Support Group Meeting Calendar

This information is for caregivers and patients, not for solicitations or commercial use.

Support group leaders: Submit your event to the calendar and a postcard mailing (you will be prompted to sign in).

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30 Aug
August 30, 2022    
11:00 am EDT - 12:00 pm EDT

Topic: Medication Adherence

Speaker: Nurse Practitioner

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

30 Aug
August 30, 2022    
6:30 pm EDT - 8:00 pm EDT

Topic: Catching Up – Let’s Visit/Meet and Greet

Speaker: Katie Fitton, DO

Leader: Heather Arena

Email: moc.liamg@anaihcimhp

Phone Number: 269-982-5864

01 Sep
September 1, 2022    
6:00 pm EDT - 9:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Matthew Deshazo, MD

Sponsor: Bayer Healthcare

Leader: Barbara Thompson

Email: moc.liamg@sihpmeMnIarabraB

Phone Number: 901-463-8688

02 Sep
September 2, 2022    
12:00 pm MDT - 2:00 pm MDT

Topic: Adjusting to covid times – what’s new

Leader: Lala Juarez

Email: moc.liamg@raeBalaLox

Phone Number: 801-663-4897

08 Sep
September 8, 2022    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

09 Sep
September 9, 2022    
10:30 am MDT - 11:30 am MDT

Topic: Pulmonary hypertension: Understanding the basics (scleroderma)

Speaker: Lauren Hulett, RN

Sponsor: Bayer Healthcare

Leader: Evan Holm

Email: ude.mnu.dulas@mlohve

Phone Number: 505-272-2815

10 Sep
September 10, 2022    
10:00 am CDT - 12:00 pm CDT

Topic: Insurance – What you need to know!

Speaker: Gretchen Morris, Serenity Health Advisor

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Phone Number: 952-221-5475

10 Sep
September 10, 2022    
12:00 pm EDT - 2:00 pm EDT

Topic: Join us for an open PH discussion with Dr. Mughal

Speaker: Majid Mughal, MD

Leader: Karen Sawyer

Email: moc.liamg@elppadiuluL

Phone Number: 517-420-6457

10 Sep
September 10, 2022    
1:00 pm EDT - 2:00 pm EDT

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

13 Sep
September 13, 2022    
1:00 pm EDT - 3:00 pm EDT

Topic: Nutrition Q & A

Speaker: Jean Copeland, RND, LD

Leader: Laura Hooley

Email: ten.tniopriafym@harual

Phone Number: 603-863-9980

13 Sep
September 13, 2022    
1:30 pm EDT - 2:30 pm EDT

Topic: General Discussion

Speaker: Vandana Seeram, MBBS, MD

Leader: Alicia Peters

Email: ude.lfu.xaj@sretep.aicila

Phone Number: 904-244-1758

14 Sep
September 14, 2022    
10:45 am EDT - 12:00 pm EDT

Topic: PAM Specialty Hospital Short and Long Term Care

Speaker: Mechelle with PAM Specialty Hospital Shreveport N

Leader: Sonia Tindal, Lori Kirby

Email: ude.shusl@ladnit.ainoS,

Phone Number:

14 Sep
September 14, 2022    
6:00 pm EDT - 7:00 pm EDT

Topic: Empowered Patient

Leader: Christina Benninger, NP

Email: moc.rennurdaor@52lligc

Phone Number: 513-675-1314

14 Sep
September 14, 2022    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH. Register for an upcoming meeting and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

15 Sep
September 15, 2022    
1:00 pm EDT - 2:00 pm EDT

Topic: Mindfulness Meditation and Breathing Techniques with a Women’s Heart Program Coordinator

Speaker: Avril James Maynard, MPH, CHES

Leader: Nesha Ridings

Email: gro.tnomdeiP@troppuSDLA

Phone Number: 404-350-2427

15 Sep
September 15, 2022    
6:30 pm EDT - 8:00 pm EDT

Topic: Traveling with PH and Oxygen Therapies

Speaker: Elie Homsy, MD & Dawn Tyree, RT

Leader: Tiffani Brown, Debbie Kittel

Email: moc.liamg@4909inaffit,

Phone Number: ude.cmuso@lettik.arbed

17 Sep
September 17, 2022    
8:30 am EDT - 3:30 pm EDT
17 Sep
September 17, 2022    
9:30 am EDT - 11:00 am EDT

Topic: Check-in & Conversation!

Leader: Mary Clare McGraw, Wendy Berry

Email: moc.liamg@shpnotsob, moc.liamg@hpnotsobydnew

Phone Number: 781-820-4606, 610-203-8762

17 Sep
September 17, 2022    
11:00 am EDT - 1:00 pm EDT

Topic: Understanding PAH and Coping with Your Condition

Speaker: Chad Miller, MD

Leader: Marcie McGregor

Email: moc.oohay@rogergcm.eicram

Phone Number: 803-640-3406

17 Sep
September 17, 2022    
11:00 am EDT - 1:00 pm EDT

Topic: Meet with Dr. Moles

Speaker: Victor Moles, MD, PH Clinic, Univ. of MI

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734-662-8433

17 Sep
September 17, 2022    
1:00 pm PDT - 3:00 pm PDT

Topic: Walk for Your Well-Being

Speaker: Stephanie Nolley, RN

Sponsor: UTC

Leader: Michele Freeman

Email: moc.liamg@0002nameerfm

Phone Number: 541-408-4943

19 Sep
September 19, 2022    
6:00 pm CDT - 7:00 pm CDT

Topic: Tips for Low Sodium Diet and Healthy Cooking (Cooking demo)

Speaker: Heather Klug, MEd, RD, CD Registered Dietician

Leader: Tina Stiyer RN, Nancy Niebauer RN

Email: moc.tretdeorf@reyits.anit

Phone Number: 414-805-8884, 414-646-0525

20 Sep
September 20, 2022    
6:00 pm EDT - 7:00 pm EDT

Topic: Navigating PAH Benefits and Resources

Speaker: Beverly Curtsinger, RN and Caroline Crawford, RN

Sponsor: CVS Pharmacy

Leader: Denise Turner

Email: moc.tejr@renrutmd

Phone Number: 317-213-1314

20 Sep
September 20, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

21 Sep
September 21, 2022    
5:30 pm EDT - 7:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Wes McConnell, MD

Sponsor: Bayer Healthcare

Leader: Evelyn Mitchell

Email: moc.oohay@llehctimknykeve

Phone Number: 859-396-2476

21 Sep
September 21, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Please complete this questionnaire before registering


Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

22 Sep
September 22, 2022    
2:00 pm MDT - 3:30 pm MDT

Topic: FAQ about PAH

Speaker: Meghan Cirulis, MD

Sponsor: Janssen Pharmaceuticals

Leader: Kelly Herzog

Email:gro.liami@gozreH.ylleK

Phone Number: 801-507-4698

22 Sep
September 22, 2022    
6:30 pm EDT - 8:30 pm EDT

Topic: Insurance 101

Speaker: Jane Northrop, PHA support group leader

Leader: Jane Northrop

Email: moc.liamg@puorghpodnalro

Phone Number: 321-245-8435

22 Sep
September 22, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

24 Sep
September 24, 2022    
11:45 am CDT - 1:00 pm CDT

Topic: Empowered Patient

Speaker: Sandra Lombardi, RN

Sponsor: Janssen Pharmaceuticals

Leader: Nicole Fitzgerald

Email: moc.liamg@81nojrobn

Phone Number: 626-543-5726

24 Sep
September 24, 2022    
2:00 pm CDT - 3:00 pm CDT

Topic: Empowered Patient

Speaker: Christina Benninger

Sponsor: Janssen Pharmaceuticals

Leader: Kelsey Loethen

Email: moc.kooltuo@uozzimhp

 

27 Sep
September 27, 2022    
11:00 am EDT - 12:00 pm EDT

Topic: Open Discussion

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number:856-904-6867

27 Sep
September 27, 2022    
2:00 pm EDT - 3:00 pm EDT

Topic: Coping with Chronic Illness

Speaker: Jennifer Johnson, RN, BSN, CRNI

Sponsor: UTC

Leader: Matthew Schatti, RN

Email: moc.aratnes@1tahcsbm

Phone Number:

27 Sep
September 27, 2022    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

28 Sep
September 28, 2022    
10:30 am CDT - 12:30 pm CDT

Topic: Emergency Preparedness

Leader: Linda Gates

Email: moc.loa@26setagl

Phone Number: 985-651-5582

28 Sep
September 28, 2022    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Complete el siguiente cuestionario antes de registrarse

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.

29 Sep
September 29, 2022    
11:30 am EDT - 12:30 pm EDT

Topic: Traveling with PAH

Speaker: Donna Dhayer, BSN, RN

Sponsor: Presentation sponsored by CVS

Leader: Tammy Stankard, RN, BSN

Email: moc.larenegws@draknatst

Phone Number: 440-384-9683

01 Oct
October 1, 2022    
11:00 am EDT - 12:30 pm EDT

Topic: Fall Fling: Meet, Greet, Games, Learn, Treats!

Leader: Chris Calvert, Charnetta Lester

Email: cc.trevlac@96selcric, gro.htlaehucv@nosnibor.attenrahc

Phone Number: 804-360-9608

01 Oct
October 1, 2022    
11:30 am EDT - 1:30 pm EDT

Topic: General PH and Patient Check-in

Speaker: Diane Ramirez

Leader: Diane Ramirez

Email: moc.oohay@78zerimarid

Phone Number: 336-425-6335

01 Oct
October 1, 2022    
12:00 pm CDT - 2:00 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Muhyaldeen Dia, MD

Sponsor: Bayer Healthcare

Leader: Lynn Bastian

Email: ten.tta@naitsabml

Phone Number: 630-621-6280

Masks should be worn unless eating or drinking. Bring proof of COVID-19 vaccination or negative COVID-19 test.

01 Oct
October 1, 2022    
12:00 pm PDT - 4:00 pm PDT

Topic: Annual Picnic – 2022

Leader: Debbie Baugh, Pat & Hal Halbrook

Email: moc.liamg@caspuorghP

Phone Number: 916-206-3567, 410-353-0350

01 Oct
October 1, 2022    
1:00 pm PDT - 3:30 pm PDT

Topic: Navigating PAH Benefits and Resources

Speaker: Richard Samaniego, RN

Sponsor: CVS Pharmacy

Leader: Michele Freeman

Email: moc.liamg@0002nameerfm

Phone Number: 541-408-4943

02 Oct
October 2, 2022    
11:00 am EDT - 1:00 pm EDT

Topic: The Vikki Auzenne Patient Roundtable Discussion

Speaker: Doctors, nurses and patients

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734-662-8433

02 Oct
October 2, 2022    
3:00 pm EDT - 4:30 pm EDT

Topic: New happenings with our group

Leader: Brenda Gibson

Email: moc.liamg@742nosbigb

Phone Number: 614-218-2099

Events on August 30, 2022
30 Aug
30 Aug
Events on September 1, 2022
Events on September 2, 2022
Events on September 8, 2022
Events on September 9, 2022
Events on September 10, 2022
Events on September 13, 2022
Events on September 14, 2022
Events on September 15, 2022
Events on September 17, 2022
Events on September 19, 2022
Events on September 20, 2022
Events on September 21, 2022
Events on September 22, 2022
Events on September 24, 2022
Events on September 27, 2022
Events on September 28, 2022
Events on September 29, 2022
Events on October 1, 2022
01 Oct
01 Oct
01 Oct
Events on October 2, 2022