Patient-to-Patient Support Line Volunteer Profile



Diagnosed in 1998

“I am married. I enjoy vacations, staying home with my dog, spending time with family and friends, beading, scrapbooking, reading and talking to new PH patients.”

About Melanie:

  • Born in 1976
  • Lives in New Jersey
  • Type of PH: Idiopathic
  • Languages: English

Melanie feels comfortable discussing her experiences with:

  • oral medication
  • traveling with oxygen
  • organizing medical records
  • Sub-q Remodulin
  • Flolan
  • cardiac and pulmonary rehabilitation
  • working with PH
  • traveling with PH
  • communicating with medical personnel
  • local support groups
  • online communities (PHA email groups, message boards, chats)
Disclaimer: Patient-to-Patient Support Line volunteers are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.