FIND PH CLINICAL TRIALS
Clinical Trial Finders
The Pulmonary Hypertension Association (PHA) provides a resource tool, PHA Clinical Trial Finder, to help you learn more about pulmonary hypertension (PH) research and find a study that fits your personal needs.
ClinicalTrials.gov is a searchable database provided by the U.S. National Library of Medicine of clinical studies throughout the U.S. and in more than 200 countries around the world.
Talk to Your PH Care Team
Talk with your PH health care team about clinical trial opportunities. Be sure to download this checklist or visit Questions to Ask Your Doctor for a list of questions about participating in a clinical trial to help guide your discussion with your PH health care team. Questions in the checklist cover the following topics:
- Purpose of the clinical trial.
- Who is eligible to participate?
- Potential risks and benefits.
- Practical concerns.
- Financial concerns.
Enrolling in the PHA Registry
The PHA Registry (PHAR) is the largest active U.S.-based, prospective and longitudinal observational PH patient registry. Patients with pulmonary arterial hypertension, CTEPH and pediatric PH due to developmental lung disease may enroll in PHAR. Learn more about PHAR.
How Patient Data Supports PVDOMICS
The PVDOMICS study (Redefining Pulmonary Hypertension through Pulmonary Vascular Disease Phenomics) is a partnership between PHA and the National Heart, Lung and Blood Institute at the National Institutes of Health. PVDOMICS uses clinical and biological “omics” data from all PH (Groups 1 through 5) classifications. Learn more about PVDOMICS and participating PH clinical centers.
PHA Conference Research Room
Each biennial meeting of the PHA International PH Conference and Scientific Sessions provides an opportunity for PH patients to participate in research studies. The PHA Conference Research Room enables patients to answer questions or provide biological data (i.e. cheek swabs and blood samples). At the 2018 Conference in Orlando, Florida, more than 200 Conference attendees participated in Research Room studies. Learn more about the PHA Conference Research Room.
Videos about clinical trials and clinical research are available on PHA Classroom.