We are here to serve…
Our support group network has grown to more than 275 groups throughout the United States and Puerto Rico. PHA coordinates the work of more than 340 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Institute has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings. The Support Group Leadership Institute is made possible by an endowment from United Therapeutics.
PHA has a vast library of print materials. Learn ways you can use print materials to plan meetings, promote PHA membership and more!
What does "success" mean to you? What does it mean to your group? How can we start now to prepare for a successful year ahead? Leaders joined in a discussion about these questions and more
This nuts-and-bolts webinar is second in a series, "PAR for the Course - Planning, Advertising, Running Your Meetings." This webinar focuses on advertising. Laura Hooley is the support group leader of the Dartmouth Hitchcock Support
PHA has learned that the Patient Advocate Foundation (PAF) PH fund has closed. The fund opened on the heels of the community learning that Caring Voice Coalition is no longer providing patient assistance funding for
The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with medicare, medicaid or military benefits is now open. More information at https://www.copays.org/diseases/pulmonary-hypertension. The Pulmonary Hypertension Association (PHA) will continue to post financial
Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.” Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a
PHA's International PH Conference and Scientific Sessions bring together more than 1,500 patients, caregivers, medical professionals and other friends of PHA every two years to share information on the latest PH research, treatments and lifestyle
On January 4, 2018 the Department of Health and Human Services (HHS) issued a letter telling drug companies that they are permitted to provide free medication in 2018 to “federal healthcare program beneficiaries who were
Parents and guardians whose minor children have pulmonary hypertension (PH) should be aware of the pediatric assistance fund at the HealthWell Foundation. The fund assists with co-pay or other costs related to a child’s life-altering
PHA has learned that the PAN Foundation PH fund has closed. The fund opened on the heels of the community leaning that Caring Voice Coalition is no longer providing patient assistance funding for PH patients.
A pulmonary hypertension (PH) diagnosis can drastically change a person’s life, as well as the lives of the people close to them, in a short amount of time. Since there is no cure, the
On January 4, 2018, the Caring Voice Coalition (CVC) announced on Facebook that the organization will be unable to offer financial assistance grants in 2018. The CVC will remain in operation, with a focus on non-financial
PHA’s support services have reached record numbers of patients and families through our in-person, online and telephone services. More in-person support groups have met in 2017 than ever before! 240 active support groups in 2017