We are here to serve…
Our support group network has grown to more than 200 groups throughout the United States and Puerto Rico. PHA coordinates the work of nearly 300 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Training Institute, endowed by United Therapeutics has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings.
Meeting in a Minute: Insurance 101
Part 2 on CTEPH Meeting in a Minute coming soon!
SGLI: Postcards, Calendars and Maps – Oh, my!
This training provides tutorials of PHA’s postcards/SGCF order form, map, calendar and meeting report from for PHA support group leaders.
What Every Leader Should Know About PH
PHA provides volunteers with talking points to answer frequently asked questions about PH.
Volunteer Spotlight: Giving Hope to Others
Bill Kolm, Pulmonary Hypertension Association (PHA) support group leader of the Omaha Area Support Group in Nebraska, has been leading the group for nearly two-and-a-half years. “I have seen so many new patient attendees
Training Energizes East Coast Support Group Leaders
A regional support group leader training held in Silver Spring, Maryland, last month reminded Laura Camponeschi why she volunteers as a support group leader. “This was really helpful, inspiring and refreshing,” Laura said. PHA
On Grief and Giving Back
This article originally appeared in the June issue of Pathlight. Jackie Woosley is a Pulmonary Hypertension Association (PHA) support group leader who also facilitates the monthly PHA Bereavement Telephone Support Group. She was the caregiver for
Volunteer Spotlight: Iowa Support Group Learns About Palliative Care
Karen Fragale and Traci Stewart, Pulmonary Hypertension Association support group leaders of the Pulmonary Hypertension (PH) Iowa Support Group, hosted a meeting on palliative care on June 8. At the meeting, Jen Krier, a
New Members Join 2018-20 Support Group Leader Advisory Board
The Pulmonary Hypertension Association (PHA) is pleased to announce the members of PHA's Support Group Leader Advisory Board for the 2018-2020 term: Lindsay Collins – new member Debra Hines – new member Mike Robinson
PHA CEO Update: PHA in the Community
Dear PH Community, As we approach Labor Day and begin to transition to the fall season, we have an opportunity to reflect on what was a very busy summer for PHA! Without a doubt,
Highlights of PHA’s 2018 International PH Conference and Scientific Sessions in Photos
Whether you were or were not able to attend PHA’s 2018 International PH Conference and Scientific Sessions this past weekend in Orlando, Fla., you can glimpse the highlights and key moments in photos.
NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH
The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a
2018 PHA Celebrity Champion, Elvis Medrano, to Speak at PHA’s 2018 Conference
Washington, D.C., Golden Glove Lightweight Champion and PHA celebrity champion Elvis Medrano will join the PH community at PHA’s 2018 International PH Conference and Scientific Sessions to share his battle with CTEPH during the
PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight
“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so