Support Group Meeting Calendar

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email:moc.liamg@1691senobj 

Topic: Facial Acupressure for Improving Mood and Reducing Pain

Speaker: Michele Freeman LPC, NCC, MS

Leader: Michele Freeman

Email: moc.liamg@puorghpnogero

Phone Number: 541-408-4943

Topic: Oxygen therapy and equipment and frequently asked questions PH nurse coordinator

Speaker: Oxygen therapy and equipment and frequently asked questions PH nurse coordinator

Leader: Karen Sawyer

Email: moc.liamg@elppadiuluL

Phone Number: 517-420-6457

Topic: Pulmonary Hypertension: Understanding the Basics Living with PAH or CTEPH: Medication Adherence and Goals

Speaker: Abhijit Raval, MD

Sponsor: Bayer Healthcare

Leader: Doug Taylor

Email: 803-465-2139

Phone Number: 803-465-2139

Topic: Pulmonary Hypertension Updates for 2023

Speaker: Catherine Simpson, MD, MHS

Leader: Julie Shamberger, Laura Camponeschi

Email: ude.imhj@2ebmahsj, ude.imhj@ihcsenopmacl

Phone Number: 410-614-6311, 410-614-6311

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: moc.liamg@puorghpnogero

Topic: Meet and Greet—Getting to Know Everyone —— We will be meeting LIVE and via ZOOM for those who wish to meet virtual.

Speaker: TBA

Leader: Michael McAdams

Email: ten.tsacmoc@smadacmem

Phone Number: 717-781-4942

Topic: Empowered Patient

Speaker: Demetrus Johnson, Janssen Pulmonary Hypertension

Sponsor: Janssen Pharmaceuticals

Leader:  Adriana Camila Mares, Estella Medina

Email: moc.oohay@seramvca, moc.liamg@srethgihppe.alletse

Phone Number: 915-301-2371, 915-208-2671

Topic: Research

Speaker: Research Coordinators from SLMC and FH

Leader: Tina Stiyer

Email: moc.tretdeorf@reyits.anit

Phone Number: 414-805-8884

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader:

Email: gro.noitaicossahp@troppus

Topic: Understanding Medicare Insurance

Speaker: Danielle Burkett, CMA Duke University Hospital

Leader: Diane Ramirez

Email: moc.oohay@78zerimarid

Phone Number: 336-425-6335

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email:moc.kooltuo@CSP_alraC 

Topic: Beating The Winter Blues

Speaker: Susie Mcdevitt, DNP, ACNP-BC, Nurse Practitioner, U of M

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734 355 0295

Topic: CTEPH Understanding the Basics and Experiencing Stress with your Condition

Speaker: Therese Sargent, NP

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: moc.liamg@epoHnoitareneGAHP

Topic: Maddie’s Journey

Speaker: Lori Heaton, Mother of Deceased

Leader: Lala Juarez

Email: moc.liamg@raeBalaLox

Phone Number: 801-663-4897