Support Group Leadership Institute 2018-08-13T19:46:58+00:00

We are here to serve…

Our support group network has grown to more than 275 groups throughout the United States and Puerto Rico. PHA coordinates the work of more than 340 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Institute has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings.

We are grateful to our sponsors – Actelion Pharmaceuticals, Bayer Healthcare and United Therapeutics Corporation – for their generous support.

Peer Support Volunteer Training – Roadmap to Hope

September 14th, 2018|0 Comments

Advocacy and Treatment Access for Support Group Leaders

July 10th, 2018|0 Comments

Conference 2018 for Peer Support Volunteers

March 15th, 2018|0 Comments

The Second Tuesday Show with Abby and Mike: Year in Review and Looking Ahead

December 14th, 2017|0 Comments



SGLI: Postcards, Calendars and Maps – Oh, my!

October 11th, 2017|0 Comments

This training provides tutorials of PHA’s postcards/SGCF order form, map, calendar and meeting report from for PHA support group leaders.

What Every Leader Should Know About PH

April 12th, 2017|0 Comments

PHA provides volunteers with talking points to answer frequently asked questions about PH.

  • Coping Guides

Primer on PHA Resources – Print Materials and Support Groups

March 8th, 2017|0 Comments

PHA has a vast library of print materials. Learn ways you can use print materials to plan meetings, promote PHA membership and more!

  • Debra Watkins

Dec. 2016 – 2016 in Review and Planning for a Successful 2017

December 13th, 2016|0 Comments

What does "success" mean to you? What does it mean to your group? How can we start now to prepare for a successful year ahead? Leaders joined in a discussion about these questions and more

CTEPH Awareness through Support Groups

October 25th, 2016|0 Comments

Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension caused by old blood clots in the lungs (pulmonary emboli). CTEPH Awareness Day falls on the third Tuesday of November, and we want to

Insurance FAQs for Leaders

September 13th, 2016|0 Comments

Join PHA's Treatment Access Associate Nikki Blake for a presentation and discussion about insurance. As Support Group Leaders, you don't have to be insurance experts, but you are one of the first lines of defense.

  • Brad A. Wong

PHA CEO Update: PHA in the Community

August 31st, 2018|0 Comments

Dear PH Community, As we approach Labor Day and begin to transition to the fall season, we have an opportunity to reflect on what was a very busy summer for PHA! Without a doubt,

  • Welcome to Conference

Highlights of PHA’s 2018 International PH Conference and Scientific Sessions in Photos

July 6th, 2018|0 Comments

Whether you were or were not able to attend PHA’s 2018 International PH Conference and Scientific Sessions this past weekend in Orlando, Fla., you can glimpse the highlights and key moments in photos.

NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH

June 20th, 2018|0 Comments

The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a

2018 PHA Celebrity Champion, Elvis Medrano, to Speak at PHA’s 2018 Conference

May 16th, 2018|0 Comments

Washington, D.C., Golden Glove Lightweight Champion and PHA celebrity champion Elvis Medrano will join the PH community at PHA’s 2018 International PH Conference and Scientific Sessions to share his battle with CTEPH during the

PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight

May 15th, 2018|0 Comments

“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so

PH Support Group Raises Awareness for PH at Teaching Hospital Staff Safety and Quality Event

May 3rd, 2018|0 Comments

March 13th may have brought a nor’easter to New Hampshire, but that didn’t stop Jane Armstrong and Deb Cantlin RN, MS from promoting awareness of pulmonary hypertension at a Staff Safety and Quality event

World PH Day Toolkit with Resources, Templates and Memes

April 27th, 2018|0 Comments

Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care. Organizations will

Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

April 26th, 2018|0 Comments

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for

PHA’s Pathlight Membership Magazine to Highlight PHCC Clinicians

April 25th, 2018|0 Comments

The upcoming issue of Pathlight, a complementary quarterly magazine for Pulmonary Hypertension Association (PHA) members, introduces a new feature called, PHour Questions. The segment  will introduce clinicians from Pulmonary Hypertension Care Center (PHCCs), including

Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

April 20th, 2018|0 Comments

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH).  PH is a complex, life-threatening, too-often misdiagnosed progressive illness that affects