PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

CEO Update: Help Us Spread Awareness for World PH Day

Join the Pulmonary Hypertension Association (PHA) and 80 organizations throughout the world in May for a global awareness campaign. Starting May 5 on World PH Day, help educate health care providers and the general public about pulmonary hypertension (PH). Share your PH journey to secure timely, accurate diagnosis and treatment everywhere in the world.

Study: PH Support Groups Are Good for Your Health

Your support group participation might improve your life more than you realize. A recently published study shows that support groups improve meaningful health-related outcomes, such as self-care, pulmonary hypertension symptom management, medication adherence and understanding related medical procedures.

Help Change the Lives of People With PH

Monica Penaranda thought her life was shattered when a pulmonary hypertension (PH) diagnosis ended her days of cheerleading, track and varsity softball. Instead, she reconfigured her life goals. Twenty-three years later, Monica, a member of the Pulmonary Hypertension Association (PHA) Board of Trustees, is the face of PHA’s spring fundraising campaign.

Scholarships Available for People With Rare Diseases

Apply by May 7 for a $5,000 scholarship from the EveryLife Foundation for Rare Diseases. Thirty-five scholarships are available for the fall 2021 semester. The scholarships are open to people 17 and older with rare diseases, including non-traditional students.

Act Now: Urge Congress to Support Safe Step Act

Ask your members of Congress to support legislation that protects your access to therapy prescribed by your pulmonary hypertension (PH) doctor. The Safe Step Act would require insurance companies to cover your prescribed PH treatment, not a cheaper alternative.

Help Fight Copay Accumulators

Colleen, chair of the Pulmonary Hypertension Association (PHA) Board of Trustees, testified March 9 in support of a Connecticut bill to end the cost-shifting practice, which puts a higher burden on the patient. PHA President and CEO Matt Granato provided written testimony in support of the legislation.

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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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