Support Group Meeting Calendar

Topic: TBA

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

Topic: Holiday Luncheon

Leader: Chris Calvert

Email: cc.trevlac@96selcric

Phone Number: 804-357-1454

Topic: Emergency Preparedness and Insurance

Leader: Patricia Ofori

Email: moc.liamg@puorghpwL

Phone Number: 646-504-8506

Topic: Pulmonary hypertension: Understanding the basics (scleroderma) Living with PAH or CTEPH: Experiencing Stress with Your Condition

Speaker: Michael Cuttica, MD

Sponsor: Bayer Healthcare

Leader: Lynn Bastian

Email: ten.tta@naitsabml

Phone Number: 630-621-6280

Topic: open forum

Leader: Pat Graham

Email: moc.liamg@caspuorghp

Phone Number: 410-353-0350

Topic: Holiday Party

Leader: Michelle Reller

Email: moc.oohay@rellerlm

Phone Number: 812-489-1069

Topic: Christmas meeting

Leader: Brenda Gibson

Email: moc.liamg@742nosbigb

Phone Number: 614-218-2099

Topic: Holiday PHun and Games! Bring a wrapped edible treat for our gift exchange game, it can be homemade or store bought.

Leader: Monica Penaranda, Marisela Navarro

Email: moc.liamg@265adnaranepm, moc.oohay@75_orravanalesiram

Phone Number: 562-639-2053, 323-532-5164

Topic: End of Year and Belated PH Month Celebration

Leader: Rachel Potter

Email: ude.mssm@etutitsniyrotaripser

Topic: Creating Low Sodium Meals with Flavor

Speaker: Judy Steffes, MS, RDN, LD

Leader: Tammy Stankard

Email: moc.larenegws@draknatst

Phone Number: 440-384-9683

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Topic: Guiding You Through the Holidays with Pulmonary Hypertension

Speaker: Banner Palliative Care Team

Leader: Carissa Tellinghuisen

Email: moc.htlaehrennab@xobnihapivc

Phone Number: 970-810-3776

Topic: My Story as a PH Patient, Former Chair of PHA, Writer, Educator, Speaker, Artist and Dancer

Speaker: Colleen Brunetti

Leader: Mary Clare McGraw

Email: moc.liamg@shpnotsob

Phone Number: 781-820-4606

Topic: TBA

Leader: Jonette Robinson

Email: moc.oohay@aelettenoJ

Phone Number: 540-818-2813

Topic: Updates on treatment & new delivery devices

Speaker: Samy Elhalawani, DO

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Phone Number: 952-221-5475

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

Topic: Holiday Celebration

Leader: Mary Hale

Phone Number: 937-926-0095

Topic: Life Beyond PH

Speaker: Karla Cruz, MD, Prisma Health Richland PH Clinic

Leader: Doug Taylor

Email: moc.loa@FSrolyaTD

Phone Number: 803-465-2139

Topic: Exercise and Pulmonary Hypertension

Speaker: Aaron Miller, MD

Leader: Aaron Miller

Email: moc.kooltuo@uozzimhp

Topic: Traveling and PAH

Speaker: Abhijit Raval, MD

Sponsor: Janssen Pharmaceuticals

Leader: Matthew Schatti, Joyce Kossman

Email: ten.tta@yaj.ecyoj

Phone Number: 757-388-9138

Topic: New Normal

Speaker: Therese Sargent, APRN

Sponsor: Janssen Pharmaceuticals

Leader: Alicia Peters

Email: ude.lfu.xaj@sretep.aicila

Phone Number: 904-244-1758

Call in to connect, learn, and share strategies and experiences caring for your child with PH. Register for an upcoming meeting and receive call instructions once registered.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Topic: Open Discussion

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number:

Topic: Mental Health

Speaker: Vijay Balasubramanian, MD

Leader: Arturo Correa, PAH Team

Email: moc.duolcI@29aerrocorutrA, gro.lacidemytinummoc@gninokc

RSVP by 12/13/2022

RSVP number: 559-459-3803

Location: AROMAS Heart of Tower 568 E. Olive Fresno, CA 559-449-3022

Topic: Lets Celebrate the Holiday Season! Bring your ugly and/or festive sweaters and enjoy the gingerbread house building, holiday movies and more!

Leader: Estella Medina, Adriana Mares

Email: moc.liamg@srethgihppe.alletse, moc.oohay@seramvca

Phone Number: 915-208-2671

Topic: Holiday Travel w/ PH & Optional $15 Gift Exchange

Speaker: Sophia Esteves, PHA support group leader

Leader: Sophia Esteves

Email: moc.liamg@roirraWHPehT

Phone Number: 210-464-8922

Topic: Nutrition and Exercise

Speaker:  Jennifer Johnson, BSN, RN

Sponsor: Accredo

Leader: Heather or Brittiany

Email: moc.liamg@anaihcim.hp

Phone Number: 269-982-5864

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges. Register for an upcoming call and receive call instructions once registered.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Topic: Chat

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

Topic: Year end get together

Leader: Carla Kinsey

Email: moc.kooltuo@k_alrac

Phone Number: 586-530-0160

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.