Support Group Meeting Calendar

Topic: Conference

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Topic: Advocate for your Wellbeing

Speaker: Theresa Sargent, NP

Sponsor: UTC

Leader: Evan Holm

Email: ude.mnu.dulas@mlohve

Phone Number: 505-272-2815

Topic: Summary of PHA 2022 International PH Conference

Speaker: Jim & Alice Yount, PHA support group leaders

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Phone Number: 952-221-5475

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

Topic: Meet and greet

Leader: Laura Hooley

Email: ten.tniopriafym@harual

Phone Number:

Topic: Empowered Patient

Speaker: Sandra Lombardi, RN

Sponsor: Janssen Pharmaceuticals

Leader: Lori Kirby, Sonia Tindal

Email: moc.oohay@2102ybriki, ude.shusl@lednit.ainos

Phone Number: 318-680-1189, 318-675-5926

Topic: Twin Cities Annual PH Picnic at Battle Creek Park

Leader: Alice Yount, Wayne Hansen

Email: moc.eocsirbsmleh@tnuoya, ten.tsacmoc@esnahkw

Phone Number: 952-221-5475, 612-787-8161

Call in to connect, learn, and share strategies and experiences caring for your child with PH. Register for an upcoming meeting and receive call instructions once registered.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Topic: Open discussion

Leader: Pat Graham, Debbi Baugh

Email: moc.liamg@caspuorghp

Phone Number: 410-353-0350, 916-206-3567

Topic: Advocate for your Wellbeing

Speaker: Shawn Stutzman, Cardiopulmonary Specialist

Sponsor: UTC

Leader: Cristina Arias

Email: moc.evil@69a_anitsirC

Phone Number: 559-403-6424

Topic: 2022 Conference Highlights & Open Forum

Speaker: Michele Freeman, LPC

Leader: Michele Freeman

Email: moc.liamg@0002nameerfm

Phone Number: 541-408-4943

Topic: Music-Assisted Relaxation

Speaker: Emma Anderson, MT-BC Ascension St. Vincent

Leader: Denise Turner

Email: moc.tejr@renrutmd

Phone Number: 317-213-1314

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges. Register for an upcoming call and receive call instructions once registered.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Topic: Chair Yoga & Meditation

Leader: Linda Gates

Email: moc.loa@26setagl

Phone Number: 985-651-5582

Topic: Tips on maximizing support from the PHA community & a celebration for our first time meeting in person!

Speaker: Monica Penaranda, PHA Board of Trustees

Leader: Marisela Navarro, Annabel Mejorado

Email: moc.oohay@75_orravanalesiram, moc.liamtoh@odarojemlebanna

Phone Number: 323-532-5164

Topic: Traveling with PAH

Speaker: Dawn Becher, RN

Leader: Elsa Garza, DNP, ACNP

Email: moc.gnulbus@azrag.asle

Topic: TBA

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.

Topic: OTC Medications & Side Effects Management

Leader: Jane Northrop

Email: moc.liamg@puorghpodnalro

Phone Number: 321-245-8435

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

OSU Support Group Meeting

Who:  PH patients, family members, caregivers, healthcare

providers, and anyone affected by PH.

When: Saturday, July 30, 2022 from 11am-1230 pm

Where:  Ross Heart Hospital Auditorium or Virtual at

https://osu.zoom.us/j/97341311834?pwd=V09GbzBOMVpER3o2empza3hkWEdlUT09

Meeting ID: 973 4131 1834     Password: 906620

Topics:  -Managing side effects of PH medications by

Laura Mudd Pietrykowski PharmD

-Open discussion, please bring your questions

RSVP:  Please RSVP if attending in person or virtually

to ude.cmuso@lettik.arbed

Parking:  Handicap drop off at front door of Ross, valet parking or Safe Auto

Garage.  Wheelchairs available at front entrance.  Electrical outlets

for portable oxygen available.  Standard parking fees apply.

Sponsored by OSU PH Team and PHA

Support Group Co-Leaders:  Tiffani Brown (PH patient) & Debbie Kittel RN

Support group will meet quarterly, more details to follow.

Topic: New Normal: Life After a Diagnosis of PAH

Speaker: Abhijit Ravel, MD

Leader: Marcie McGregor

Email: moc.oohay@rogergcm.eicram

Phone Number: 803-640-3406