We are here to serve…
Our support group network has grown to more than 275 groups throughout the United States and Puerto Rico. PHA coordinates the work of more than 340 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Institute has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings. The Support Group Leadership Institute is made possible by an endowment from United Therapeutics.
SGLI: Postcards, Calendars and Maps – Oh, my!
This training provides tutorials of PHA’s postcards/SGCF order form, map, calendar and meeting report from for PHA support group leaders.
What Every Leader Should Know About PH
PHA provides volunteers with talking points to answer frequently asked questions about PH.
Primer on PHA Resources – Print Materials and Support Groups
PHA has a vast library of print materials. Learn ways you can use print materials to plan meetings, promote PHA membership and more!
Dec. 2016 – 2016 in Review and Planning for a Successful 2017
What does "success" mean to you? What does it mean to your group? How can we start now to prepare for a successful year ahead? Leaders joined in a discussion about these questions and more
CTEPH Awareness through Support Groups
Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension caused by old blood clots in the lungs (pulmonary emboli). CTEPH Awareness Day falls on the third Tuesday of November, and we want to
Insurance FAQs for Leaders
Join PHA's Treatment Access Associate Nikki Blake for a presentation and discussion about insurance. As Support Group Leaders, you don't have to be insurance experts, but you are one of the first lines of defense.
Refilling the Punch Bowl – Compassion Fatigue
Last year during a meeting of Support Group Leaders, a guest made this insightful observation: "You leaders are like the punch bowl at the party. Everybody comes to you to get replenished. My question is:
Highlights of PHA’s 2018 International PH Conference and Scientific Sessions in Photos
Whether you were or were not able to attend PHA’s 2018 International PH Conference and Scientific Sessions this past weekend in Orlando, Fla., you can glimpse the highlights and key moments in photos.
NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH
The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a
2018 PHA Celebrity Champion, Elvis Medrano, to Speak at PHA’s 2018 Conference
Washington, D.C., Golden Glove Lightweight Champion and PHA celebrity champion Elvis Medrano will join the PH community at PHA’s 2018 International PH Conference and Scientific Sessions to share his battle with CTEPH during the
PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight
“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so
PH Support Group Raises Awareness for PH at Teaching Hospital Staff Safety and Quality Event
March 13th may have brought a nor’easter to New Hampshire, but that didn’t stop Jane Armstrong and Deb Cantlin RN, MS from promoting awareness of pulmonary hypertension at a Staff Safety and Quality event
World PH Day Toolkit with Resources, Templates and Memes
Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care. Organizations will
Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension
Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia. That didn’t stop her from being active like any other child as her parents searched for
PHA’s Pathlight Membership Magazine to Highlight PHCC Clinicians
The upcoming issue of Pathlight, a complementary quarterly magazine for Pulmonary Hypertension Association (PHA) members, introduces a new feature called, PHour Questions. The segment will introduce clinicians from Pulmonary Hypertension Care Center (PHCCs), including
Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease
SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH). PH is a complex, life-threatening, too-often misdiagnosed progressive illness that affects
Ask the Expert: Managing Seasonal Allergies in Patients With Pulmonary Hypertension (PH)
By Nathan Verlinden, Cardiology Clinical Pharmacy Specialist, Allegheny General Hospital, Pittsburgh Nathan Verlinden received his PharmD from Drake University in Des Moines, Iowa, in 2013. He then completed a post-graduate year 1 (PGY-1) pharmacy practice