Learn What It’s Like to Participate in PHA Registry
Join PHA at 3:30 p.m. Wednesday, Aug. 18 for “A Conversation About the PHA Registry.” Dan Grinnan, M.D., will speak with his patient, Shirl Rhodes, who is enrolled in the PHAR. Hear what it’s like to participate and how PHAR supports PH research.
Examination of PHAR Data Shows Few Patients are Referred to Palliative Care
Although treatment options for WHO Group 1 PH (pulmonary arterial hypertension, or PAH) have increased over the past few decades, symptom severity and quality of life still impose significant burden on patients. Palliative care – often confused with hospice care – is goal-oriented care for patients with chronic illnesses that help to balance life-saving treatment with quality of life.
Determinants of HRQoL in PAH
American Thoracic Society 2017 International Conference May 19-24, 2017 - Washington, DC Poster title: Determinants of Health Related Quality of Life in PAH: Data from the Pulmonary Hypertension Association Registry Authors: Roham T. Zamanian, David Badesch, Todd M. Bull, Teresa DeMarco, Jeremy Feldman, Jeffrey Fineman, Hubert J. Ford, Michael P. Gray, Daniel Grinnan, James R. Klinger, John W. McConnell, Erika
U.S. Hispanics with PH
American Thoracic Society 2017 International Conference May 19-24, 2017 - Washington, DC Poster title: Characterization of Hispanics with Pulmonary Hypertension in the US: The Pulmonary Hypertension Association Registry Authors: Vinicio De Jesus Perez, David Badesch, Roham T. Zamanian, Jeffrey Fineman, James R. Klinger, Jim Ford, John W. McConnell, Jeffrey Sager, Jeremy Feldman, Oksana Shlobin, Daniel Grinnan, Todd M. Bull, Erika
PHAR Study Design
American Thoracic Society 2016 International Conference May 13-18, 2016 - San Francisco Poster title: Evaluation of Quality of Care and Quality of Life of Pulmonary Hypertension (PH) Patients Seen in PH Care Centers: Pulmonary Hypertension Association Registry (PHAR) Study Design Authors: Michael P. Gray, Corey E. Ventetuolo, Ronald Oudiz, Wendy Hill, Cynthia Pickles, Kristina Blank, Kayleen Williams, Peter J. Leary,
Advances in Pulmonary Hypertension
Read the latest issue of Advances in Pulmonary Hypertension, PHA’s quarterly medical journal.