Support Group Leadership Institute 2017-11-28T20:33:35+00:00

We are here to serve…

Our support group network has grown to more than 275 groups throughout the United States and Puerto Rico. PHA coordinates the work of more than 340 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Institute has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings. The Support Group Leadership Institute is made possible by an endowment from United Therapeutics.

Conference 2018 for Peer Support Volunteers

March 15th, 2018|0 Comments

The Second Tuesday Show with Abby and Mike: Year in Review and Looking Ahead

December 14th, 2017|0 Comments

SGLI: Postcards, Calendars and Maps – Oh, my!

October 11th, 2017|0 Comments

This training provides tutorials of PHA’s postcards/SGCF order form, map, calendar and meeting report from for PHA support group leaders.

What Every Leader Should Know About PH

April 12th, 2017|0 Comments

PHA provides volunteers with talking points to answer frequently asked questions about PH.

  • Coping Guides

Primer on PHA Resources – Print Materials and Support Groups

March 8th, 2017|0 Comments

PHA has a vast library of print materials. Learn ways you can use print materials to plan meetings, promote PHA membership and more!

  • Debra Watkins

Dec. 2016 – 2016 in Review and Planning for a Successful 2017

December 13th, 2016|0 Comments

What does "success" mean to you? What does it mean to your group? How can we start now to prepare for a successful year ahead? Leaders joined in a discussion about these questions and more

CTEPH Awareness through Support Groups

October 25th, 2016|0 Comments

Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension caused by old blood clots in the lungs (pulmonary emboli). CTEPH Awareness Day falls on the third Tuesday of November, and we want to

Insurance FAQs for Leaders

September 13th, 2016|0 Comments

Join PHA's Treatment Access Associate Nikki Blake for a presentation and discussion about insurance. As Support Group Leaders, you don't have to be insurance experts, but you are one of the first lines of defense.

Refilling the Punch Bowl – Compassion Fatigue

August 24th, 2016|0 Comments

Last year during a meeting of Support Group Leaders, a guest made this insightful observation: "You leaders are like the punch bowl at the party. Everybody comes to you to get replenished. My question is:

PAR for the Course – Planning, Advertising, Running Your Meetings –  Part II

July 24th, 2016|0 Comments

This nuts-and-bolts webinar is second in a series, "PAR for the Course - Planning, Advertising, Running Your Meetings." This webinar focuses on advertising. Laura Hooley is the support group leader of the Dartmouth Hitchcock Support

Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

April 26th, 2018|0 Comments

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for

PHA’s Pathlight Membership Magazine to Highlight PHCC Clinicians

April 25th, 2018|0 Comments

The upcoming issue of Pathlight, a complementary quarterly magazine for Pulmonary Hypertension Association (PHA) members, introduces a new feature called, PHour Questions. The segment  will introduce clinicians from Pulmonary Hypertension Care Center (PHCCs), including

Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

April 20th, 2018|0 Comments

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH).  PH is a complex, life-threatening, too-often misdiagnosed progressive illness that affects

Ask the Expert: Managing Seasonal Allergies in Patients With Pulmonary Hypertension (PH)

April 20th, 2018|0 Comments

By Nathan Verlinden, Cardiology Clinical Pharmacy Specialist, Allegheny General Hospital, Pittsburgh Nathan Verlinden received his PharmD from Drake University in Des Moines, Iowa, in 2013. He then completed a post-graduate year 1 (PGY-1) pharmacy practice

Share Your Story to Fight for PH Charitable Assistance Programs

April 13th, 2018|0 Comments

"If I didn’t have the medication I wouldn’t be around. I would have passed away. And I don’t want to do that because I have great grandchildren and I want to see them grow

Nadine Al-Naamani, M.D., M.S., Aldrighetti Research Award for Young Investigators Grant Recipient, Shares Research Journey and Hope for the Future

April 11th, 2018|0 Comments

Nadine Al-Naamani, M.D., M.S., University of Pennsylvania, and Andrew Sweatt, M.D., Stanford University, were the research awardees of the 2017 Aldrighetti Research Award for Young Investigators and PHA/ATS Research Fellowship in Pulmonary Arterial Hypertension,

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

April 10th, 2018|0 Comments

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary

Clinicians Explore Mindfulness as a Possible Benefit to Complement Pulmonary Hypertension Treatments

April 6th, 2018|0 Comments

Note: PHA cautions PH patients to check with their doctor before taking up yoga, meditation and other mindfulness practices. Pulmonary hypertension (PH) is a progressive disease that affects the heart and the lungs (Lai,

PHA Wants to Hear from Kids with PH, Parents and Providers

April 6th, 2018|0 Comments

The Pulmonary Hypertension Association (PHA) launched a survey of the pediatric PH community today to learn more about the needs of children with PH, their parents and providers. This brief survey closes on Friday, April

With the Right Diagnosis, Sharyn Robbins is Back to Bowling with Spare Time to Support the Pulmonary Hypertension Association

March 28th, 2018|0 Comments

Silver Spring, Md. (March 28, 2018) - At Manasquan High School in Manasquan, NJ, where she taught physical education and health classes for 35 years, Sharyn Robbins was a role model for healthy, fit