Support Group Meeting Calendar

This information is for caregivers and patients, not for solicitations or commercial use.

Support group leaders: Submit your event to the calendar and a postcard mailing (you will be prompted to sign in).

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01 Jun
June 1, 2023    
6:00 pm EDT - 8:00 pm EDT

Topic: Managing Medication Side Effects

Speaker: Gillian Leung, Pharma UK Gill Heart

Leader: Evelyn Mitchell

Email: evelynkmitchell@yahoo.com

Phone Number: 859-396-2476

 

01 Jun
June 1, 2023    
6:00 pm CDT - 9:00 pm CDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH Or CTEPH: Medication Adherence and Goals

Speaker: Craig Long, Cardiologist

Sponsor: Bayer Healthcare

Leader: Barbara Thompson

Email: barbarainmemphis@gmail.com

Phone Number: 901-463-8688

 

03 Jun
June 3, 2023    
11:00 am EDT - 2:00 pm EDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Dr. Majid Mughal, MD, PH specialist Pomologist

Sponsor: Bayer Healthcare

Leader: Karen Sawyer

Email:Luluidapple@gmail.com

Phone Number: 527-429-6457

 

03 Jun
June 3, 2023    
11:00 am CDT - 1:30 pm CDT

Topic: A New Day: Catching Up

Leader: Shirley Craig

Email: phnomore@att.net

Phone Number: 832-418-1405

 

03 Jun
June 3, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: The Power Of Saying No

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: melonlady1724@hotmail.com

Phone Number: 716-297-1067

 

06 Jun
June 6, 2023    
6:30 pm EDT - 8:00 pm EDT

Topic: Managing Medication Side Effects

Speaker: Katie Fitton, DO

Leader: Heather Arena

Email: ph.michiana@gmail.com

Phone Number: 269-982-5864

 

07 Jun
June 7, 2023    
12:00 pm CDT - 1:00 pm CDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Patricia George, MD

Sponsor: Bayer Healthcare

Leader: Alisa Orphy

Email: orphya@bellsouth.net

Phone Number: 337-853-7244

 

07 Jun
June 7, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

08 Jun
June 8, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Omar Minai, MD, Cleveland Clinic

Sponsor: Bayer Healthcare

Leader: Matt Schatti

Email: joyce.jay@att.net

Phone Number: RN 757-388-9138

 

08 Jun
June 8, 2023    
5:00 pm PDT - 7:00 pm PDT

Topic: PAH Emergency Preparedness

Speaker: Richard Samaniego, RN

Sponsor: CVS Pharmacy

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

Phone Number: 541-408-4943

08 Jun
June 8, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

10 Jun
June 10, 2023    
10:00 am CDT - 12:00 pm CDT

Topic: Advocate for your Wellbeing

Speaker: Melisa Wilson, Doctor of Nursing Practice

Sponsor: United Therapeutics Corporation

Leader: Alice Yount

Email: ayount@helmsbriscoe.com

Phone Number: 952-221-5475

10 Jun
June 10, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Open Discussion

Leader: Pat Hellyer

Email: pathellyer79@gmail.com

Phone Number: 561-628-5597

10 Jun
June 10, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Walk for Your Wellbeing

Speaker: TBD

Sponsor: United Therapeutics Corporation

Leader: Doug Taylor

Email: DTaylorSF@aol.com

Phone Number: 803-465-2139

14 Jun
June 14, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: CPAP … Your Heart Will Love You for IT

Speaker: Vicki Little, RRT RCP

Leader: Connie Gill

Email: cgill25@outlook.com

Phone Number: 513-368-8693

 

14 Jun
June 14, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

16 Jun
June 16, 2023    
11:00 am MDT - 1:00 pm MDT

Topic: Meet and Greet

Leader: Estella Medina

Email: Estella.EPPHighters@gmail.com

Phone Number: 915-208-2671

16 Jun
June 16, 2023    
12:00 pm MDT - 1:30 pm MDT

Topic: PAH and Nutrition

Speaker: Therese Sargent, NP

Leader:  Linda Urban

Email: cvipahinbox@bannerhealth.com

Phone Number: 970-810-3776

 

17 Jun
June 17, 2023    
9:30 am EDT - 11:00 am EDT

Topic: General Discussion & Connection

Speaker: Open Community Forum

Leader: Mary Clare McGraw, Wendy Berry

Email: bostonphs@gmail.com, wendybostonph@gmail.com

Phone Number: 781-820-4606, 610-203-8762

17 Jun
June 17, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Traveling with your Condition

Speaker: Valerie Laroy, NP

Sponsor: Bayer Healthcare

Leader: Beverly Lipmyer

Email: beverlylip@comcast.net

Phone Number: 734-662-8433

 

17 Jun
June 17, 2023    
11:45 am CDT - 1:00 pm CDT

Topic: New Normal

Speaker: Christina Benninger, RN

Sponsor: Janssen Pharmaceuticals

Leader: Nicole Fitzgerald

Email: nborjon18@gmail.com

Phone Number: 626-543-5726

 

18 Jun
June 18, 2023    
12:00 pm EDT - 4:00 pm EDT

Topic: Annual Family Picnic

Leader: Tiffani Brown

Email: tiffani9094@gmail.com

Phone Number: 614-325-3941

 

18 Jun
June 18, 2023    
3:00 pm CDT - 4:30 pm CDT

Topic: Traveling with PH

Leader: Margie Chan

Email: mchan624@aol.com

Phone Number: 773-398-9155

19 Jun
June 19, 2023    
6:00 pm CDT - 7:30 pm CDT

Topic: Pulmonary arterial hypertension (PAH): Understanding the Basics and Living with PAH or

CTEPH: Traveling with your Condition

Speaker: Valerie Laroy, NP

Sponsor: Bayer Healthcare

Leader: Nancy Niebauer, Tina Stiyer

Email: nancy.niebauer@wi.rr.com, Tina.Stiyer@froedtert.com

Phone Number:414-646-0525, 414-805-8884

 

20 Jun
June 20, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

21 Jun
June 21, 2023    
11:00 am CDT - 12:30 pm CDT

Topic: Oxygen & Portable Concentrators

Speaker: Lynn Moffitt, Medical Device Sales Representative

Leader: Sonia Tindel, Lori Kirby

Email: Sonia.tindel@lsuhs.edu, ikirby2012@yahoo.com

Phone Number: 318-675-5920, 318-680-1189

 

21 Jun
June 21, 2023    
7:00 pm EDT - 8:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

22 Jun
June 22, 2023    
11:45 am EDT - 1:00 pm EDT

Topic: FAQ about PAH

Sponsor: Janssen Pharmaceuticals

Leader: Terrie Keplinger

Email: terrie.keplinger@gmail.com

Phone Number: 423-732-9344

 

22 Jun
June 22, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

24 Jun
June 24, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: Advocate for your Wellbeing

Sponsor: United Therapeutics Corporation

Leader: Charnetta Lester

Email: charnetta.robinson@vcuhealth.org

Phone Number: 804-828-9055

24 Jun
June 24, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: Check-in/Getting to Know You

Speaker: Mary Whittenhall, NP

Leader: Lois Decosta, Mary Whittenhall

Email: RIHospitalPHCenter@lifespan.org

Phone Number: 401-444-2670

24 Jun
June 24, 2023    
11:00 am CDT - 1:00 pm CDT

Topic: New Normal

Speaker: Elsa Garza, DNP

Sponsor: Janssen Pharmaceuticals

Leader: Amy Chybowski

Email: achybowski@uwhealth.org

Phone Number: 608-217-5667

 

24 Jun
June 24, 2023    
11:30 am CDT - 2:00 pm CDT

Topic: Pulmonary Hypertension 101

Speaker: Traci Stewart, RN

Leader: Karen Fragale

Email: Believegod2@yahoo.com

Phone Number: 913-217-5456

27 Jun
June 27, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: Chat, Air Quality, Advocacy

Speaker: Group Discussion

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

 

28 Jun
June 28, 2023    
1:00 pm MDT - 2:00 pm MDT

Topic: Open Topic-Check in

Leader: Rayetta Johnson

Email: ChasingSerenity@yahoo.com

Phone Number: 605-559-0560

 

28 Jun
June 28, 2023    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

28 Jun
June 28, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

30 Jun
June 30, 2023    
1:00 pm PDT - 2:00 pm PDT

Topic: Traveling with PH

Speaker: Megan Linebarger, BSN, RN

Sponsor: CVS Pharmacy

Leader: Brittany Watson

Email: portlandpah@gmail.com

Phone Number: 503-963-3161

 

Events on June 1, 2023
Events on June 3, 2023
Events on June 6, 2023
Events on June 7, 2023
Events on June 8, 2023
Events on June 10, 2023
Events on June 14, 2023
14 Jun
Events on June 16, 2023
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Events on June 20, 2023
20 Jun
Events on June 21, 2023
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21 Jun
Events on June 22, 2023
22 Jun
22 Jun
Events on June 24, 2023
Events on June 27, 2023
27 Jun
Events on June 28, 2023
28 Jun
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Events on June 30, 2023
30 Jun