The Centers for Medicare and Medicaid Services (CMS) has proposed significant changes to how home oxygen (also known as supplemental oxygen) is regulated and paid for. The Pulmonary Hypertension Association (PHA) is taking action to improve the pulmonary hypertension (PH) community’s experience accessing home oxygen. If you have been prescribed home oxygen, you can help by completing a brief survey coordinated by the American Lung Association.

PHA often hears from individuals who use home oxygen about the challenges they face when filling their oxygen prescriptions – from poor customer service to an inability to access the types of equipment prescribed by their physicians. If you are a home oxygen user, this survey offers you the opportunity to share your personal experience so that PHA can communicate it to CMS and members of Congress.

PHA has joined the American Lung Association, American Thoracic Society, COPD Foundation and others in submitting comments from our organizations to CMS recommending major changes to improve patients’ experiences with home oxygen. This coalition of organizations also is working to ensure that key decision makers hear directly from oxygen users about their experiences. If you use home oxygen, please take a moment to complete the survey.

For more information about PHA’s advocacy and treatment access programs, contact Katie Kroner, PHA’s senior director, advocacy and treatment access, at gro.noitaicossAHP@ycacovdA or 301-565-3004 x749.