Support Group Meeting Calendar

This information is for caregivers and patients, not for solicitations or commercial use.

Support group leaders: Submit your event to the calendar and a postcard mailing (you will be prompted to sign in).

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05 May
May 5, 2023    
11:00 am MDT - 12:00 pm MDT

Topic: Join us on World PH Day for a Painting Session on the “Body, Soul & Mind”

Speaker: Tamara Liz Rivera Hyde, Painter and Expressive Spiritual Arts Advisor

Leader: Estella Medina, Adriana Mares

Email: estella.epphighters@gmail.com, acvmares@yahoo.com

Phone Number: 915-208-2671, 915-301-2371

06 May
May 6, 2023    
9:30 am EDT - 11:00 am EDT

Topic: Q & A Session

Speaker: Noah Schoenberg, MD

Leader: Mary Clare McGraw

Email: bostonphs@gmail.com

Phone Number: 781-820-4606

06 May
May 6, 2023    
12:00 pm MDT - 2:00 pm MDT

Topic: Our catchup/hangout session

Leader: Lala Juarez

Email: xolalabear@gmail.com

Phone Number: 801-663-4897

09 May
May 9, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Heart Healthy Eating

Speaker: Jean Copeland, RD

Leader: Laura Hooley

Email: laurah@myfairpoint.net

Phone Number: 603-863-9980

10 May
May 10, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Traveling with your Condition

Speaker: Theresa Sargent, NP

Sponsor: Bayer Healthcare

Leader: Connie Gill

Email: cgill25@outlook.com

Phone Number: 513-368-8693

10 May
May 10, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

11 May
May 11, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: Pulmonary Rehab and Current PH Research Studies

Speaker: Joseph Santiago/ Nancy, Research Coordinator/ OSU Pulm Rehab

Leader: Tiffani Brown

Email: tiffani9094@gmail.com

Phone Number: 614-325-3941

11 May
May 11, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

11 May
May 11, 2023    
5:00 pm PDT - 7:00 pm PDT

Topic: Good Nutrition for Chronic Illness

Speaker: Kristin Arnst, CNT

Leader: Michele Freeman

Email: mfreeman2000@gmail.com

Phone Number: 541-408-4943

12 May
May 12, 2023    
10:30 am MDT - 11:30 am MDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Theresa Sargent, NP

Sponsor: Bayer Healthcare

Leader: Evan Holm

Email: evholm@salud.unm.edu

Phone Number: 505-272-2815

13 May
May 13, 2023    
10:00 am CDT - 12:00 pm CDT

Topic: Empowered Patient

Speaker: Christina Benninger, MSN, APRN, FNP-BC, AGACNP-BC

Sponsor: Janssen Pharmaceuticals

Leader: Alice Yount

Email: ayount@helmsbriscoe.com

Phone Number: 952-221-5475

13 May
May 13, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: Healthy Eating & Low Sodium

Speaker: Amber Spencely, MS, RN, CDCES

Leader: Beverly Lipmyer

Email: beverlylip@comcast.net

Phone Number: 7343550295

13 May
May 13, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Chad Miller, MD

Sponsor: Bayer Healthcare

Leader: Marcie McGregor

Email: marcie.mcgregor@yahoo.com

Phone Number: 803-640-3406

13 May
May 13, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: Spring Picnic!

Leader: Colleen Connor

Email: connor_colleen@comcast.net

Phone Number: 610-329-4993

13 May
May 13, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Navigating PAH Benefits & Resources

Speaker: Kayla Baker, RN, BSN

Sponsor: CVS Pharmacy

Leader: Karen Sawyer

Email: luluidapple@gmail.com

Phone Number: 517-420-6457

13 May
May 13, 2023    
12:00 pm CDT - 3:00 pm CDT

Topic: TBA

Leader: Benita Kosiara

Email: benitak9588@comcast.net

Phone Number: 630-942-9588

15 May
May 15, 2023    
5:00 pm EDT - 6:30 pm EDT

Topic: When You Gotta Go You Gotta Go: All About Diuretics!

Speaker: Rachel Potter, LCSW & Simone Hannah-Clark, NP

Leader: Rachel Potter

Email: respiratoryinstitute@MSSM.edu

Phone Number: 212-241-5656

15 May
May 15, 2023    
6:00 pm CDT - 7:00 pm CDT

Topic: TBD

Speaker: John Dallas, MD

Leader: Emily Fenves

Email: emily.fenves@ascension.org

Phone Number: 512-681-0475

15 May
May 15, 2023    
6:00 pm CDT - 8:00 pm CDT

Topic: Oxygen Support/Therapies

Speaker: Cynthia Keller, RRT

Leader: Nancy Niebauer

Email: nancy.niebauer@aah.org

Phone Number: 414-646-0525

16 May
May 16, 2023    
6:00 pm EDT - 7:15 pm EDT

Topic: PAH Emergency Preparedness

Speaker: Caroline Crawford, BSN, RN, CNSS & Beverly Curtsinger, BSN, RN

Sponsor: CVS Pharmacy

Leader: Denise Turner

Email: dmturner@rjet.com

Phone Number: 317-213-1314

16 May
May 16, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

17 May
May 17, 2023    
11:00 am CDT - 12:30 pm CDT

Topic: Post Acute Care after a Hospital Discharge

Speaker: Daniel Brown, Director of Business Development

Leader: Lori Kirby

Email: ikirby2012@yahoo.com

Phone Number: 318-680-1189

17 May
May 17, 2023    
5:00 pm EDT - 6:30 pm EDT

Topic: Coping with Chronic Illness

Speaker: Jennifer Johnson, BSN, RN, CRNI

Sponsor:  Accredo

Leader: Diahann Wilcox

Email: diwilcox@uchc.edu

Phone Number: 860-679-8300

17 May
May 17, 2023    
7:00 pm EDT - 8:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

20 May
May 20, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Meet & Greet

Speaker: Sarah Contreras, BSN, RN

Leader: Sarah Contreras

Email: Sarah.contreras@Prismahealth.org

Phone Number: 864-501-4258

20 May
May 20, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: New Normal

Speaker: Amy Sisk, RPh

Sponsor: Janssen Pharmaceuticals

Leader: Kelly Dickson

Email: kelly.dickson@anmed.org

Phone Number: 864-512-6625

20 May
May 20, 2023    
3:00 pm EDT - 4:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: John W McConnell, MD

Sponsor: Bayer Healthcare

Leader: Mary Hale

Email: halemary2003@hotmail.com

Phone Number: 937-926-0095

20 May
May 20, 2023    
12:00 pm PDT - 2:00 pm PDT

Topic: Open Forum

Leader: Pat Graham

Email: phgroupsac@gmail.com

Phone Number: 410-353-0350

21 May
May 21, 2023    
2:00 pm EDT - 4:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Kristin Highland, MD

Sponsor: Bayer Healthcare

Leader: Gwendolyn Brown

Email: gwenrb1983@hotmail.com

Phone Number: 216-609-2995

21 May
May 21, 2023    
1:00 pm PDT - 3:00 pm PDT

Topic: Traveling with PH

Speaker: Saire Gonzalez, RN

Sponsor: CVS Pharmacy

Leader: Annabel Mejorado

Email: annabelmejorado@gmail.com

Phone Number: 6263834216

21 May
May 21, 2023    
3:00 pm CDT - 4:30 pm CDT

Topic: Open Discussion

Leader: Margie Chan

Email: mchan624@aol.com

Phone Number: 773-398-9155

23 May
May 23, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: Group Discussion

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

24 May
May 24, 2023    
10:30 am CDT - 1:00 pm CDT

Topic: Nutrition

Leader: Linda Gates

Email: lgates62@aol.com

Phone Number: 504-559-1340

24 May
May 24, 2023    
9:00 am PDT - 12:15 pm PDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Namita Sood, MD

Sponsor: Bayer Healthcare

Leader: Akshay Muralidhar

Email: phxnew@azpulm.com

Phone Number: 602-274-7195

24 May
May 24, 2023    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

25 May
May 25, 2023    
6:30 pm EDT - 8:30 pm EDT

Topic: Coping with Chronic Illness

Speaker: Melynda Webb, RN BSN CRNI

Sponsor: Accredo

Leader: Jane Northrop

Email: orlandophgroup@gmail.com

Phone Number: 321-245-8435

25 May
May 25, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

01 Jun
June 1, 2023    
6:00 pm EDT - 8:00 pm EDT

Topic: Managing Medication Side Effects

Speaker: Gillian Leung, Pharma UK Gill Heart

Leader: Evelyn Mitchell

Email: evelynkmitchell@yahoo.com

Phone Number: 859-396-2476

 

01 Jun
June 1, 2023    
6:00 pm CDT - 9:00 pm CDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH Or CTEPH: Medication Adherence and Goals

Speaker: Craig Long, Cardiologist

Sponsor: Bayer Healthcare

Leader: Barbara Thompson

Email: barbarainmemphis@gmail.com

Phone Number: 901-463-8688

 

03 Jun
June 3, 2023    
11:00 am EDT - 2:00 pm EDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Dr. Majid Mughal, MD, PH specialist Pomologist

Sponsor: Bayer Healthcare

Leader: Karen Sawyer

Email:Luluidapple@gmail.com

Phone Number: 527-429-6457

 

03 Jun
June 3, 2023    
11:00 am CDT - 1:30 pm CDT

Topic: A New Day: Catching Up

Leader: Shirley Craig

Email: phnomore@att.net

Phone Number: 832-418-1405

 

03 Jun
June 3, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: The Power Of Saying No

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: melonlady1724@hotmail.com

Phone Number: 716-297-1067

 

Events on May 5, 2023
Events on May 6, 2023
Events on May 9, 2023
Events on May 10, 2023
10 May
Events on May 11, 2023
11 May
11 May
Events on May 12, 2023
Events on May 13, 2023
13 May
13 May
13 May
13 May
13 May
Events on May 15, 2023
Events on May 16, 2023
16 May
16 May
Events on May 17, 2023
Events on May 20, 2023
Events on May 21, 2023
Events on May 23, 2023
23 May
Events on May 24, 2023
24 May
24 May
Events on May 25, 2023
25 May
25 May
Events on June 1, 2023
Events on June 3, 2023