PHAR data has already yielded numerous academic contributions (as listed below).

  • American Thoracic Society (ATS) 2020
    • Derivation of the Pulmonary Hypertension Association Registry Evaluation
    • Health disparities and treatment patterns in portopulmonary hypertension and idiopathic pulmonary arterial hypertension: analysis of The Pulmonary Hypertension Association Registry
    • Hospitalization In Connective Tissue Disease Associated Pulmonary Arterial Hypertension: The Pulmonary Hypertension Association Registry
    • Pulmonary Artery Compliance In Pulmonary Arterial Hypertension And Chronic Thromboembolic Pulmonary Hypertension: The Pulmonary Hypertension Association Registry
    • Quality Of Life Of Patients With Chronic Thromboembolic Pulmonary Hypertension (CTEPH) And Idiopathic Pulmonary Arterial Hypertension (IPAH): The Pulmonary Hypertension Association Registry (PHAR)
    • Risk Prediction Models Are Associated With Patient Centered Outcomes In PAH: The Pulmonary Hypertension Association Registry

Other literature (such as articles, abstracts and presentations) related to the PHCC initiative includes (but is not limited to):

 2014

2015

2016

2017

2018