Support Group Meeting Calendar

This information is for caregivers and patients, not for solicitations or commercial use.

Support group leaders: Submit your event to the calendar and a postcard mailing (you will be prompted to sign in).

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28 Feb
February 28, 2023    
11:00 am EST - 12:30 pm EST

Topic: CTEPH Understanding the Basics and Experiencing Stress with your Condition

Speaker: Therese Sargent, NP

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 856-904-6867

03 Mar
March 3, 2023    
12:00 pm MST - 2:00 pm MST

Topic: Maddie’s Journey

Speaker: Lori Heaton, Mother of Deceased

Leader: Lala Juarez

Email: xoLalaBear@gmail.com

Phone Number: 801-663-4897

07 Mar
March 7, 2023    
7:00 pm EST - 8:30 pm EST

Topic: Helping Newly Diagnosed

Speaker: Samuel Allen, MD

Leader: Carla Kinsey

Email: carla_k@outlook.com

Phone Number: 586-530-0160

08 Mar
March 8, 2023    
10:30 am CST - 12:30 pm CST

Topic: Pulmonary Rehab & Importance of Exercise

Speaker: Carrie Suzette Schmitt, RRT

Leader: Linda Gates

Email: lgates62@aol.com

Phone Number: 9856515582

08 Mar
March 8, 2023    
8:00 pm EST - 9:00 pm EST

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email: jbones1961@gmail.com

09 Mar
March 9, 2023    
6:00 pm EST - 7:30 pm EST

Topic: Mental Health/Quality of Life

Speaker: Tiffani Brown, Patient

Leader: Tiffani Brown

Email: tiffani9094@gmail.com

Phone Number: 614-325-3941

09 Mar
March 9, 2023    
8:00 pm EST - 9:00 pm EST

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

09 Mar
March 9, 2023    
5:00 pm PST - 7:00 pm PST

Topic: Managing Your Health During Natural Disasters

Speaker: Jeff Robinson, MD

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

Phone Number: 541-408-4943

10 Mar
March 10, 2023    
10:30 am MST - 11:30 am MST

Topic: How to be the best patient

Speaker: Evan Holm, LMSW SWCM

Leader: Evan Holm

Email: evholm@salud.unm.edu

Phone Number: 505-272-2815

11 Mar
March 11, 2023    
10:00 am CST - 12:00 pm CST

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Valerie A. Leroy, NP, PH Program Coordinator

Sponsor: Bayer Healthcare

Leader: Alice Yount

Email: ayount@helmsbriscoe.com

 

11 Mar
March 11, 2023    
12:00 pm EST - 2:00 pm EST

Topic: Micro-Habits to Improve Body Function: Chair Yoga, Posture & Breathing

Speaker: Amy Anne Moore, Certified Yoga Instructor Expert

Leader: Karen Sawyer

Email: luluidapple@gmail.com

11 Mar
March 11, 2023    
1:00 pm EST - 3:00 pm EST

Topic: Meet & Greet

Leader: Terrie Keplinger

Email: terrie.keplinger@gmail.com

Phone Number: 423-732-9344

11 Mar
March 11, 2023    
1:00 pm EST - 2:00 pm EST

Topic: Open Discussion

Leader: Pat Hellyer

Email: pathellyer79@gmail.com

 

14 Mar
March 14, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: PH Research

Speaker: Jeffrey Stewart, MD

Leader: Laura Hooley

Email: laurah@myfairpoint.net

Phone Number: 603-863-9980

14 Mar
March 14, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Advocate for your Wellbeing

Speaker: TBA

Sponsor: UTC

Leader: Joyce Kossman, Matthew Schatti

Email: joyce.jay@att.net

Phone Number: 757-388-9138

14 Mar
March 14, 2023    
6:30 pm EDT - 8:00 pm EDT

Topic: Navigating Patient Financial Assistance

Speaker: Heather Arena, RRT, RPFT

Leader: Heather Arena

Email: hrmyers1@gmail.com

Phone Number: 269-982-5864

15 Mar
March 15, 2023    
5:00 pm EDT - 6:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH, Medication Adherence and Goals

Speaker: Greg Lanier, MD

Sponsor: Bayer Healthcare

Leader: Diahann Wilcox

Email: diwilcox@uchc.edu

 

15 Mar
March 15, 2023    
7:00 pm EDT - 8:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: oregonphgroup@gmail.com

17 Mar
March 17, 2023    
12:00 pm MDT - 1:30 pm MDT

Topic: Relationships & PAH

Speaker: Jennalyn Mayeux, NP U of Utah Dyspnea clinic

Leader: Linda Urban

Email: lurban0603@gmail.com

Phone Number: 970-810-3776

18 Mar
March 18, 2023    
9:30 am EDT - 11:00 am EDT

Topic: Q&A Session on Estate Planning

Speaker: Sean Nicholas Fay, Esq.

Leader: Mary Clare McGraw, Wendy Berry

Email: bostonphs@gmail.com, wendybostonph@gmail.com

Phone Number: 781-820-4606, 610-203-8762

18 Mar
March 18, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: Beating the winter blues and having some fun!

Speaker: Susie McDevitt, DNP, ACNP-BC

Leader: Beverly Lipmyer

Email: beverlylip@comcast.net

Phone Number: 734-662-8433

18 Mar
March 18, 2023    
11:00 am EDT - 1:00 pm EDT

Topic: Benefits of Pulmonary Rehab

Speaker: Moronica Wynn, BSRT, RRT

Leader: Marcie McGregor

Email: marcie.mcgregor@yahoo.com

Phone Number: 803-640-3406

18 Mar
March 18, 2023    
11:00 am CDT - 1:00 pm CDT

Topic: About PHA

Speaker: Kevin Heyen, PHA

Leader: Rose Robins

Email: rrobins8803@yahoo.com

Phone Number: 479-366-2912

18 Mar
March 18, 2023    
12:00 pm CDT - 2:00 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Coping with your Condition

Speaker: Adria Fielder, MS, APRN, AGNP-C

Sponsor: Bayer Healthcare

Leader: Debra Hines

Email: dhines23@aol.com

Phone Number: 562-230-7593

18 Mar
March 18, 2023    
1:00 pm EDT - 3:00 pm EDT

Topic: Walk for your Wellbeing

Speaker: Amy Sisk, Clinical Pharmacist

Sponsor: UTC

Leader: Tina Lisenby

Email: tml1961@msn.com

Phone Number: 864-512-6625

18 Mar
March 18, 2023    
11:00 am PDT - 1:00 pm PDT

Topic: PAH Emergency Preparedness

Speaker: Joyce Evalle, RN

Sponsor: CVS Pharmacy

Leader: Cristina B Arias

Email: Cristina_a96@live.com

Phone Number: 559-403-6424

18 Mar
March 18, 2023    
12:00 pm PDT - 2:00 pm PDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Sandra Lombardi, RN

Sponsor: Bayer Healthcare

Leader: Pat Graham

Email: patalgram@gmail.com

Phone Number: 410-353-0350

19 Mar
March 19, 2023    
2:00 pm EDT - 4:00 pm EDT

Topic: Surviving & Living with PAH

Speaker: Gwendolyn Brown, 45 years of living with PAH

Leader: Gwendolyn Brown

Email: gwenrb1983@hotmail.com

Phone Number: 2166092995

20 Mar
March 20, 2023    
5:00 pm EDT - 6:30 pm EDT

Topic: Coping with Chronic Illness

Speaker: Jennifer Johnson, BSN, RN, CRNI

Leader: Rachel Potter

Email: rachel.potter@mssm.edu

 

21 Mar
March 21, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader: Missy Storm

Email: missyjstorm@cox.net

22 Mar
March 22, 2023    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: PHAGenerationHope@gmail.com

 

22 Mar
March 22, 2023    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

23 Mar
March 23, 2023    
1:30 pm MDT - 3:00 pm MDT

Topic: Navigating Oxygen Therapy: Devices, Testing and more

Speaker: TBD, RT

Leader: Meghan Cirulis

Email: meghan.cirulis@imail.org

Phone Number: 801-507-4800

23 Mar
March 23, 2023    
6:00 pm EDT - 7:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Neil Chaisson, MD

Sponsor: Bayer Healthcare

Leader: Tammy Stankard

Email: tstankard@swgeneral.com

Phone Number: 440-384-9683

23 Mar
March 23, 2023    
6:30 pm EDT - 8:30 pm EDT

Topic: Respiratory Infections and PH

Speaker: Jane Northrop

Leader: Jane Northrop

Email: orlandophgroup@gmail.com

Phone Number: 321-245-8435

23 Mar
March 23, 2023    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email: Carla_PSC@outlook.com

24 Mar
March 24, 2023    
12:00 pm EDT - 1:00 pm EDT

Topic: A Book Club for PH Patients by PH Patients

Leader: Alicia Kubes

Email: alicia.kubes@nyu.edu

 

25 Mar
March 25, 2023    
12:00 pm PDT - 2:00 pm PDT

Topic: Understanding PH Facts vs Fiction: 1 0n 1 with a PH Physician

Speaker: Khushboo Goel, MD

Leader: Khushboo Goel

Email: khushboo.goel@cshs.org

Phone Number: 310-967-0875

28 Mar
March 28, 2023    
11:00 am EDT - 12:00 pm EDT

Topic: Chat

Leader: Bonnie Patricelli

Email: bonabona@comcast.net

Phone Number: 8569046867

28 Mar
March 28, 2023    
1:30 pm EDT - 2:30 pm EDT

Topic: The Journey to Transplant

Speaker: Christina Mclaughlin, Patient & Vandana Seeram, MD

Leader: Alicia Peters

Email: alicia.peters@jax.ufl.edu

Phone Number: 904 244 1758

01 Apr
April 1, 2023    
11:30 am EDT - 1:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Experiencing Stress with your Condition

Speaker: Robert Schilz, DO, Director of Pulmonary Vascular Disease and Lung Transplantation

Sponsor: Bayer Healthcare

Leader: Rebecca Hamilton

Email: Beccahamilton76@gmail.com

Phone Number: 330-204-9289

01 Apr
April 1, 2023    
12:00 pm EDT - 2:00 pm EDT

Topic: Relationships & PH

Speaker: Colleen Schnell, Support Group Leader

Leader: Colleen Schnell

Email: melonlady1724@hotmail.com

Phone Number: 716-297-1067

01 Apr
April 1, 2023    
12:30 pm CDT - 3:30 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics and Living with PAH or CTEPH: Healthy Nutrition

Speaker: Lauren Hulett, RN

Sponsor: Bayer Healthcare

Leader: Karen Fragale

Email: believegod2@yahoo.com

Phone Number: 515-259-1030

01 Apr
April 1, 2023    
2:00 pm EDT - 4:00 pm EDT

Topic: Meet & Greet

Leader: Denise Clark

Email: deniserclark@gmail.com

Phone Number: 502-338-9513

Events on February 28, 2023
28 Feb
Events on March 3, 2023
Events on March 7, 2023
Events on March 8, 2023
08 Mar
Events on March 9, 2023
09 Mar
09 Mar
Events on March 10, 2023
Events on March 11, 2023
Events on March 14, 2023
Events on March 15, 2023
Events on March 17, 2023
17 Mar
Events on March 18, 2023
18 Mar
18 Mar
18 Mar
18 Mar
18 Mar
Events on March 19, 2023
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20 Mar
Events on March 21, 2023
21 Mar
Events on March 22, 2023
22 Mar
22 Mar
Events on March 23, 2023
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24 Mar
Events on March 25, 2023
Events on March 28, 2023
Events on April 1, 2023