We are here to serve…

Our support group network has grown to more than 275 groups throughout the United States and Puerto Rico. PHA coordinates the work of more than 340 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Institute has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings. The Support Group Leadership Institute is made possible by an endowment from United Therapeutics.

Support Group Leadership News

Senate Health Care Proposal Released, Continues to Evolve

June 22nd, 2017|0 Comments

Earlier today, Senate leaders released a new proposal to overhaul the Affordable Care Act. The latest proposal maintains the basic structure of the American Health Care Act passed by the House of Representatives last month

PHA Facebook Community Weighs In: Tips for Enjoying the Warmer Weather

June 21st, 2017|0 Comments

PHA's "Question of the Quarter" is a way for our Facebook community to weigh in with tips and opinions on life with pulmonary hypertension (PH). Answers are featured in Pathlight magazine. Pathlight is the official magazine of

Share Your Health Care Story and PHA Will Deliver It to Capitol Hill

June 21st, 2017|0 Comments

We're joining other national patient and professional organizations in advocating for people living with costly, chronic conditions like PH. You can help by sharing your story! On June 27, PHA will join national patient and

Commuters Along Amtrak’s Northeast Corridor Learning about PH from PHA’s Heart2CurePH Ads

June 15th, 2017|0 Comments

If you’re a commuter or vacationer on Amtrak’s Northeast Corridor, you may have seen the Pulmonary Hypertension Association (PHA) Awareness Campaign Ads that went up this week. Some focus on PHA’s Heart2CurePH concept.  Along with

Second Tuesday Monthly Trainings

What Every Leader Should Know About PH

April 12th, 2017|0 Comments

PHA provides volunteers with talking points to answer frequently asked questions about PH.

  • Coping Guides

Primer on PHA Resources – Print Materials and Support Groups

March 8th, 2017|0 Comments

PHA has a vast library of print materials. Learn ways you can use print materials to plan meetings, promote PHA membership and more!

  • Debra Watkins

Dec. 2016 – 2016 in Review and Planning for a Successful 2017

December 13th, 2016|0 Comments

What does "success" mean to you? What does it mean to your group? How can we start now to prepare for a successful year ahead? Leaders joined in a discussion about these questions and more

CTEPH Awareness through Support Groups

October 25th, 2016|0 Comments

Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension caused by old blood clots in the lungs (pulmonary emboli). CTEPH Awareness Day falls on the third Tuesday of November, and we want to

Insurance FAQs for Leaders

September 13th, 2016|0 Comments

Join PHA's Treatment Access Associate Nikki Blake for a presentation and discussion about insurance. As Support Group Leaders, you don't have to be insurance experts, but you are one of the first lines of defense.

Refilling the Punch Bowl – Compassion Fatigue

August 24th, 2016|0 Comments

Last year during a meeting of Support Group Leaders, a guest made this insightful observation: "You leaders are like the punch bowl at the party. Everybody comes to you to get replenished. My question is:

PAR for the Course – Planning, Advertising, Running Your Meetings –  Part II

July 24th, 2016|0 Comments

This nuts-and-bolts webinar is second in a series, "PAR for the Course - Planning, Advertising, Running Your Meetings." This webinar focuses on advertising. Laura Hooley is the support group leader of the Dartmouth Hitchcock Support

  • Care, Share, Be Aware

Fundraising & You

May 12th, 2016|0 Comments

Join Carl Hicks, PHA's Executive Vice President and our new Vice President of Development, Mary Kozik! They'll be talking to us about ways that we as leaders can advance the mission to improve and extend

Social Media: Facebook 101 for Support Group Leaders

March 23rd, 2016|0 Comments

Find and Organize Patients with Facebook: Communicate, Recruit and More! Are you using the power of social media to find new patients? Are you keeping conversation going among your members when your support group is

Leaders Scoop: PHAs International Conference

February 15th, 2016|0 Comments

PHA’s International PH Conferences bring together more than 1,500 patients, caregivers, medical professionals and other friends of PHA every two years to share information on the latest research, treatments and lifestyle issues with PH. Well,