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The Right Heart2023-09-26T11:21:30-04:00

Share Your Story With our Right Heart Blog

Living with a serious and rare diagnosis like pulmonary hypertension (PH) can be isolating. The PHA community is a network where people can connect with others who aren’t just living with PH, they’re living their best lives. People with PH are more than their illness, with hopes, goals and experiences that are rich and inspiring. Friends, family, caregivers, care providers and other supporters who have been inspired to add their voices to the fight against PH are part of this network, too. Together, the PHA community has the right heart for adventure, altruism, community and caring.

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Michigan Family Shares Daughter’s PH Journey

March 13th, 2024|Categories: Featured, News, The Right Heart|

Cheryl Wegener felt grateful when her daughter’s former classmates chose PHA as a recipient of their senior class fundraiser. She thought the donation was a fitting tribute to Madison, who died during her freshman year of high school. Cheryl shares Madison’s story for PHA's spring fundraising campaign. She and her husband will present the check from the fundraiser at PHA 2022 International PH Conference and Scientific Sessions, Aug. 15-18 in Indianapolis.

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Game, Set, Match: Tennis Buff ‘Smashes’ PH

February 23rd, 2024|Categories: The Right Heart|

When Kathryn Buffington was diagnosed with PH, a doctor said she’d never play tennis again. Her response? “Watch me.” Buffington, 73, shares her exercise and medication regimens and positive thinking with the Pulmonary Hypertension Association’s Right Heart Blog.

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As Diagnosis Shock Wanes, Jessica Williams Learns Hope and Gratitude

January 11th, 2024|Categories: The Right Heart|

Jessica Williams felt like she lost everything she’d ever worked for when she was diagnosed with pulmonary hypertension in February 2020. Williams had to give up the cleaning company she started so to manage her disease. Williams, who lives with her parents in Omaha, shares her journey with the Pulmonary Hypertension Association’s Right Heart Blog.

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Shannon Munson soars beyond tough times

January 2nd, 2024|Categories: The Right Heart|

Shannon Munson of San Clemente, California, makes the most of living with pulmonary hypertension. Diagnosed in 2006, Munson lives an active lifestyle and volunteers at her children’s schools. “Over the last 17 years, I have continued to do all the things I was told I would never do again.”

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How Ron Ancrum Found Strength to ‘Keep On Moving’

November 7th, 2023|Categories: Featured, News, The Right Heart|

Ron Ancrum was 25 when he learned he had sarcoidosis. Three decades later, he learned the condition had caused pulmonary arterial hypertension. He shares his path to positivity and self-publishing in the Pulmonary Hypertension Association’s Right Heart Blog. Read his story.

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After 10 Years With PH, She’s Looking Toward Countless More

August 30th, 2023|Categories: The Right Heart, Top10PHAnews2023|

When Janessa Curnow was diagnosed with PH, she was inspired that her doctor had been treating some patients for 10 years. So she set a goal she didn’t know if she could keep. This summer, she met that goal: her 10th anniversary of living with PH.

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Queer Representation in the PH Community

June 16th, 2023|Categories: The Right Heart|

Sydney Ward is a business owner and part-time yoga instructor who lives outside of Minneapolis with their partner Tom and cats Luna and Pandora. She is bisexual and nonbinary, specifically gender queer. Sydney shared initially shared their story in the summer 2022 issue of Pathlight.

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Texas Third Graders Rally for Classmate With PH

May 10th, 2023|Categories: Featured, News, The Right Heart|

Hughes Elementary School showed its true colors for World PH Day when students and staff dressed in purple to support third-grader Isla Grey, who has PH. Isla’s class also raised $660 in quarters in April for pulmonary hypertension research. Isla’s mom Jennifer Morrow shares their story in the Right Heart Blog.

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Decreasing Lung Pressure Gives Hope a Year After Diagnosis

February 27th, 2023|Categories: The Right Heart|

Uraiwan Campbell went to urgent care for what she thought was an infected scratch on her leg. But after several days in the hospital and many tests, she learned her swollen leg was related to pulmonary hypertension. A recent heart catheterization showed her lung pressure has declined, buoying her spirits.

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Family, Friends, Hot Sauce Help Patient Stay Positive

January 30th, 2023|Categories: The Right Heart, Top10PHAnews2023|

Chloe Merritt is still getting used to a low-sodium diet, lack of energy and a subcutaneous pump after her September 2022 diagnosis. The life-changing experience brought her closer to family and friends and led her to a new favorite food. See the Right Heart Blog post.

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Familial PAH Affects 4 Generations

January 4th, 2023|Categories: The Right Heart|

Whitney Whited was 10 when her father died of pulmonary arterial hypertension (PAH) complications. Recently, she learned about the BMPR2 gene and sought genetic testing for her 11-year-old daughter. Whitney, 34, who doesn’t have PAH, shared her family’s story in the winter 2022 issue of Pathlight, the Pulmonary Hypertension Association’s member magazine.

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Retiree Stays Active as She Adapts to CTEPH

January 4th, 2023|Categories: The Right Heart|

Joyce Sandberg of Port St. Lucie, Florida, noticed shortness of breath nine years ago while biking. A few years later, she developed blood clots and chronic thromboembolic pulmonary hypertension. But she doesn’t let her conditions stop her from enjoying life, taking cruises and attending classic car shows with her husband.

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CTEPH Patient Finds Community Through PHA Facebook Group

December 5th, 2022|Categories: The Right Heart|

Karly Loree, 30, felt isolated after her chronic thromboembolic pulmonary hypertension (CTEPH) diagnosis. But when she discovered a Pulmonary Hypertension Association support group for people with CTEPH, she found support, hope and community. As she awaits surgery this month, she shares her story for the Pulmonary Hypertension Association’s end-of-year fundraising campaign.

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How a New Jersey Support Group Leader Honors Her Late Son

November 9th, 2022|Categories: The Right Heart|

Bonnie Patricelli memorializes her son Ryan Juntti through her volunteer work for the Pulmonary Hypertension Association (PHA). She and Ryan revived PHA’s South Jersey Support Group in 2008, and she continues to co-lead the group since Ryan’s 2015 death. Bonnie’s story appears in the fall issue of Pathlight, PHA’s quarterly member magazine.

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Join the Liu Family in Supporting PHA

November 9th, 2022|Categories: The Right Heart|

The Liu family was vacationing in the Netherlands in 2012 when their 2-year-old daughter, Esther, had a heart attack. Two days later, she was diagnosed with pulmonary arterial hypertension, with an unknown cause. Since then, she has received a double lung transplant and travels all over the world with her mother Michelle, a physician and Pulmonary Hypertension Association (PHA) board member, to share their PH journey. Dr. Liu, shares that story as part of PHA’s fall fundraising campaign.

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Former Teacher Finds Meaning as Support Group Leader

September 28th, 2022|Categories: The Right Heart|

Becoming a support group leader has added meaning to Les Freeman’s life. The former teacher says being a support group leader is much like preparing lessons: He tries to blend education along with socialization. Les, who leads the Central Oregon PHA Support Group with his wife Michele, shares his story with the Pulmonary Hypertension Association’s Right Heart Blog.

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Patient’s Positive Attitude Inspires Nurse to Start Support Group

August 31st, 2022|Categories: The Right Heart|

Debbie Kittel recently started a Pulmonary Hypertension Association support group at The Ohio State University, where she is the PAH nursing program manager. “I am proud of how big the group has grown and how quickly it has taken off.”

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Taking Life a Day at a Time a Year After Diagnosis

August 2nd, 2022|Categories: The Right Heart|

Debra Gonzales, 66, is a just a year into her pulmonary hypertension journey. After a recent doctor visit, she learned her arterial pressure had declined and her heart function had improved. Her pulmonary arterial hypertension doesn’t stop her from spending time with her daughter, mother-in-law, friends and her dog in Redondo Beach, California.

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Son’s PH Helps Pediatrician Better Understand Her Patients

July 5th, 2022|Categories: The Right Heart|

As an intensive care pediatrician, Chandani Dezure, M.D., treats critically ill children. After one son was diagnosed with pulmonary hypertension, Dr. Dezure became a caregiver herself. She shares how her son's PH helped her become a better doctor. Her story appeared in the June 2022 issue of Pathlight.

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Hole in Heart Leads to PH Diagnosis

May 24th, 2022|Categories: The Right Heart|

Doctors weren’t sure Lillian Cooke would survive the night they discovered her pulmonary arterial hypertension. Three years later, the stay-at-home mom spends time with family and friends, painting, playing video games and listening to music.” I hope my story gives someone else hope,” Lillian writes in the Pulmonary Hypertension Association’s Right Heart Blog. “I will never lose hope, and I’m going to keep fighting until my last breath.”

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Dancing Through Life with PH

May 10th, 2022|Categories: The Right Heart|

Pam Vinesett of North Carolina served three years of active duty and 17 years in the army reserves. The mother of seven and grandmother of eight enjoys swimming, fishing and tubing with her husband. In 2014, she noticed shortness of breath and other pulmonary hypertension symptoms. Since her eventual diagnosis and other health challenges, she is doing well and teaches four to six Zumba classes a week.

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PAH Trial Participants Inspire Doctor’s Passion for PH Research

April 26th, 2022|Categories: The Right Heart|

Nadine Al-Naamani, M.D., was inspired to become a doctor after growing up in Beirut during the civil war in Lebanon. She knew then that she wanted to help people around her. Today, she treats people with pulmonary hypertension (PH) and other serious lung conditions at Penn Medicine and conducts PH research. She is an assistant professor of medicine at University of Pennsylvania Hospital, a Pulmonary Hypertension Association-accredited PH Care Center. She originally shared her story with Pathlight, PHA’s quarterly member magazine.

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Health Care Exec Breathes Easily After PTE Surgery

March 2nd, 2022|Categories: The Right Heart|

Angela Donovan began experiencing shortness of breath in 2019. After she moved for a new career, her symptoms worsened. A work visit to an urgent care clinic led to her chronic thromboembolic pulmonary hypertension diagnosis. She shares her story for Blood Clot Awareness Month.

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Finding Hope in the PH Community and Research Studies

September 2nd, 2021|Categories: The Right Heart|

Morgan Nuchols began to show signs of PH as a baby. Today the 28-year-old participates in the Pulmonary Hypertension Association’s Generation Hope Facebook Support Group for young adults. She also participates in research studies to in hopes of finding a genetic link between pulmonary hypertension and congenital diaphragmatic hernia. She also participates in research studies to in hopes of finding a genetic link between pulmonary hypertension and congenital diaphragmatic hernia.

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PAH Diagnosis Leads to New Outlook on Life

August 19th, 2021|Categories: The Right Heart|

A month after her diagnosis, Wendy McBride was sitting in her living room attached to a central line. Despite a five-year prognosis, she chose to live rather than die. Her life changed for the better as she learned to cope through diet, exercise and a quit-feeling-sorry-for-yourself attitude. She discovered a strength she never knew she had.

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Former Teacher Educates Professionals About the Patient Experience

July 8th, 2021|Categories: The Right Heart|

After a 42-year education career, Missy Storm volunteers for the Pulmonary Hypertension Association and the hospital where she underwent a pulmonary thromboendarterectomy in 2018. She started by sharing her experiences with medical staff fulfilling their continuing education requirements.

Familial PAH Diagnosis Prompts Need to Give Back

June 10th, 2021|Categories: The Right Heart|

Kayla Naecker had classic signs of pulmonary hypertension (PH), a disease that killed her biological grandmother. But Kayla, of Benld, Illinois, didn’t suspect PH. She was in her 20s, and her grandmother’s case was thought to be associated with diet pill use. Genetic testing after a right heart catheterization confirmed familial PAH, so Kayla had her 3-year-old daughter tested, too. Kayla shares her story with the Pulmonary Hypertension Association’s Right Heart Blog for American Family Month.

Thankful for Treatment Advancements That Give Hope

May 27th, 2021|Categories: The Right Heart|

Pulmonary hypertension (PH) was no stranger to Albert Wright when she was diagnosed in 2018. Her oldest sister and a niece died from it. But Alberta lives life to the fullest, taking nothing for granted. She leads the Pulmonary Hypertension Association’s Detroit Support Group and administers a PHA Facebook support group page. A full-time teacher’s aide, she shares her PH journey with PHA’s Right Heart Blog for National Family Month in June.

Help Change the Lives of People With PH

April 29th, 2021|Categories: The Right Heart|

Monica Penaranda thought her life was shattered when a pulmonary hypertension (PH) diagnosis ended her days of cheerleading, track and varsity softball. Instead, she reconfigured her life goals. Twenty-three years later, Monica, a member of the Pulmonary Hypertension Association (PHA) Board of Trustees, is the face of PHA’s spring fundraising campaign.

Support Group Leader Stays Strong Through Faith and Family

April 15th, 2021|Categories: 30 Years of PHA, Support Groups, The Right Heart|

Gwendolyn Brown has lived with pulmonary arterial hypertension (PAH) for more than 40 years. She has survived a heart attack, three strokes and 11 mini strokes. She leads the Pulmonary Hypertension Association (PHA)’s Cleveland Community Support Group and is a minister at Zion Pentecostal Church of Christ.

Living in the Moment With New Lungs

April 15th, 2021|Categories: The Right Heart|

A month before Genevieve Hughes turned 50, severe shortness of breath forced her to seek emergency treatment. “I thought I was just getting older and out of shape,” says Genevieve, who later learned she had idiopathic pulmonary arterial hypertension and eventually would need a double-lung transplant. Now two years post-transplant, she’s breathing deeply and enjoying her gift of life.

PH Changed Her Life. It Taught Her to Persevere

April 1st, 2021|Categories: 30 Years of PHA, The Right Heart|

Diane Ramirez of Lexington, North Carolina, was diagnosed with pulmonary arterial hypertension in 1987. At the time, fewer than 200 cases were known of the disease then known as primary pulmonary hypertension (PH). Diane originally shared her PH journey in the December 2020 Pathlight magazine, which launched the Pulmonary Hypertension Association’s 30th anniversary celebration.

Emergency Prep: Surviving Poor Air Quality

October 1st, 2020|Categories: The Right Heart|

Evans Wilson and his wife Alicia were recently affected by the smoke from the wildfires that raged through the West Coast. Evans was diagnosed with pulmonary arterial hypertension (PAH), pulmonary fibrosis (PF) in October 2014 and chronic thromboembolic pulmonary hypertension (CTEPH) in December 2016. This is his story.

Pastoring in a Pandemic and Finding Resilience

September 3rd, 2020|Categories: The Right Heart|

Diana Lewis, 57, lives in Rio Rancho, New Mexico, with her husband of 28 years, Adrian, and her son Joshua, 29, who has autism spectrum disorder. Diana, a pastor, taught pre-K and elementary school for 14 years. She was diagnosed with pulmonary hypertension (PH) five years ago. She shares her story about dealing with the pandemic.

Born with Collapsed Lung, 36-Year-old Awaits Double Lung Transplant

July 2nd, 2020|Categories: 30 Years of PHA, The Right Heart|

I was told I would never see my childhood years, but I defeated that. Over time, I developed the nickname “Bones.” When my weight hit 100 pounds, my family celebrated. I was told that I would never see my teenage years, but I defeated that, too. I was told I would never get to see my adulthood. I’m now 36.

Meet Samuel Hall: Inventor, PH Patient and Sarcoidosis ‘Warrior’

April 9th, 2020|Categories: The Right Heart|

Samuel Hall’s pulmonary hypertension (PH) developed nearly a decade after he was diagnosed with sarcoidosis. The inflammatory disease can affect many organs but often causes lung issues and shortness of breath on exertion. Samuel, the inventor of the O2 Safety Strap, considers himself a sarcoidosis warrior. The Springfield, Missouri, resident talks to the Pulmonary Hypertension Association (PHA) to mark Sarcoidosis Awareness Month.

Aubrey Stout: 10 Years Since Diagnosis and Life Is Getting Better

January 30th, 2020|Categories: Archived, The Right Heart|

“I fish, travel, camp and go to festivals. I've come a long way, and I'm proud of myself.” On Jan. 10, 2010, I was told I had idiopathic pulmonary arterial hypertension (PAH). The

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Sydni Burgess (caregiver)

November 26th, 2019|Categories: 30 Years of PHA, Archived, The Right Heart|

My mother fought PH for six years, and it wasn't until I got older that I realized what PH patients truly go through and how much I admire the strength they show every day. My mom is the strongest woman I know. She didn’t look at PH as a downfall, and she never talked negative about what was happening to her body. She faced it head on with a smile on her face, and she knew that she had a family to fight for.

Colleen Brunetti: Reflections on the Power of Telling Your Story

November 29th, 2018|Categories: Advocacy, Archived, Awareness, Community, Featured, Living with PH, News, The Right Heart|

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of

Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

April 26th, 2018|Categories: Archived, Community, Events, Families and Caregivers, Featured, Fundraising Activities, Living with PH, News, Support Groups, The Right Heart|

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

April 10th, 2018|Categories: Archived, Awareness, Community, Diagnosis and Treatment, Events, Families and Caregivers, Featured, Fundraising Activities, Healthcare Professionals, Living with PH, News, Press Release, Support Groups, The Right Heart|

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary

St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily

March 21st, 2018|Categories: Archived, Awareness, Community, Diagnosis and Treatment, Events, Families and Caregivers, Featured, Fundraising Activities, Healthcare Professionals, Living with PH, News, Press Release, Support Groups, The Right Heart|

St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy person. At age 39, she

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

March 7th, 2018|Categories: Advocacy, Archived, Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Healthcare and Insurance, Healthcare Professionals, Living with PH, News, Support Groups, The Right Heart|

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents,

How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison

March 1st, 2018|Categories: Archived, Awareness, Community, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms, she is living her best

The Barefoot Movement: PHighting for a Cure for Jackson

January 11th, 2018|Categories: Archived, Awareness, Community, Families and Caregivers, Featured, Fundraising Activities, Living with PH, News, Support Groups, The Right Heart|

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a

Living and Breathing through PH – and Hurricane Maria

December 21st, 2017|Categories: Community, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

by Luis Cortes I was born in 1976 and raised on the beautiful island of Puerto Rico with a congenital heart defect called, Tetralogy of Fallot. Since no open heart surgeries were done on

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The Right Heart Video Series: Kerry Babylon

December 14th, 2017|Categories: Community, Families and Caregivers, Featured, Living with PH, News, Support Groups, The Right Heart|

Kerry Babylon is living her best life with PH. In this video post from PHA's The Right Heart blog series, she talks about traveling with PH and the importance of family. Kerry recently starred in a

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Jaxon’s Story: The Highlight of Our Day Every Day

December 2nd, 2017|Categories: Archived, Community, Families and Caregivers, Featured, Living with PH, News, Support Groups, The Right Heart|

Temi and Lance Jones welcomed a beautiful baby boy named Jaxon into their lives in July of 2016.  He was healthy, and they never had any cause for concern until the

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Darby Hetrick: “I Don’t Let PH Hold Me Back”

November 30th, 2017|Categories: Archived, Community, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

By Darby Hetrick I am 20 years old and I have Pulmonary Hypertension. I have had PH since I was two years old. Yes, there were some hard times, but I never let it

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My Return to Gardening After CTEPH

November 30th, 2017|Categories: Archived, Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Living with PH, News, Support Groups, The Right Heart|

Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension (PH) associated with pulmonary embolism (PE), a life-threatening blood clot that usually forms in a vein deep in the legs and travels to the

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Shavini’s Story: “I Don’t Worry About What I Have No Control Of”

November 30th, 2017|Categories: Archived, Community, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

Shavini Fernando, 35, talks about her pulmonary arterial hypertension (PAH) diagnosis two years ago and her journey to the United States from Sri Lanka in search of better care and treatments. Since being diagnosed,

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Support Group Leader Bill Kolms’ CTEPH Story

November 27th, 2017|Categories: Archived, Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Living with PH, News, Support Groups, The Right Heart|

Bill Kolms was initially told that he was just getting older and needed to exercise more before he sought additional information about his symptoms. He ultimately determined that he had a type of pulmonary hypertension

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Passion to Profession: Following My Mother’s Faith and Tenacity

November 21st, 2017|Categories: Archived, Community, Families and Caregivers, Featured, Healthcare and Insurance, Healthcare Professionals, Living with PH, News, The Right Heart|

By Kimberly Mosley It was the summer of my senior year of high school. I remember the doctor coming into the room and diagnosing my mother with pulmonary hypertension (PH). It was something that

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The Right Heart Video Series: Dancing My Way Through Pulmonary Hypertension

November 8th, 2017|Categories: Archived, Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Healthcare and Insurance, Living with PH, The Right Heart|

By Jesus Cornejo Last weekend it was the Homecoming Dance in my High School. My date dumped me, but nothing would ruin the occasion. I wore a suit, a nice shirt, and bowtie.

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My “Pre-Existing Condition” Started at Birth – How I Fight for Access to Care

November 8th, 2017|Categories: Advocacy, Archived, Awareness, Community, Families and Caregivers, Featured, The Right Heart|

By Bobby Hall About Bobby Hall: Bobby Hall is a social media influencer and activist who lends his voice to raising awareness for pulmonary hypertension. He also works for Project Angel Food, an organization

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The Right Heart Video Series: Darby’s Story

November 3rd, 2017|Categories: Archived, Awareness, Community, Families and Caregivers, Featured, Healthcare Professionals, Living with PH, News, The Right Heart|

Darby Hetrick was diagnosed with pulmonary hypertension (PH) when she was only 2 years old. She needed to be on a life-sustaining, I.V. infused medication 24/7, and eventually was able to move to

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Two Lives Turned Upside Down in Ohio

November 2nd, 2017|Categories: Advocacy, Archived, Awareness, Community, Families and Caregivers, Featured, Living with PH, The Right Heart|

By Amy Brady I have pulmonary arterial hypertension (PAH). Like many living with the disease, I take several medications. Thankfully, my doctor was able to keep my PAH controlled with oral medications. My daughter isn't

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More Than a Spectator: Living My “New Normal” With PH

October 12th, 2017|Categories: Archived, Awareness, Community, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

By Tami Arnold Most people don’t realize I’m sick. It’s not something you could guess by looking at me. When I was diagnosed with PH in 2008, I really didn’t think it was that

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This Is Your Journey: Lessons in Transitioning from Pediatric to Adult PH Care

October 12th, 2017|Categories: Archived, Awareness, Community, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

By Becca Atherton I was diagnosed at birth with complex congenital heart disease that caused me to develop pulmonary hypertension. Now 24 years old, I’m transitioning from pediatric PH care to an adult facility.

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Family Rallies Around Child Living With PH: Everybody Deserves the Dream of “When I Grow Up…”

October 4th, 2017|Categories: Archived, Awareness, Community, Events, Families and Caregivers, Featured, Fundraising Activities, Living with PH, News, The Right Heart|

In Haylee's first year of life she was on the exact growth chart as her older sister, but was hit with several respiratory illnesses. As she grew older, some of her milestones were delayed

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Coming Full Circle: A Filmmaker’s Journey

September 28th, 2017|Categories: Archived, Awareness, Community, Families and Caregivers, Featured, Living with PH, News, Support Groups, The Right Heart|

By Robert Nyerges Although it seems like just yesterday, nearly ten years have gone by since the passing of my mother, Helena Strauch. Neither my mother or myself knew a lot about her rare

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Travel by Train: My 1,200 Mile PH Adventure

September 27th, 2017|Categories: Archived, Community, Families and Caregivers, Featured, Living with PH, News, Support Groups, The Right Heart|

By Barbara Holden People living with PH often have special travel considerations that require extra planning. The quickest route – flying – isn’t always an option. Sometimes the choice to not travel by airplane

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My Husband’s Unexplained Illness and PH Diagnosis

September 20th, 2017|Categories: Archived, Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Living with PH, News, The Right Heart|

By Arianne Rohmann My active thirty-year-old husband was diagnosed with pulmonary hypertension (PH) and bi-lateral blood clots after experiencing unexplained symptoms for months… Five months later I was a 29-year-old widow raising a four-

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Inadequate Coverage Nearly Cost Me My Life

September 19th, 2017|Categories: Advocacy, Archived, Awareness, Community, Diagnosis and Treatment, Families and Caregivers, Featured, Living with PH, The Right Heart|

By Sharon Thomas I had health care coverage when I found out I needed a life-saving heart and lung transplant for a disease called pulmonary hypertension. However, my insurance denied the treatment I needed.

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