Support Group Meeting Calendar

Information on this page is designed for caregivers and patients, not for solicitations or commercial use.

Support Group Leaders: Submit your event to the calendar and for a postcard mailing (will be prompted to sign in)
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06 Aug
August 6, 2022    
12:00 pm EDT - 2:00 pm EDT

Topic: Drug Trial Approvals

Leader: Colleen Schnell

Email: moc.liamtoh@4271ydalnolem

Phone Number: 716-297-1067

10 Aug
August 10, 2022    
12:00 pm EDT - 1:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Kelly Wilson, LPN

Sponsor: Bayer Healthcare

Leader: Joanne Sperando

Email: moc.kooltuo@46odnareps

Phone Number: 631-805-4586

10 Aug
August 10, 2022    
6:00 pm EDT - 7:00 pm EDT

Topic: Patient self-advocacy with Pulmonary Hypertension

Leader: Connie Gill

Email: moc.kooltuo@52lligc

Phone Number: 513-368-8693

10 Aug
August 10, 2022    
8:00 pm EDT - 9:00 pm EDT

Call in to connect, learn, and share strategies and experiences caring for your child with PH. Register for an upcoming meeting and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

11 Aug
August 11, 2022    
8:00 pm EDT - 9:00 pm EDT

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

12 Aug
August 12, 2022    
10:30 am MDT - 11:30 am MDT

Topic: New Normal

Speaker: Jennalyn Mayeux, DNP

Sponsor: Janssen Pharmaceuticals

Leader: Evan Holm

Email: ude.mnu.dulas@mlohve

Phone Number: 505-272-2815

13 Aug
August 13, 2022    
12:00 pm EDT - 1:30 pm EDT

Topic: Walk for Your Well-Being

Speaker: Malisa Wilson NP, PH coordinator Orlando Fl.

Sponsor: UTC

Leader: Karen Sawyer

Email: moc.liamg@elppadiuluL

Phone Number: 517-420-6457

13 Aug
August 13, 2022    
1:00 pm EDT - 2:00 pm EDT

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

13 Aug
August 13, 2022    
1:00 pm EDT - 2:30 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Paul Guichard MD with Wellstar Group Atlanta

Sponsor: Bayer Healthcare

Leader: Doug Taylor

Email: moc.loa@FSrolyaTD

Phone Number: 803-465-2139

13 Aug
August 13, 2022    
1:00 pm PDT - 3:00 pm PDT

Topic: New Normal

Speaker: Sandee Lombardi, RN

Sponsor: Janssen Pharmaceuticals

Leader: Michele Freeman

Email: moc.liamg@0002nameerfm

Phone Number: 541-408-4943

16 Aug
August 16, 2022    
6:00 pm EDT - 7:00 pm EDT

Topic: Relationships and PAH

Speaker: Jennalyn Mayeux, NP University of Utah

Sponsor: Janssen Pharmaceuticals

Leader: Denise Turner

Email: moc.tejr@renrutmd

Phone Number: 317-213-1314

16 Aug
August 16, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

17 Aug
August 17, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Please complete this questionnaire before registering


Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

20 Aug
August 20, 2022    
11:00 am EDT - 1:00 pm EDT

Topic: Good days, Bad days and how to cope

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734-662-8433

20 Aug
August 20, 2022    
12:00 pm CDT - 2:30 pm CDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics Living with PAH or CTEPH: Coping with Your Condition

Speaker: Sandy Coslet, BSN

Sponsor: Bayer Healthcare

Leader: Lynn Bastian

Email: ten.tta@naitsabml

Phone Number: 630-621-6280

20 Aug
August 20, 2022    
11:00 am PDT - 2:00 pm PDT

Topic: Managing Axiety

Speaker: Kathleen Fitzgerald, MD

Leader: Monica Penaranda

Email: moc.liamg@265adnaranepm

Phone Number: 562-639-2053

20 Aug
August 20, 2022    
5:00 pm EDT - 6:30 pm EDT

Topic: Stress Management

Speaker: Rachel Potter, LCSW

Leader: Rachel Potter

Email: ude.mssm@etutitsniyrotaripser

 

23 Aug
August 23, 2022    
8:00 pm EDT - 9:00 pm EDT

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

24 Aug
August 24, 2022    
8:00 pm EDT - 9:00 pm EDT

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Complete el siguiente cuestionario antes de registrarse

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.

25 Aug
August 25, 2022    
6:30 pm EDT - 8:30 pm EDT

Topic: OTC Medications and Side Effect Management

Speaker: Jane Northrop, PHA support group leader

Leader: Jane Northrop

Email: moc.liamg@puorghpodnalro

Phone Number: 321-245-8435

25 Aug
August 25, 2022    
8:00 pm EDT - 9:00 pm EDT

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

27 Aug
August 27, 2022    
11:00 am EDT - 12:00 pm EDT

Topic: New Normal

Speaker: Katherine Boggs P.A.

Sponsor: Janssen Pharmaceuticals

Leader: Patti Sakoman

Email: ten.htuoslleb@sisltiL

Phone Number: 919-412-9795

30 Aug
August 30, 2022    
11:00 am EDT - 12:00 pm EDT

Topic: Medication Adherence

Speaker: Nurse Practitioner

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

30 Aug
August 30, 2022    
6:30 pm EDT - 8:00 pm EDT

Topic: Catching Up – Let’s Visit/Meet and Greet

Speaker: Katie Fitton, DO

Leader: Heather Arena

Email: moc.liamg@anaihcimhp

Phone Number: 269-982-5864

01 Sep
September 1, 2022    
6:00 pm EDT - 9:00 pm EDT

Topic: Pulmonary Arterial Hypertension (PAH): Understanding the Basics

Speaker: Matthew Deshazo, MD

Sponsor: Bayer Healthcare

Leader: Barbara Thompson

Email: moc.liamg@sihpmeMnIarabraB

Phone Number: 901-463-8688

02 Sep
September 2, 2022    
12:00 pm MDT - 2:00 pm MDT

Topic: Adjusting to covid times – what’s new

Leader: Lala Juarez

Email: moc.liamg@raeBalaLox

Phone Number: 801-663-4897

Events on August 6, 2022
Events on August 10, 2022
Events on August 11, 2022
Events on August 12, 2022
Events on August 13, 2022
Events on August 16, 2022
Events on August 17, 2022
Events on August 20, 2022
Events on August 23, 2022
Events on August 24, 2022
Events on August 25, 2022
25 Aug
Events on August 27, 2022
27 Aug
Events on August 30, 2022
30 Aug
30 Aug
Events on September 1, 2022
Events on September 2, 2022