“If I didn’t have the medication I wouldn’t be around. I would have passed away. And I don’t want to do that because I have great grandchildren and I want to see them grow up.”


Edith, a 71-year-old Medicare recipient diagnosed with PH five years ago. When the non-profit charity she had relied on stopped offering co-pay assistance, she turned to PHA for help. Stories like these are powerful eye openers to help  Members of Congress understand that charitable assistance programs are a life and death issue for people living with PH.

PHA now has two important ways you can share your financial assistance story:

  • Share your story with PHA. We will carry your story directly to Members of Congress during legislative events and visits to Capitol Hill. In addition, you may opt for us to share your story  in PHA publications or with the media.
  • Email your Member of Congress. Ask your U.S. representative to co-sponsor H.R. 3976. This bill would help protect charitable assistance programs and the patients they serve. Send a pre-written message in just two steps, or personalize the message for increased impact.