Sarcoidosis and Sjogren’s Syndrome: Managing PH and Rare Disease
In April, The Pulmonary Hypertension Association (PHA) joined the Foundation for Sarcoidosis Research and the Sjogren’s Foundation to promote sarcoidosis and Sjogren’s syndrome awareness months. Sarcoidosis and Sjogren’s syndrome are rare diseases that can cause pulmonary hypertension (PH).
Sarcoidosis is an inflammatory disease that affects various organs. It can lead to PH when increased pressure in the lungs weakens and ultimately causes failure on the right side of the heart.
Sjogren’s syndrome is an autoimmune disorder where the body’s immune system attacks healthy cells that produce saliva and tears. People with Sjogren’s syndrome can develop PH from chronic coughs, blood clots in the lungs, fluid around the lungs, vasculitis and other lung disorders.
Read more from those whose lives are affected by sarcoidosis or Sjogren’s syndrome and PH:
Amy Dolan was diagnosed with Sjogren’s syndrome and Lupus in 2019 while she was six months pregnant with her fourth child. After a regular obstetrician checkup, she found herself in an emergency room with a pulmonary hypertension diagnosis. Read Amy’s story.
Samuel Hall’s pulmonary hypertension developed nearly a decade after being diagnosed with sarcoidosis. Sarcoidosis can affect many organs but often causes lung issues and shortness of breath on exertion. Samuel, the inventor of the O2 Safety Strap, considers himself a sarcoidosis warrior. Read his interview with PHA and learn more about how he thrives with two rare diseases.
If have PH related to sarcoidosis or Sjogren’s syndrome, consider sharing your journey. Submit your story to PHA’s Right Heart Blog.