Toolkit 2018-11-09T21:07:27+00:00

Toolkit

Join the Pulmonary Hypertension Association in promoting Pulmonary Hypertension Awareness Month. PHA has assembled this toolkit to assist you in increasing awareness of pulmonary hypertension during the month of November.

Social Media Profile and Cover Photos

Click image to open full size

Facebook Cover

Add this banner to your Facebook profile to show you have The Right Heart to spread awareness of PH!

Caption: I just updated my Facebook cover photo because I have The Right Heart to spread awareness of pulmonary hypertension (PH)! Visit www.phassociation.org/therightheart for all Pulmonary Hypertension Awareness Month events and information.

Facebook Profile Photo

Add PHA’s Facebook Frame to my profile picture.

Instructions for adding a Facebook Frame (PDF)

Caption: I just added PHA’s Facebook Frame to my profile picture because I have The Right Heart to spread awareness of pulmonary hypertension (PH)! Visit www.phassociation.org/therightheart for all Pulmonary Hypertension Awareness Month events and information.

Twitter Profile Photo

Upload this photo as your Twitter profile picture to show you have The Right Heart to spread awareness of PH!

Twitter Cover

Add this banner to your Twitter profile to show you have The Right Heart to spread awareness of PH!

Instagram Cover

Add this banner to your Instagram page to show you have The Right Heart to spread awareness of PH!

Sample Social Media Posts

Want to join the conversation? Use these sample social media posts on your Facebook, Twitter, Instagram, or LinkedIn, to show you have The Right Heart to spread awareness of PH!

General

  1. November is Pulmonary Hypertension Awareness month and I am living my best life with PH! I have #TheRightHeart to…(sing, dance, travel, draw, exercise, work, etc.)
  2. November is Pulmonary Hypertension Awareness Month! Pulmonary Hypertension (PH) is a progressive, often misdiagnosed and deadly disease that affects all ages. Common symptoms include breathlessness, fatigue, dizziness, fainting, chest pain and swelling in the arms and legs. I have #TheRightHeart to spread awareness of PH!
  3. November is Pulmonary Hypertension Awareness Month! What is Pulmonary Hypertension (PH)? Find out more here: www.phassociation.org/therightheart #TheRightHeart

Advocacy

  1. Do you have #TheRightHeart to advocate? On November 8, use @phassociation ‘s Advocacy Action Center resources to call, write or visit your elected officials and educate them about the needs of the PH community. www.phassociation.org/therightheart
  2. You can help improve the lives of those living with pulmonary hypertension (PH) if you have #TheRightHeart. Share your unique PH story with elected officials. Join @phassociation Thursday, Nov. 8, for National PH Day of Action. www.phassociation.org/therightheart
  3. While you’re raising awareness of pulmonary hypertension (PH) this November, don’t forget your members of Congress! Turn your elected officials into PH allies. The National PH Day of Action is Nov. 8. Make your voice is heard using @phassociation ‘s Advocacy Action Center: www.phassociation.org/therightheart #TheRightHeart

CTEPH

  1. Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension (PH) caused by clots in the lungs (pulmonary embolism). One in 25 of the 600,000 people who suffer a pulmonary embolism each year could develop CTEPH. www.phassociation.org/therightheart #TheRightHeart #CTEPHAwarenessDay
  2. Pulmonary embolism (PE) survivors with continued symptoms after 6 months of treatment should be evaluated for chronic thromboembolic pulmonary hypertension (CTEPH). Learn more about CTEPH here: www.phassociation.org/therightheart #TheRightHeart #CTEPHAwarenessDay
  3. Chronic thromboembolic pulmonary hypertension (CTEPH)is caused by chronic blood clots in the lungs that become scar-like tissue blocking or narrowing the pulmonary arteries. A pulmonary thromboendarterectomy (PTE) procedure is typically performed to remove the clots that form in the lungs. #TheRightHeart #CTEPHAwarenessDay

Fundraising

  1. Raising money for @phassociation funds pulmonary hypertension (PH) programs and research that helps save lives. Do you have #TheRightHeart to become a virtual fundraiser? Join others across the country by creating a fundraising campaign for Pulmonary Hypertension Awareness Month. www.phassociation.org/therightheart
  2. PHA supports people living with all forms of pulmonary hypertension (PH), their families and caregivers, and their health care teams. Learn more about PH and what @phassociation is doing to support the PH community and find a cure at www.phassociation.org/therightheart #TheRightHeart
  3. If you’re reading this right now, you should become a PHA member! Learn more about the benefits of being a member and how to join our vibrant community of people who understand the challenges of pulmonary hypertension (PH) here: www.phassociation.org/therightheart #TheRightHeart

Related Diseases

  1. If you have___ you have a greater risk of developing pulmonary hypertension (PH). Talk to your primary care physician about the risk factors associated with ___ and PH. #TheRightHeart
  2. Breathlessness, fatigue, dizziness, fainting. These are common symptoms of pulmonary hypertension (PH), but it is often misdiagnosed as Asthma. Talk to your doctor if you experience worsening of respiratory symptoms after receiving comprehensive asthma treatment. www.phassociation.org/therightheart #TheRightHeart

To Share With Others

Downloadable Fliers to Print or Email

   

Download these fliers and share with everyone you know to show you have The Right Heart spread awareness of PH!

PH Facts Wallet Card

Order this free wallet card that includes quick facts about pulmonary hypertension you can use to spread awareness of PH!

Add a Banner to Your Email

Add this banner to your emails this month to show you have The Right Heart to spread awareness of PH! Include the link https://phassociation.org/therightheart/.

Reach Out to Your Local Media Using Our Customizable Press Release

Fill in the center of our customizable press release with some information about yourself and your relationship with PH and send it to your local newspaper.

Advocacy Tools to Raise Awareness

Online Tools for Fundraising

Share Your Story

Pulmonary Hypertension Awareness Month Resources

2018 Awareness Month
Toolkit
The Right Heart Blog
Share Your Story
CTEPH Awareness Day
Events
About PH
Fundraise
Advocate

We have The Right Heart to share…on The Right Heart Blog.

Living with a serious and rare diagnosis like pulmonary hypertension (PH) can be isolating. The PHA community is a network where people can connect with others who aren’t just living with PH, they’re living their best lives. People with PH are more than their illness, with hopes, goals and experiences that are rich and inspiring. Friends, family, caregivers, health care providers and other supporters who have been inspired to add their voices to the fight against PH are part of this network, too. Together, the PHA community has the right heart for adventure, altruism, community and caring. Read more and share your story.

“I am writing this to serve as a warning to others to watch for PH symptoms.”

Read the latest post on The Right Heart blog.