Support Group Meeting Calendar

Topic: CTEPH Understanding the Basics and Experiencing Stress with your Condition

Speaker: Therese Sargent, NP

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

Topic: Maddie’s Journey

Speaker: Lori Heaton, Mother of Deceased

Leader: Lala Juarez

Email: moc.liamg@raeBalaLox

Phone Number: 801-663-4897

Topic: Helping Newly Diagnosed

Speaker: Samuel Allen, MD

Leader: Carla Kinsey

Email: moc.kooltuo@k_alrac

Phone Number: 586-530-0160

Topic: Pulmonary Rehab & Importance of Exercise

Speaker: Carrie Suzette Schmitt, RRT

Leader: Linda Gates

Email: moc.loa@26setagl

Phone Number: 9856515582

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email:moc.liamg@1691senobj 

Topic: Mental Health/Quality of Life

Speaker: Tiffani Brown, Patient

Leader: Tiffani Brown

Email: moc.liamg@4909inaffit

Phone Number: 614-325-3941

Topic: Managing Your Health During Natural Disasters

Speaker: Jeff Robinson, MD

Leader: Michele Freeman

Email: moc.liamg@puorghpnogero

Phone Number: 541-408-4943

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Topic: How to be the best patient

Speaker: Evan Holm, LMSW SWCM

Leader: Evan Holm

Email: ude.mnu.dulas@mlohve

Phone Number: 505-272-2815

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Valerie A. Leroy, NP, PH Program Coordinator

Sponsor: Bayer Healthcare

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Topic: Micro-Habits to Improve Body Function: Chair Yoga, Posture & Breathing

Speaker: Amy Anne Moore, Certified Yoga Instructor Expert

Leader: Karen Sawyer

Email: moc.liamg@elppadiulul

Topic: Meet & Greet

Leader: Terrie Keplinger

Email: moc.liamg@regnilpek.eirret

Phone Number: 423-732-9344

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Topic: Advocate for your Wellbeing

Speaker: TBA

Sponsor: UTC

Leader: Joyce Kossman, Matthew Schatti

Email: ten.tta@yaj.ecyoj

Phone Number: 757-388-9138

Topic: PH Research

Speaker: Jeffrey Stewart, MD

Leader: Laura Hooley

Email: ten.tniopriafym@harual

Phone Number: 603-863-9980

Topic: Navigating Patient Financial Assistance

Speaker: Heather Arena, RRT, RPFT

Leader: Heather Arena

Email: moc.liamg@1sreymrh

Phone Number: 269-982-5864

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH, Medication Adherence and Goals

Speaker: Greg Lanier, MD

Sponsor: Bayer Healthcare

Leader: Diahann Wilcox

Email: ude.chcu@xocliwid

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: moc.liamg@puorghpnogero

Topic: Relationships & PAH

Speaker: Jennalyn Mayeux, NP U of Utah Dyspnea clinic

Leader: Linda Urban

Email: moc.liamg@3060nabrul

Phone Number: 970-810-3776

Topic: Q&A Session on Estate Planning

Speaker: Sean Nicholas Fay, Esq.

Leader: Mary Clare McGraw, Wendy Berry

Email: moc.liamg@shpnotsob, moc.liamg@hpnotsobydnew

Phone Number: 781-820-4606, 610-203-8762

Topic: Benefits of Pulmonary Rehab

Speaker: Moronica Wynn, BSRT, RRT

Leader: Marcie McGregor

Email: moc.oohay@rogergcm.eicram

Phone Number: 803-640-3406

Topic: Beating the winter blues and having some fun!

Speaker: Susie McDevitt, DNP, ACNP-BC

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734-662-8433

Topic: About PHA

Speaker: Kevin Heyen, PHA

Leader: Rose Robins

Email: moc.oohay@3088sniborr

Phone Number: 479-366-2912

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Adria Fielder, MS, APRN, AGNP-C

Sponsor: Bayer Healthcare

Leader: Debra Hines

Email: moc.loa@32senihd

Phone Number: 562-230-7593

Topic: Walk for your Wellbeing

Speaker: Amy Sisk, Clinical Pharmacist

Sponsor: UTC

Leader: Tina Lisenby

Email: moc.nsm@1691lmt

Phone Number: 864-512-6625

Topic: PAH Emergency Preparedness

Speaker: Joyce Evalle, RN

Sponsor: CVS Pharmacy

Leader: Cristina B Arias

Email: moc.evil@69a_anitsirC

Phone Number: 559-403-6424

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Sandra Lombardi, RN

Sponsor: Bayer Healthcare

Leader: Pat Graham

Email: moc.liamg@marglatap

Phone Number: 410-353-0350

Topic: Surviving & Living with PAH

Speaker: Gwendolyn Brown, 45 years of living with PAH

Leader: Gwendolyn Brown

Email: moc.liamtoh@3891brnewg

Phone Number: 2166092995

Topic: Coping with Chronic Illness

Speaker: Jennifer Johnson, BSN, RN, CRNI

Leader: Rachel Potter

Email: ude.mssm@rettop.lehcar

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader:

Email: gro.noitaicossahp@troppus

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: moc.liamg@epoHnoitareneGAHP

Topic: Navigating Oxygen Therapy: Devices, Testing and more

Speaker: TBD, RT

Leader: Meghan Cirulis

Email: gro.liami@siluric.nahgem

Phone Number: 801-507-4800

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Neil Chaisson, MD

Sponsor: Bayer Healthcare

Leader: Tammy Stankard

Email: moc.larenegws@draknatst

Phone Number: 440-384-9683

Topic: Respiratory Infections and PH

Speaker: Jane Northrop

Leader: Jane Northrop

Email: moc.liamg@puorghpodnalro

Phone Number: 321-245-8435

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email:moc.kooltuo@CSP_alraC 

Topic: A Book Club for PH Patients by PH Patients

Leader: Alicia Kubes

Email: ude.uyn@sebuk.aicila

Topic: Understanding PH Facts vs Fiction: 1 0n 1 with a PH Physician

Speaker: Khushboo Goel, MD

Leader: Khushboo Goel

Email: gro.shsc@leog.oobhsuhk

Phone Number: 310-967-0875

Topic: Chat

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 8569046867

Topic: The Journey to Transplant

Speaker: Christina Mclaughlin, Patient & Vandana Seeram, MD

Leader: Alicia Peters

Email: ude.lfu.xaj@sretep.aicila

Phone Number: 904 244 1758

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Robert Schilz, DO, Director of Pulmonary Vascular Disease and Lung Transplantation

Sponsor: Bayer Healthcare

Leader: Rebecca Hamilton

Email: moc.liamg@67notlimahacceB

Phone Number: 330-204-9289

Topic: Relationships & PH

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: moc.liamtoh@4271ydalnolem

Phone Number: 716-297-1067

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Lauren Hulett, RN

Sponsor: Bayer Healthcare

Leader: Karen Fragale

Email: moc.oohay@2dogeveileb

Phone Number: 515-259-1030

Topic: Meet & Greet

Leader: Denise Clark

Email: moc.liamg@kralcresined

Phone Number: 502-338-9513