We are here to serve…
Our support group network has grown to more than 200 groups throughout the United States and Puerto Rico. PHA coordinates the work of nearly 300 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Training Institute, endowed by United Therapeutics has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings.
Meeting in a Minute: Insurance 101
Part 2 on CTEPH Meeting in a Minute coming soon!
Support Group Leader Advisory Board Names New Member
The Pulmonary Hypertension Association (PHA) welcomes Doug Taylor to its Support Group Leader Advisory Board. Doug, who was diagnosed in 2003, has led the Midlands-Columbia group in South Carolina for 16 years. Doug is known for celebrating each day. “If we make each day a holiday and celebrate, it makes our life fuller,” Doug says.
PHA Support Groups Share Holiday Celebrations
Pulmonary Hypertension Association support groups came together for holiday cheer, many for the first time since the pandemic. Get a glimpse of the celebrations in this round-up. Read more and browse the photos.
Thank You to Our Volunteer Support Group Leaders
The Pulmonary Hypertension Association (PHA) recently showed appreciation for its support group leaders with a virtual holiday party. The party featured two videos: One that features PHA staff and members of our Support Group Leader Advisory Board and a roll call of support group leaders’ names. See the videos.
Spotlight on Support Groups
With some Pulmonary Hypertension Association support groups shifting from virtual to hybrid or in-person meetings, support group members have come up with creative ways to reconnect. Learn what support groups in Chicago, Los Angeles and Minneapolis-St. Paul, are doing to build connections.
PHA Looks to Start Support Groups in New Cities
Start a PHA support group in your hospital or clinic! Support groups provide patients and caregivers a chance to meet others living with pulmonary hypertension in a welcoming environment intended for education and support. PHA provides training, resources for speakers, meals and more. Learn more.
In-Person Support Groups Resume as Online Meetings Continue
Some Pulmonary Hypertension Association (PHA) support groups have begun to meet in-person for the first time in two years. Groups that meet in-person must follow PHA’s In-Person Meeting Policy to protect attendees. Support group leaders can choose to hold in-person, virtual or hybrid (in-person with virtual elements) meetings.
Join our Nationwide Support Group on Stress and Anxiety
Discover ways to navigate stress and anxiety in a nationwide virtual support group meeting. Join the Pulmonary Hypertension Association, experienced support group leaders, people with PH and caregivers from throughout the United States. PHA’s National Support Group Meeting: Connecting to Thrive is set for 4 p.m. EST March 2.
Support Group Leader Advisory Board Names New Members
The Pulmonary Hypertension Association (PHA) welcomes two new members to its Support Group Leader Advisory Board: Laura Hooley and Marcie McGregor.
Virtual Support Group Meetings to Continue Through Year-End
Pulmonary Hypertension Association support group meetings will remain virtual through the end of the year. The decision was influenced by Centers for Disease Control and Prevention guidance and PHA’s Board of Trustees, Scientific Leadership Council and Support Group Leader Advisory Board.
Mom and Caregiver Daughter Share Support Group Leadership
Helina Ofori has been her mother’s caregiver for more than 10 years. As she started taking her mom to appointments, help with housekeeping and advocate for her, she also got involved in Pat Ofori’s pulmonary hypertension support group. Today, they lead the group together.