Accredited by the Pulmonary Hypertension Association (PHA) in the Pulmonary Hypertension Care Centers (PHCC) Initiative During Programmatic Year One
- Evaluation of Quality of Care and Quality of Life of Pulmonary Hypertension (PH) Patients Seen in PH Care Centers: Pulmonary Hypertension Association Registry (PHAR) Study Design
- American Thoracic Society (ATS) 2017
- American Thoracic Society (ATS) 2018
- PHA’s 2018 International PH Conference and Scientific Sessions
- Frequency of Palliative Care Referrals in Newly Diagnosed Pulmonary Arterial Hypertension (PAH): The Pulmonary Hypertension Association Registry
- Intersecting Identities and Patient Outcomes in Pulmonary Arterial Hypertension: Early Results in Derivation of a Model Using the Pulmonary Hypertension Association Registry (PHAR)
- American Thoracic Society (ATS) 2019
- Increasing Age Is Associated with Worsening Physical Function Despite More Favorable Cardiopulmonary Hemodynamics: A Pulmonary Hypertension Association Registry (PHAR) Report
- Intersecting identities and patient outcomes in Pulmonary Arterial Hypertension: Early Results in Derivation of a Model Using the Pulmonary Hypertension Association Registry (PHAR)
- Nurse staffing and the quality of life and outcomes of patients with pulmonary arterial hypertension: The Pulmonary Hypertension Association Registry
- Obesity and quality of life in pulmonary arterial hypertension (PAH): The Pulmonary Hypertension Association Registry (PHAR)
- International Society for Heart and Lung Transplantation (ISHLT) 2019
- American Thoracic Society (ATS) 2020
- Derivation of the Pulmonary Hypertension Association Registry Evaluation
- Health disparities and treatment patterns in portopulmonary hypertension and idiopathic pulmonary arterial hypertension: analysis of The Pulmonary Hypertension Association Registry
- Hospitalization In Connective Tissue Disease Associated Pulmonary Arterial Hypertension: The Pulmonary Hypertension Association Registry
- Pulmonary Artery Compliance In Pulmonary Arterial Hypertension And Chronic Thromboembolic Pulmonary Hypertension: The Pulmonary Hypertension Association Registry
- Quality Of Life Of Patients With Chronic Thromboembolic Pulmonary Hypertension (CTEPH) And Idiopathic Pulmonary Arterial Hypertension (IPAH): The Pulmonary Hypertension Association Registry (PHAR)
- Risk Prediction Models Are Associated With Patient Centered Outcomes In PAH: The Pulmonary Hypertension Association Registry
Other literature (such as articles, abstracts and presentations) related to the PHCC initiative includes (but is not limited to):
2014
- Do Patients With Pulmonary Arterial Hypertension Benefit From Referral to a Specialized Center?
- Implementation of the PHA Pulmonary Hypertension Care Center Accreditation Program
- Pulmonary Hypertension Care Centers
2015
2016
2017
2018
- PH Professional Network: Roadmap to Accreditation: Practical Aspects
- PH Roundtable: Center-based Care
- The Pulmonary Hypertension Association Registry: Rationale, Design, and Role in Quality Improvement
- Update on the PHA Pulmonary Hypertension Care Center Network: Early Experience With the National Accreditation Program