We are here to serve…
Our support group network has grown to more than 200 groups throughout the United States and Puerto Rico. PHA coordinates the work of nearly 300 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Training Institute, endowed by United Therapeutics has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings.
Meeting in a Minute: Insurance 101
Part 2 on CTEPH Meeting in a Minute coming soon!
In-Person Support Groups Resume as Online Meetings Continue
Some Pulmonary Hypertension Association (PHA) support groups have begun to meet in-person for the first time in two years. Groups that meet in-person must follow PHA’s In-Person Meeting Policy to protect attendees. Support group leaders can choose to hold in-person, virtual or hybrid (in-person with virtual elements) meetings.
Join our Nationwide Support Group on Stress and Anxiety
Discover ways to navigate stress and anxiety in a nationwide virtual support group meeting. Join the Pulmonary Hypertension Association, experienced support group leaders, people with PH and caregivers from throughout the United States. PHA’s National Support Group Meeting: Connecting to Thrive is set for 4 p.m. EST March 2.
Support Group Leader Advisory Board Names New Members
The Pulmonary Hypertension Association (PHA) welcomes two new members to its Support Group Leader Advisory Board: Laura Hooley and Marcie McGregor.
Virtual Support Group Meetings to Continue Through Year-End
Pulmonary Hypertension Association support group meetings will remain virtual through the end of the year. The decision was influenced by Centers for Disease Control and Prevention guidance and PHA’s Board of Trustees, Scientific Leadership Council and Support Group Leader Advisory Board.
Mom and Caregiver Daughter Share Support Group Leadership
Helina Ofori has been her mother’s caregiver for more than 10 years. As she started taking her mom to appointments, help with housekeeping and advocate for her, she also got involved in Pat Ofori’s pulmonary hypertension support group. Today, they lead the group together.
Do You Have What it Takes to Help Others? Volunteer for our Support Line
Share your strength and empathy with other members of the pulmonary hypertension community. The Pulmonary Hypertension Association (PHA) needs compassionate volunteers to take calls on its support line, an invaluable service PHA has provided since 1995.
Inspiring Hope Among Young Adults with PH
After attending the Pulmonary Hypertension Association (PHA) International PH Conference and Scientific Sessions in 2018, Janessa Curnow decided to become a PHA support group leader and started one in her hometown. Today Janessa leads a telephone support group for young adults with PH.
Study: PH Support Groups Are Good for Your Health
Your support group participation might improve your life more than you realize. A recently published study shows that support groups improve meaningful health-related outcomes, such as self-care, pulmonary hypertension symptom management, medication adherence and understanding related medical procedures.
Support Group Leader Stays Strong Through Faith and Family
Gwendolyn Brown has lived with pulmonary arterial hypertension (PAH) for more than 40 years. She has survived a heart attack, three strokes and 11 mini strokes. She leads the Pulmonary Hypertension Association (PHA)’s Cleveland Community Support Group and is a minister at Zion Pentecostal Church of Christ.
Support Group Leader Inspired by Predecessor
I am proud to help PH community members who feel alone in this fight and to educate them. PH can be a lot to take in, and that's what the group is here to help with.