Support Group Meeting Calendar

This information is for caregivers and patients, not for solicitations or commercial use.

Support group leaders: Submit your event to the calendar and a postcard mailing (you will be prompted to sign in).

Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday
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28 Mar
March 28, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: Chat

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 8569046867

28 Mar
March 28, 2023    
1:30 pm EDT - 2:30 pm EDT

Topic: The Journey to Transplant

Speaker: Christina Mclaughlin, Patient & Vandana Seeram, MD

Leader: Alicia Peters

Email: alicia.peters@jax.ufl.edu

Phone Number: 904 244 1758

01 Apr
April 1, 2023    
11:30 am EDT - 1:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Robert Schilz, DO, Director of Pulmonary Vascular Disease and Lung Transplantation

Sponsor: Bayer Healthcare

Leader: Rebecca Hamilton

Email: Beccahamilton76@gmail.com

Phone Number: 330-204-9289

01 Apr
April 1, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Relationships & PH

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: melonlady1724@hotmail.com

Phone Number: 716-297-1067

01 Apr
April 1, 2023    
12:30 pm CDT - 3:30 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Lauren Hulett, RN

Sponsor: Bayer Healthcare

Leader: Karen Fragale

Email: believegod2@yahoo.com

Phone Number: 515-259-1030

01 Apr
April 1, 2023    
2:00 pm EDT - 4:00 pm EDT

Topic: Meet & Greet

Leader: Denise Clark

Email: deniserclark@gmail.com

Phone Number: 502-338-9513

05 Apr
April 5, 2023    
11:00 am CDT - 12:30 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: M. Patricia George, MD

Sponsor: Bayer Healthcare

Leader: Sonia Tindel

Email: sonia.tindel@lsuhs.edu

Phone Number: 318-675-5926

08 Apr
April 8, 2023    
10:00 am CDT - 12:00 pm CDT

Topic: Latest trends and findings in PH treatment

Speaker: Thenappen Thenappen, MD, Cardiologist, Director of Pulmonary Hypertension at the University of MN

Leader: Alice Yount

Email: ayount@helmsbriscoe.com

Phone Number: 9522215475

08 Apr
April 8, 2023    
1:00 pm EDT - 2:00 pm EDT

Topic: Open Discussion

Leader: Pat Hellyer

Email: pathellyer79@gmail.com

 

12 Apr
April 12, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

13 Apr
April 13, 2023    
6:00 pm EDT - 7:00 pm EDT

Topic: Empowered Patient

Speaker: Chad Link, MD

Sponsor: Janssen Pharmaceuticals

Leader: Connie Gill

Email: cgill25@outlook.com

Phone Number: 513-368-8639

13 Apr
April 13, 2023    
5:00 pm PDT - 7:00 pm PDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Sandra Lombardi, RN

Sponsor: Bayer Healthcare

Leader: Michele Freeman

Email: mfreeman2000@gmail.com

Phone Number: 541-408-4943

13 Apr
April 13, 2023    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

14 Apr
April 14, 2023    
10:30 am MDT - 11:30 am MDT

Topic: Q&A with Dr. Melendres-Groove

Speaker: Lana Melendres-Groove, MD

Leader:  Evan Holm

Email: evholm@salud.unm.edu

Phone Number: 505-934-6555

15 Apr
April 15, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: PH Medications Tips & Tricks

Speaker: Claire Walter,  Pharm D, BCPS

Leader: Beverly Lipmyer

Email: beverlylip@comcast.net

Phone Number: 734-355-0295

15 Apr
April 15, 2023    
12:00 pm EDT - 2:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Alvaro Aranda, Neumolego

Sponsor: Bayer Healthcare

Leader: Patricia Faria

Email: pfaria1456@gmail.com

Phone Number: 787-383-4629

15 Apr
April 15, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Relationships & PAH

Speaker: Katy Boggs, NP

Sponsor: Janssen Pharmaceuticals

Leader: Doug Taylor

Email: DTaylorSF@aol.com

Phone Number: 8034652139

16 Apr
April 16, 2023    
3:00 pm CDT - 4:30 pm CDT

Topic: Open Discussion

Leader: Margie Chan

Email: mchan624@aol.com

Phone Number: 773-398-9155

17 Apr
April 17, 2023    
2:00 pm EDT - 4:00 pm EDT

Topic: Pulmonary Testing in Pulmonary Hypertension

Speaker: Christopher King, RT

Leader: Kristine Ritenour

Email: ritenour@musc.edu

Phone Number: 843-792-2127

18 Apr
April 18, 2023    
11:00 am EDT - 12:30 pm EDT

Topic: PH Research Update

Speaker: Harold Palevsky, Director, Pulmonary Vascular Disease Program Penn Presbyterian Medical Center

Leader: Colleen Connor

Email: connor_colleen@comcast.net

Phone Number: 610-329-4993

18 Apr
April 18, 2023    
6:00 pm EDT - 8:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Traveling with your Condition

Speaker: Therese Sargent, NP

Sponsor: Bayer Healthcare

Leader: Denise Turner

Email: dmturner@rjet.com

Phone Number: 317-213-1314

18 Apr
April 18, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

19 Apr
April 19, 2023    
7:00 pm EDT - 8:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

21 Apr
April 21, 2023    
12:00 pm EDT - 1:00 pm EDT

Topic: Book Club – How to Heal Your Life

Leader: Alicia Kubes

Email: alicia.kubes@nyu.edu

Phone Number: 201-874-4118

25 Apr
April 25, 2023    
11:00 am EDT - 12:30 pm EDT

Topic: Sleep Hygiene

Speaker: Mary Jo Farmer, MD, PHD, FCCP, and Tonya Zeiger, RRT, CPFT

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

26 Apr
April 26, 2023    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

26 Apr
April 26, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

27 Apr
April 27, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

28 Apr
April 28, 2023    
1:00 pm EDT - 2:30 pm EDT

Topic: Welcome Back

Leader: Gloria Hamm

Email: glolhamm@aol.com

Phone Number: 610-799-2766

28 Apr
April 28, 2023    
12:00 pm PDT - 1:30 pm PDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Sandra Lombardi, Clinical Nurse, Pulmonary Division

Sponsor: Bayer Healthcare

Leader: Felicia Seubert

Email: felicia.seubert@gmail.com

Phone Number: 425-745-9845

29 Apr
April 29, 2023    
12:00 pm CDT - 2:00 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Muhlaldeen Dia, PH Specialist

Sponsor: Bayer Healthcare

Leader: Lynn Bastian

Email: lmbastian@att.net

Phone Number: 630-621-6280

Events on March 28, 2023
Events on April 1, 2023
Events on April 5, 2023
05 Apr
Events on April 8, 2023
Events on April 12, 2023
12 Apr
Events on April 13, 2023
Events on April 14, 2023
Events on April 15, 2023
Events on April 16, 2023
Events on April 17, 2023
Events on April 18, 2023
18 Apr
18 Apr
Events on April 19, 2023
19 Apr
Events on April 21, 2023
21 Apr
Events on April 25, 2023
25 Apr
Events on April 26, 2023
26 Apr
26 Apr
Events on April 27, 2023
27 Apr
Events on April 28, 2023
28 Apr
Events on April 29, 2023