Support Group Meeting Calendar

This information is for caregivers and patients, not for solicitations or commercial use.

Support group leaders: Submit your event to the calendar and a postcard mailing (you will be prompted to sign in).

Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday
M
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W
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28 Jun
June 28, 2022    
11:00 am EDT - 12:00 pm EDT

Topic: Conference

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

28 Jun
June 28, 2022    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

08 Jul
July 8, 2022    
10:30 am MDT - 11:30 am MDT

Topic: Advocate for your Wellbeing

Speaker: Theresa Sargent, NP

Sponsor: UTC

Leader: Evan Holm

Email: ude.mnu.dulas@mlohve

Phone Number: 505-272-2815

09 Jul
July 9, 2022    
10:00 am EDT - 12:00 pm EDT

Topic: Summary of PHA 2022 International PH Conference

Speaker: Jim & Alice Yount, PHA support group leaders

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Phone Number: 952-221-5475

09 Jul
July 9, 2022    
1:00 pm EDT - 2:00 pm EDT

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

12 Jul
July 12, 2022    
1:00 pm EDT - 3:00 pm EDT

Topic: Meet and greet

Leader: Laura Hooley

Email: ten.tniopriafym@harual

Phone Number:

13 Jul
July 13, 2022    
11:00 am CDT - 12:30 pm CDT

Topic: Empowered Patient

Speaker: Sandra Lombardi, RN

Sponsor: Janssen Pharmaceuticals

Leader: Lori Kirby, Sonia Tindal

Email: moc.oohay@2102ybriki, ude.shusl@lednit.ainos

Phone Number: 318-680-1189, 318-675-5926

13 Jul
July 13, 2022    
12:00 pm CDT - 3:00 pm CDT

Topic: Twin Cities Annual PH Picnic at Battle Creek Park

Leader: Alice Yount, Wayne Hansen

Email: moc.eocsirbsmleh@tnuoya, ten.tsacmoc@esnahkw

Phone Number: 952-221-5475, 612-787-8161

13 Jul
July 13, 2022    
5:30 pm EDT - 7:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Wes McConnell, MD

Sponsor: Bayer Healthcare

Leader: Evelyn Mitchell

Email: moc.oohay@llehctimknyleve

Phone Number: 859-396-2476

13 Jul
July 13, 2022    
6:00 pm EDT - 7:00 pm EDT

Topic: Social Gathering to discuss having Covid with PAH

Leader: Connie Gill

Email: moc.kooltuo@52lligc

Phone Number: 513-368-8693

13 Jul
July 13, 2022    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH. Register for an upcoming meeting and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

14 Jul
July 14, 2022    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

16 Jul
July 16, 2022    
12:00 pm PDT - 2:00 pm PDT

Topic: Open discussion

Leader: Pat Graham, Debbi Baugh

Email: moc.liamg@caspuorghp

Phone Number: 410-353-0350, 916-206-3567

16 Jul
July 16, 2022    
12:00 pm PDT - 2:00 pm PDT

Topic: Advocate for your Wellbeing

Speaker: Shawn Stutzman, Cardiopulmonary Specialist

Sponsor: UTC

Leader: Cristina Arias

Email: moc.evil@69a_anitsirC

Phone Number: 559-403-6424

16 Jul
July 16, 2022    
1:00 pm PDT - 3:00 pm PDT

Topic: 2022 Conference Highlights & Open Forum

Speaker: Michele Freeman, LPC

Leader: Michele Freeman

Email: moc.liamg@0002nameerfm

Phone Number: 541-408-4943

17 Jul
July 17, 2022    
3:00 pm EDT - 4:30 pm EDT

Topic: PHA Conference

Leader: Brenda Gibson

Email: moc.liamg@742nosbigb

Phone Number: 614-218-2099

19 Jul
July 19, 2022    
6:00 pm EDT - 7:00 pm EDT

Topic: Music-Assisted Relaxation

Speaker: Emma Anderson, MT-BC Ascension St. Vincent

Leader: Denise Turner

Email: moc.tejr@renrutmd

Phone Number: 317-213-1314

19 Jul
July 19, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

20 Jul
July 20, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Please complete this questionnaire before registering


Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

21 Jul
July 21, 2022    
10:30 am CDT - 12:30 pm CDT

Topic: Chair Yoga & Meditation

Leader: Linda Gates

Email: moc.loa@26setagl

Phone Number: 985-651-5582

23 Jul
July 23, 2022    
11:00 am CDT - 1:00 pm CDT

Topic: PH News from PHA’s 2022 Conference

Speaker: Sandeep Sahay, MD

Leader: Shirley Craig, Lauri Stanfield

Email: ten.tta@eromonhp, moc.oohay@30cirual

Phone Number: 832-418-1405, 832-646-0429

23 Jul
July 23, 2022    
12:00 pm PDT - 3:00 pm PDT

Topic: Tips on maximizing support from the PHA community & a celebration for our first time meeting in person!

Speaker: Monica Penaranda, PHA Board of Trustees

Leader: Marisela Navarro, Annabel Mejorado

Email: moc.oohay@75_orravanalesiram, moc.liamtoh@odarojemlebanna

Phone Number: 323-532-5164

23 Jul
July 23, 2022    
2:00 pm CDT - 3:00 pm CDT

Topic: Traveling with PAH

Speaker: Dawn Becher, RN

Leader: Elsa Garza, DNP, ACNP

Email: moc.gnulbus@azrag.asle

 

26 Jul
July 26, 2022    
11:00 am EDT - 12:00 pm EDT

Topic: TBA

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

26 Jul
July 26, 2022    
6:00 pm CDT - 7:00 pm CDT

Topic: Share your PH experience- Let’s vent!

Leader: Alisa Orphy

Email: ten.htuoslleb@ayhpro

Phone Number: 337-853-7244

26 Jul
July 26, 2022    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

27 Jul
July 27, 2022    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Complete el siguiente cuestionario antes de registrarse

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.

28 Jul
July 28, 2022    
6:30 pm EDT - 8:30 pm EDT

Topic: OTC Medications & Side Effects Management

Leader: Jane Northrop

Email: moc.liamg@puorghpodnalro

Phone Number: 321-245-8435

28 Jul
July 28, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

29 Jul
July 29, 2022    
1:00 pm PDT - 2:30 pm PDT

Topic: Coping with Chronic Illness

Speaker: Jennifer Johnson, RN, Senior Clinical Advisor

Sponsor: Accredo

Leader: Felicia Seubert

Email: moc.liamg@trebues.aicilef

Phone Number: 425-745-9845

30 Jul
July 30, 2022    
11:00 am EDT - 12:30 pm EDT

OSU Support Group Meeting

Who:  PH patients, family members, caregivers, healthcare

providers, and anyone affected by PH.

 

When: Saturday, July 30, 2022 from 11am-1230 pm

 

Where:  Ross Heart Hospital Auditorium or Virtual at

https://osu.zoom.us/j/97341311834?pwd=V09GbzBOMVpER3o2empza3hkWEdlUT09

 

Meeting ID: 973 4131 1834     Password: 906620

 

Topics:  -Managing side effects of PH medications by

Laura Mudd Pietrykowski PharmD

-Open discussion, please bring your questions

 

RSVP:  Please RSVP if attending in person or virtually

to ude.cmuso@lettik.arbed

 

Parking:  Handicap drop off at front door of Ross, valet parking or Safe Auto

Garage.  Wheelchairs available at front entrance.  Electrical outlets

for portable oxygen available.  Standard parking fees apply.

 

Sponsored by OSU PH Team and PHA

 

 

Support Group Co-Leaders:  Tiffani Brown (PH patient) & Debbie Kittel RN

 

Support group will meet quarterly, more details to follow.

30 Jul
July 30, 2022    
11:00 am EDT - 1:00 pm EDT

Topic: New Normal: Life After a Diagnosis of PAH

Speaker: Abhijit Ravel, MD

Leader: Marcie McGregor

Email: moc.oohay@rogergcm.eicram

Phone Number: 803-640-3406

Events on June 28, 2022
Events on July 8, 2022
Events on July 9, 2022
Events on July 12, 2022
Events on July 13, 2022
Events on July 14, 2022
Events on July 16, 2022
16 Jul
16 Jul
Events on July 17, 2022
17 Jul
Events on July 19, 2022
Events on July 20, 2022
Events on July 21, 2022
Events on July 23, 2022
Events on July 26, 2022
Events on July 27, 2022
Events on July 28, 2022
28 Jul
Events on July 29, 2022
29 Jul
Events on July 30, 2022