The Right Heart 2017-12-06T21:35:49+00:00

We have The Right Heart to share…

Living with a serious and rare diagnosis like pulmonary hypertension (PH) can be isolating. The PHA community is a network where people can connect with others who aren’t just living with PH, they’re living their best lives. People with PH are more than their illness, with hopes, goals and experiences that are rich and inspiring. Friends, family, caregivers, care providers and other supporters who have been inspired to add their voices to the fight against PH are part of this network, too. Together, the PHA community has the right heart for adventure, altruism, community and caring.

As part of Pulmonary Hypertension Awareness month, the Pulmonary Hypertension Association (PHA) is launching a unique storytelling campaign called The Right Heart. The campaign will celebrate the many ways people who have pulmonary hypertension (PH) are living their best lives. Read more about the launch of The Right Heart storytelling campaign.

Interested in sharing your story? Contact us at www.PHAssociation.org.

My Return to Gardening After CTEPH

By | November 30th, 2017|Categories: Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Living with PH, News, Support Groups, The Right Heart|

Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension (PH) associated with pulmonary embolism (PE), a life-threatening blood clot that usually forms in a vein deep in the legs and travels to the

Shavini’s Story: “I Don’t Worry About What I Have No Control Of”

By | November 30th, 2017|Categories: Community, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

Shavini Fernando, 35, talks about her pulmonary arterial hypertension (PAH) diagnosis two years ago and her journey to the United States from Sri Lanka in search of better care and treatments. Since being diagnosed,

Support Group Leader Bill Kolms’ CTEPH Story

By | November 27th, 2017|Categories: Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Living with PH, News, Support Groups, The Right Heart|

Bill Kolms was initially told that he was just getting older and needed to exercise more before he sought additional information about his symptoms. He ultimately determined that he had a type of pulmonary hypertension

Passion to Profession: Following My Mother’s Faith and Tenacity

By | November 21st, 2017|Categories: Community, Families and Caregivers, Featured, Healthcare and Insurance, Healthcare Professionals, Living with PH, News, The Right Heart|

By Kimberly Mosley It was the summer of my senior year of high school. I remember the doctor coming into the room and diagnosing my mother with pulmonary hypertension (PH). It was something that

The Right Heart Video Series: Dancing My Way Through Pulmonary Hypertension

By | November 8th, 2017|Categories: Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Healthcare and Insurance, Living with PH, The Right Heart|

By Jesus Cornejo Last weekend it was the Homecoming Dance in my High School. My date dumped me, but nothing would ruin the occasion. I wore a suit, a nice shirt, and bowtie.

My “Pre-Existing Condition” Started at Birth – How I Fight for Access to Care

By | November 8th, 2017|Categories: Advocacy, Awareness, Community, Families and Caregivers, Featured, The Right Heart|

By Bobby Hall About Bobby Hall: Bobby Hall is a social media influencer and activist who lends his voice to raising awareness for pulmonary hypertension. He also works for Project Angel Food, an organization

This Is Your Journey: Lessons in Transitioning from Pediatric to Adult PH Care

By | October 12th, 2017|Categories: Awareness, Community, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

By Becca Atherton I was diagnosed at birth with complex congenital heart disease that caused me to develop pulmonary hypertension. Now 24 years old, I’m transitioning from pediatric PH care to an adult facility.

Family Rallies Around Child Living With PH: Everybody Deserves the Dream of “When I Grow Up…”

By | October 4th, 2017|Categories: Awareness, Community, Events, Families and Caregivers, Featured, Fundraising, Living with PH, News, The Right Heart|

In Haylee's first year of life she was on the exact growth chart as her older sister, but was hit with several respiratory illnesses. As she grew older, some of her milestones were delayed

My Husband’s Unexplained Illness and PH Diagnosis

By | September 20th, 2017|Categories: Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

By Arianne Rohmann My active thirty-year-old husband was diagnosed with pulmonary hypertension (PH) and bi-lateral blood clots after experiencing unexplained symptoms for months… Five months later I was a 29-year-old widow raising a four-

Inadequate Coverage Nearly Cost Me My Life

By | September 19th, 2017|Categories: Advocacy, Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Living with PH, The Right Heart|

By Sharon Thomas I had health care coverage when I found out I needed a life-saving heart and lung transplant for a disease called pulmonary hypertension. However, my insurance denied the treatment I needed.

Announcing “The Right Heart” – New PHA Blog Series of People Living Their Best Lives With PH

By | September 19th, 2017|Categories: Awareness, Community, Families and Caregivers, Featured, Healthcare Professionals, Living with PH, Support Groups, The Right Heart|

Living with a serious and rare diagnosis like pulmonary hypertension (PH) can be isolating. The PHA community is a network where people can connect with others who aren't just living with PH, they're living their

PHA’s Pulmonary Hypertension Awareness Month activities are sponsored by Actelion with in-kind in-store, digital media and event product donations from CVS Specialty, the specialty pharmacy of CVS Health.