I have long enjoyed working with patients and families navigating chronic illness. It’s a privilege to offer support and be part of their journey. My favorite parts of my job are getting to know patients and families, facilitating the support group and collaborating with my colleagues.

Advocacy is critical for improving patient care and access to treatment, as well as ensuring patient needs are being met. Health care is a complex system to navigate, and anything we can do to make that easier and amplify patients’ voices is important. Chronic illness is hard enough to manage — we must seek opportunities to minimize stress on our patients and families whenever possible.

Medical professionals have a unique perspective on the complex needs of patients and their families. We see the challenges our patients face every day. We can offer specific insight to legislators on what we’ve learned, with the goal of creating meaningful change. Advocacy helps us maintain motivation and hope that there is always room for growth and improvement in the policies that regulate our health care system.

It’s easy to forget that oxygen, in addition to medication, is a treatment for PH. It can reduce symptoms of PH, improve patients’ quality of life and allow them to engage in meaningful activities. Quality of life is critical for mental health and helping patients navigate the emotional challenges associated with chronic illness. Without oxygen, many patients couldn’t safely work, exercise, go on outings or spend time with loved ones.

Easier access to oxygen would reduce the stress and anxiety that often occurs when patients struggle to get the treatment they need and deserve. It would ensure that all patients can access the recommended amount and type of oxygen, regardless of their income level or insurance coverage.

We as health care professionals want to give patients the best chance at treating and slowing the progression of their condition, and oxygen is part of that equation for many folks.