Worton, MD. (July 28, 2015) — Every July, since 2007, about 25 pediatric pulmonary hypertension (PH) patients experience a summer ritual most kids with the disease only experience through movies and television. They go to summer camp.
PH is incurable and life threatening, as it can lead to failure of the right side of the heart as it pushes hard to get blood through arteries in the lungs narrowed by the disease. Without treatment, the average survival time is 2.8 years with symptoms that include shortness of breath, fatigue and fainting. PH too often looks like asthma or other less threatening illnesses.
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