Support Group Meeting Calendar

This information is for caregivers and patients, not for solicitations or commercial use.

Support group leaders: Submit your event to the calendar and a postcard mailing (you will be prompted to sign in).

Monday
Tuesday
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Thursday
Friday
Saturday
Sunday
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27 Sep
September 27, 2022    
11:00 am EDT - 12:00 pm EDT

Topic: Open Discussion

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number:856-904-6867

27 Sep
September 27, 2022    
2:00 pm EDT - 3:00 pm EDT

Topic: Coping with Chronic Illness

Speaker: Jennifer Johnson, RN, BSN, CRNI

Sponsor: UTC

Leader: Matthew Schatti, RN

Email: moc.aratnes@1tahcsbm

Phone Number:

27 Sep
September 27, 2022    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

28 Sep
September 28, 2022    
10:30 am CDT - 12:30 pm CDT

Topic: Emergency Preparedness

Leader: Linda Gates

Email: moc.loa@26setagl

Phone Number: 985-651-5582

28 Sep
September 28, 2022    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Complete el siguiente cuestionario antes de registrarse

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.

29 Sep
September 29, 2022    
11:30 am EDT - 12:30 pm EDT

Topic: Traveling with PAH

Speaker: Donna Dhayer, BSN, RN

Sponsor: Presentation sponsored by CVS

Leader: Tammy Stankard, RN, BSN

Email: moc.larenegws@draknatst

Phone Number: 440-384-9683

01 Oct
October 1, 2022    
11:00 am EDT - 12:30 pm EDT

Topic: Fall Fling: Meet, Greet, Games, Learn, Treats!

Leader: Chris Calvert, Charnetta Lester

Email: cc.trevlac@96selcric, gro.htlaehucv@nosnibor.attenrahc

Phone Number: 804-360-9608

01 Oct
October 1, 2022    
11:30 am EDT - 1:30 pm EDT

Topic: General PH and Patient Check-in

Speaker: Diane Ramirez

Leader: Diane Ramirez

Email: moc.oohay@78zerimarid

Phone Number: 336-425-6335

01 Oct
October 1, 2022    
12:00 pm CDT - 2:00 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Muhyaldeen Dia, MD

Sponsor: Bayer Healthcare

Leader: Lynn Bastian

Email: ten.tta@naitsabml

Phone Number: 630-621-6280

Masks should be worn unless eating or drinking. Bring proof of COVID-19 vaccination or negative COVID-19 test.

01 Oct
October 1, 2022    
12:00 pm PDT - 4:00 pm PDT

Topic: Annual Picnic – 2022

Leader: Debbie Baugh, Pat & Hal Halbrook

Email: moc.liamg@caspuorghP

Phone Number: 916-206-3567, 410-353-0350

01 Oct
October 1, 2022    
1:00 pm PDT - 3:30 pm PDT

Topic: Navigating PAH Benefits and Resources

Speaker: Richard Samaniego, RN

Sponsor: CVS Pharmacy

Leader: Michele Freeman

Email: moc.liamg@0002nameerfm

Phone Number: 541-408-4943

02 Oct
October 2, 2022    
11:00 am EDT - 1:00 pm EDT

Topic: The Vikki Auzenne Patient Roundtable Discussion

Speaker: Doctors, nurses and patients

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734-662-8433

02 Oct
October 2, 2022    
3:00 pm EDT - 4:30 pm EDT

Topic: New happenings with our group

Leader: Brenda Gibson

Email: moc.liamg@742nosbigb

Phone Number: 614-218-2099

08 Oct
October 8, 2022    
12:00 pm EDT - 2:00 pm EDT

Topic: PAH Emergency Preparedness

Speaker: Kayla Baker, BSN, RN, PAH nurse specialist

Sponsor: CVS Pharmacy

Leader: Karen Sawyer

Email: moc.liamg@elppadiuluL

Phone Number: 517-420-6457

08 Oct
October 8, 2022    
1:00 pm EDT - 2:00 pm EDT

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

08 Oct
October 8, 2022    
1:00 pm EDT - 3:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Abhijit Raval, FCCP, AnMed Pulmonary and Sleep

Sponsor: Bayer Healthcare

Leader: Tina Lisenby

Email: moc.nsm@1691lmt

Phone Number: 864-622-9886

10 Oct
October 10, 2022    
2:00 pm EDT - 4:00 pm EDT

Topic: Support Group Meet and Greet

Speaker: Denise Sese, MD

Leader: Kristine Ritenour

Email: ude.csum@ruonetir

Phone Number: 843-792-2127

11 Oct
October 11, 2022    
1:00 pm EDT - 3:00 pm EDT

Topic: Meet and greet

Leader: Laura Hooley

Email: ten.tniopriafym@harual

Phone Number: 603-863-9980

12 Oct
October 12, 2022    
10:00 am CDT - 11:30 am CDT

Topic: Traveling with PH

Speaker: Jennifer Johnson, RN

Sponsor: Accredo

Leader: Sonia Tindal, Lori Kirby

Email: ude.shusl@ladnit.ainoS, moc.oohay@2102ybriki

Phone Number: 318-675-5926, 318-680-1189

12 Oct
October 12, 2022    
6:00 pm EDT - 7:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Therese Sargent, NP

Sponsor: Bayer Healthcare

Leader: Connie Gill

Email: moc.kooltuo@52lligc

Phone Number: 513-368-8693

12 Oct
October 12, 2022    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH. Register for an upcoming meeting and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

13 Oct
October 13, 2022    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

17 Oct
October 17, 2022    
5:00 pm EDT - 6:30 pm EDT

Topic: All About PH

Speaker: Shyla Saini, MD

Leader: Rachel Potter

Email: ude.mssm@etutitsniyrotaripser

 

18 Oct
October 18, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

19 Oct
October 19, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Please complete this questionnaire before registering


Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

22 Oct
October 22, 2022    
9:30 am EDT - 11:00 am EDT

Topic: Welcome and Greetings

Leader: Venita Welcome

Email: moc.liamg@emoclewv

 

22 Oct
October 22, 2022    
9:30 am EDT - 11:00 am EDT

Topic: Therapeutics, Trials, and an Opportunity To Ask the Expert

Speaker: Nicholas Hill, MD, Chief Pulmonary, Tufts

Leader: Mary Clare McGraw, Wendy Berry

Email: moc.liamg@shpnotsob, moc.liamg@shpnotsobydnew

Phone Number: 781-820-4606, 610-203-8762

22 Oct
October 22, 2022    
1:00 pm EDT - 3:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: TBD

Sponsor: Bayer Healthcare

Leader: Doug Taylor

Email: moc.loa@FSrolyaTD

Phone Number: 803-465-2139

22 Oct
October 22, 2022    
3:00 pm MDT - 5:00 pm MDT

Topic: Introductions Let’s Try It Again

Leader: Kris Shipman

Email: moc.liamg@enitsirknampihs

Phone Number: 719-778-5266

25 Oct
October 25, 2022    
11:00 am EDT - 12:00 pm EDT

Topic: TBA

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number:

25 Oct
October 25, 2022    
6:30 pm EDT - 8:00 pm EDT

Topic: Empowered Patient

Speaker: Jennalyn Mayeaux, DNP

Sponsor: Janssen Pharmaceuticals

Leader: Heather or Brittiany

Email: moc.liamg@anaihcim.hp

Phone Number: 269-982-5864

25 Oct
October 25, 2022    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

26 Oct
October 26, 2022    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Complete el siguiente cuestionario antes de registrarse

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.

27 Oct
October 27, 2022    
5:00 pm CDT - 7:00 pm CDT

Topic: PH Treatments & Studies

Speaker: Sandeep Sahay, MD

Leader: PH Treatments & Studies

Email: moc.liamG@roirraWHPehT

Phone Number: 210-464-8922

27 Oct
October 27, 2022    
6:30 pm EDT - 8:30 pm EDT

Topic: Drug Discovery: Lab to Consumer

Speaker: Jane Northrop, PHA support group leader

Leader: Jane Northrop

Email: moc.liamg@puorghpodnalro

Phone Number: 321-245-8435

27 Oct
October 27, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

28 Oct
October 28, 2022    
1:00 pm PDT - 2:30 pm PDT

Topic: Navigating PAH Benefits and Resources

Speaker: Patricia Broome, RN

Sponsor: CVS Pharmacy

Leader: Felicia Seubert

Email: moc.liamg@trebues.aicilef

Phone Number: 425-745-9845

02 Nov
November 2, 2022    
2:00 pm MDT - 3:00 pm MDT

Topic: Come and Join Us in Celebrating Pulmonary Hypertension Awareness Month

Leader: Estella Medina, Adriana Mares

Email: moc.liamg@srethgihppe.alletse, moc.oohay@seramvca

Phone Number: 915-208-2671, 915-301-2371

 

03 Nov
November 3, 2022    
6:00 pm EDT - 8:00 pm EDT

Topic: Low Sodium Diet Education and share a Low Sodium Thanksgiving Dinner together

Speaker: Kari Dubro, RD

Leader: Tiffani Brown, Debbie Kittel

Email: moc.liamg@4909inaffit, ude.cmuso@lettik.arbed

Phone Number: 614-685-3049

03 Nov
November 3, 2022    
6:00 pm CDT - 9:00 pm CDT

Topic: Empowered Patient

Speaker: Abhijit Raval, MD

Sponsor: Janssen Pharmaceuticals

Leader: Barbara Thompson

Email: moc.liamg@sihpmeMnIarabraB

Phone Number: 901-463-8688

04 Nov
November 4, 2022    
12:00 pm MDT - 2:00 pm MDT

Topic: Lala Juarez

Speaker: Jennifer Johnson, BSN, RN, CRNI

Sponsor: Accredo

Leader: Lala Juarez

Email: moc.liamg@raeBalaLox

Phone Number: 801-663-4897

05 Nov
November 5, 2022    
11:00 am CDT - 1:00 pm CDT

Topic: Empowered Patient

Speaker: TBD

Sponsor: Janssen Pharmaceuticals

Leader: Shirley Craig, Lauri Stanfield

Email: ten.tta@eromonhp, moc.oohay@30cirua

Phone Number: 832-418-1405, 832-646-0429

Events on September 27, 2022
Events on September 28, 2022
Events on September 29, 2022
Events on October 1, 2022
01 Oct
01 Oct
01 Oct
Events on October 2, 2022
Events on October 8, 2022
Events on October 10, 2022
10 Oct
Events on October 11, 2022
Events on October 12, 2022
Events on October 13, 2022
Events on October 17, 2022
17 Oct
Events on October 18, 2022
Events on October 19, 2022
Events on October 22, 2022
Events on October 25, 2022
Events on October 26, 2022
Events on October 27, 2022
27 Oct
27 Oct
Events on October 28, 2022
28 Oct
Events on November 2, 2022
Events on November 3, 2022
03 Nov
Events on November 4, 2022
Events on November 5, 2022
05 Nov