We are here to serve…

Our support group network has grown to more than 200 groups throughout the United States and Puerto Rico. PHA coordinates the work of nearly 300 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Training Institute, endowed by United Therapeutics has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings.

Virtual Support Group Meetings to Continue Through Year-End

August 19th, 2021|

Pulmonary Hypertension Association support group meetings will remain virtual through the end of the year. The decision was influenced by Centers for Disease Control and Prevention guidance and PHA’s Board of Trustees, Scientific Leadership Council and Support Group Leader Advisory Board.

Inspiring Hope Among Young Adults with PH

May 13th, 2021|

After attending the Pulmonary Hypertension Association (PHA) International PH Conference and Scientific Sessions in 2018, Janessa Curnow decided to become a PHA support group leader and started one in her hometown. Today Janessa leads a telephone support group for young adults with PH.

Study: PH Support Groups Are Good for Your Health

April 29th, 2021|

Your support group participation might improve your life more than you realize. A recently published study shows that support groups improve meaningful health-related outcomes, such as self-care, pulmonary hypertension symptom management, medication adherence and understanding related medical procedures.

Support Group Leader Stays Strong Through Faith and Family

April 15th, 2021|

Gwendolyn Brown has lived with pulmonary arterial hypertension (PAH) for more than 40 years. She has survived a heart attack, three strokes and 11 mini strokes. She leads the Pulmonary Hypertension Association (PHA)’s Cleveland Community Support Group and is a minister at Zion Pentecostal Church of Christ.

Why I Volunteer as an Email PHriend

December 17th, 2020|

Krista Cummings, of Richmond, Virginia, remembers her fear and feelings of helpless after her 2009 idiopathic pulmonary arterial hypertension diagnosis. So she volunteers as a Pulmonary Hypertension Association (PHA) support group leader and Email PHriend.

Get Social! Join a PHA Facebook Group

September 10th, 2020|

Essential social support during the COVID-19 pandemic is possible thanks to the Pulmonary Hypertension Association (PHA)’s eight Facebook groups. Pam Kehoe of Wisconsin, who joined the CTEPH group after her diagnosis, shares how the group provides her with a supportive space to exchange stories, news and concerns.