We are here to serve…

Our support group network has grown to more than 275 groups throughout the United States and Puerto Rico. PHA coordinates the work of more than 340 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Institute has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings. The Support Group Leadership Institute is made possible by an endowment from United Therapeutics.

Support Group Leadership News

PHA to Host Facebook Live Mini-Concert to Raise Awareness of PH

May 18th, 2017|0 Comments

What: The Pulmonary Hypertension Association (PHA) will present a live mini-concert to bring awareness to pulmonary hypertension (PH), a progressive, life-threatening disease often misdiagnosed – as asthma, for example. The three-minute concert, followed by

  • PHA Regional Clinical Program

PHA Accredits the First Regional Clinical Programs as Part of the Pulmonary Hypertension Care Center Program

May 18th, 2017|0 Comments

Silver Spring, Md. (May 18, 2017) –  Three pulmonary hypertension (PH) clinics have earned accreditation from the Pulmonary Hypertension Association (PHA) after demonstrating their ability to deliver quality care to patients living with a

Viral Ad Raises Awareness of Pulmonary Hypertension

May 17th, 2017|0 Comments

A short video created to gain the attention of an energy drink brand presents a realistic snapshot of a loved one caring for and then losing a loved one to pulmonary hypertension

Michael Knaapen Appointed to Director, PHA’s Patient & Caregiver Programs

April 17th, 2017|0 Comments

PHA is pleased to announce that Michael Knaapen has accepted a new role as Director, Patient & Caregiver Programs.  Michael will be responsible for the department formerly headed by Debbie Drell, working with current staff

Second Tuesday Monthly Trainings

What Every Leader Should Know About PH

April 12th, 2017|0 Comments

PHA provides volunteers with talking points to answer frequently asked questions about PH.

  • Coping Guides

Primer on PHA Resources – Print Materials and Support Groups

March 8th, 2017|0 Comments

PHA has a vast library of print materials. Learn ways you can use print materials to plan meetings, promote PHA membership and more!

  • Debra Watkins

Dec. 2016 – 2016 in Review and Planning for a Successful 2017

December 13th, 2016|0 Comments

What does "success" mean to you? What does it mean to your group? How can we start now to prepare for a successful year ahead? Leaders joined in a discussion about these questions and more

CTEPH Awareness through Support Groups

October 25th, 2016|0 Comments

Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension caused by old blood clots in the lungs (pulmonary emboli). CTEPH Awareness Day falls on the third Tuesday of November, and we want to

Insurance FAQs for Leaders

September 13th, 2016|0 Comments

Join PHA's Treatment Access Associate Nikki Blake for a presentation and discussion about insurance. As Support Group Leaders, you don't have to be insurance experts, but you are one of the first lines of defense.

Refilling the Punch Bowl – Compassion Fatigue

August 24th, 2016|0 Comments

Last year during a meeting of Support Group Leaders, a guest made this insightful observation: "You leaders are like the punch bowl at the party. Everybody comes to you to get replenished. My question is:

PAR for the Course – Planning, Advertising, Running Your Meetings –  Part II

July 24th, 2016|0 Comments

This nuts-and-bolts webinar is second in a series, "PAR for the Course - Planning, Advertising, Running Your Meetings." This webinar focuses on advertising. Laura Hooley is the support group leader of the Dartmouth Hitchcock Support

  • Care, Share, Be Aware

Fundraising & You

May 12th, 2016|0 Comments

Join Carl Hicks, PHA's Executive Vice President and our new Vice President of Development, Mary Kozik! They'll be talking to us about ways that we as leaders can advance the mission to improve and extend

Social Media: Facebook 101 for Support Group Leaders

March 23rd, 2016|0 Comments

Find and Organize Patients with Facebook: Communicate, Recruit and More! Are you using the power of social media to find new patients? Are you keeping conversation going among your members when your support group is

Leaders Scoop: PHAs International Conference

February 15th, 2016|0 Comments

PHA’s International PH Conferences bring together more than 1,500 patients, caregivers, medical professionals and other friends of PHA every two years to share information on the latest research, treatments and lifestyle issues with PH. Well,