Support Group Leadership Institute 2017-11-28T20:33:35+00:00

We are here to serve…

Our support group network has grown to more than 275 groups throughout the United States and Puerto Rico. PHA coordinates the work of more than 340 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Institute has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings. The Support Group Leadership Institute is made possible by an endowment from United Therapeutics.

The Second Tuesday Show with Abby and Mike: Year in Review and Looking Ahead

December 14th, 2017|0 Comments

SGLI: Postcards, Calendars and Maps – Oh, my!

October 11th, 2017|0 Comments

This training provides tutorials of PHA’s postcards/SGCF order form, map, calendar and meeting report from for PHA support group leaders.

What Every Leader Should Know About PH

April 12th, 2017|0 Comments

PHA provides volunteers with talking points to answer frequently asked questions about PH.

  • Coping Guides

Primer on PHA Resources – Print Materials and Support Groups

March 8th, 2017|0 Comments

PHA has a vast library of print materials. Learn ways you can use print materials to plan meetings, promote PHA membership and more!

  • Debra Watkins

Dec. 2016 – 2016 in Review and Planning for a Successful 2017

December 13th, 2016|0 Comments

What does "success" mean to you? What does it mean to your group? How can we start now to prepare for a successful year ahead? Leaders joined in a discussion about these questions and more

CTEPH Awareness through Support Groups

October 25th, 2016|0 Comments

Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension caused by old blood clots in the lungs (pulmonary emboli). CTEPH Awareness Day falls on the third Tuesday of November, and we want to

Insurance FAQs for Leaders

September 13th, 2016|0 Comments

Join PHA's Treatment Access Associate Nikki Blake for a presentation and discussion about insurance. As Support Group Leaders, you don't have to be insurance experts, but you are one of the first lines of defense.

Refilling the Punch Bowl – Compassion Fatigue

August 24th, 2016|0 Comments

Last year during a meeting of Support Group Leaders, a guest made this insightful observation: "You leaders are like the punch bowl at the party. Everybody comes to you to get replenished. My question is:

PAR for the Course – Planning, Advertising, Running Your Meetings –  Part II

July 24th, 2016|0 Comments

This nuts-and-bolts webinar is second in a series, "PAR for the Course - Planning, Advertising, Running Your Meetings." This webinar focuses on advertising. Laura Hooley is the support group leader of the Dartmouth Hitchcock Support

  • Care, Share, Be Aware

Fundraising & You

May 12th, 2016|0 Comments

Join Carl Hicks, PHA's Executive Vice President and our new Vice President of Development, Mary Kozik! They'll be talking to us about ways that we as leaders can advance the mission to improve and extend

PHA Learns That PH Financial Assistance Fund Is Now Closed

January 16th, 2018|0 Comments

PHA has learned that the Patient Advocate Foundation (PAF) PH fund has closed. The fund opened on the heels of the community learning that Caring Voice Coalition is no longer providing patient assistance funding for

UPDATE PH Financial Assistance: The Patient Advocate Foundation

January 12th, 2018|0 Comments

The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with medicare, medicaid or military benefits is now open. More information at https://www.copays.org/diseases/pulmonary-hypertension. The Pulmonary Hypertension Association (PHA) will continue to post financial

The Barefoot Movement: PHighting for a Cure for Jackson

January 11th, 2018|0 Comments

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a

Six Things to Know About PHA’s Conference Scholarships

January 10th, 2018|0 Comments

PHA's International PH Conference and Scientific Sessions bring together more than 1,500 patients, caregivers, medical professionals and other friends of PHA every two years to share information on the latest PH research, treatments and lifestyle

UPDATE: Drug Companies May Assist Former CVC Clients

January 10th, 2018|0 Comments

On January 4, 2018 the Department of Health and Human Services (HHS) issued a letter telling drug companies that they are permitted to provide free medication in 2018 to “federal healthcare program beneficiaries who were

Finding Ways to Pay for Care: New Pediatric-ONLY Assistance Resource

January 8th, 2018|0 Comments

Parents and guardians whose minor children have pulmonary hypertension (PH) should be aware of the pediatric assistance fund at the HealthWell Foundation. The fund assists with co-pay or other costs related to a child’s life-altering

PHA Learns PH Patient Fund Is No Longer Accepting Applications

January 8th, 2018|0 Comments

PHA has learned that the PAN Foundation PH fund has closed. The fund opened on the heels of the community leaning that Caring Voice Coalition is no longer providing patient assistance funding for PH patients.

Depression and PH: Why Screening and Treatment Are Critical

January 5th, 2018|0 Comments

A pulmonary hypertension (PH) diagnosis can drastically change a person’s life, as well as the lives of the people close to them, in a short amount of time. Since there is no cure, the

PH Financial Assistance Update: Caring Voice Coalition Will Not Offer Financial Support in 2018

January 4th, 2018|0 Comments

On January 4, 2018, the Caring Voice Coalition (CVC) announced on Facebook that the organization will be unable to offer financial assistance grants in 2018. The CVC will remain in operation, with a focus on non-financial

PHA Volunteers and Support Group Leaders Bring a Year of Joy and Support to PH Community

December 21st, 2017|0 Comments

PHA’s support services have reached record numbers of patients and families through our in-person, online and telephone services. More in-person support groups have met in 2017 than ever before! 240 active support groups in 2017