The high cost of pulmonary hypertension (PH) treatment was top of mind in 2022, according to the highest-clicked stories in PHA News this year. At least three stories in our top 15 addressed financial assistance and medical bills, including “6 Sources of Financial Assistance,” the most popular PHA News article this year.

Other stories that caught your attention were about the deaths of long-time PH advocates. Our tribute to Rino Aldrighetti, the first employee of the Pulmonary Hypertension Association (PHA) and later its first CEO, was our second most popular article of 2022.

Another common theme was reconnecting with the community/return to normalcy, including stories about our PHA 2022 conference, support groups and fundraising events. We’ve included links to the other top stories, not in order, in case you missed them the first time around:

6 Sources of Financial Assistance for PH Therapy

Do the high costs of treatment prevent you from receiving treatment you need? The best solution for you depends on the kind of insurance you have, the type of medication you take and availability of financial assistance resources.

Remembering Rino Aldrighetti

With great sadness, the Pulmonary Hypertension Association announces the death of Rino Aldrighetti, who led PHA for nearly two decades. Rino, who died May 30, was the first PHA employee, hired in 1999 as part-time executive director. He soon became full-time and later was promoted to president and CEO. He retired in 2016.

Countdown to PHA 2022: Travel Tips

After a four-year wait, PHA 2022 is two weeks away. Our International PH Conference and Scientific Sessions returns June 10-12 in Atlanta. As you plan your schedule, don’t forget to consider pulmonary hypertension-related travel considerations.

Lead a Support Group in Your Area

The Pulmonary Hypertension Association is looking for volunteers to lead support groups. By becoming a support group leader, you will join a nationwide team of volunteers who are passionate about supporting, educating and empowering the pulmonary hypertension community.

How PHA 2022 Reconnected the PH Community

After a four-year wait, the pulmonary hypertension (PH) community gathered in Atlanta for PHA 2022 International PH Conference and Scientific Sessions. Read our wrap-up, see pictures and watch an emotional, bring-down-the-house performance from Stephen Carter-Hicks.

O2breathe Fundraising Walks Return

The Pulmonary Hypertension Association (PHA)’s O2breathe fundraising walks have returned in-person for the first time since 2019. The PH community has come together this spring to raise money for PHA programs and services. Read about the events in Northern Virginia, Southern California and Tampa, Florida.

Participate in the PHA 2022 Fashion Show

Show how you dress up or conceal your infusion pumps/tubes or portable oxygen canisters at the PHA 2022 fashion show. The June 11 event is a popular feature of the Pulmonary Hypertension Association’s biannual International PH Conference and Scientific Sessions.

Former PHA Ambassador Dies of Cancer

Traci Braxton, who served as a 2017 Pulmonary Hypertension Association (PHA) celebrity champion, died March 12 of esophageal cancer. The cause was important to Traci because three family members have diseases related to PH, including her sisters Toni and Tamar, and her son.

New Protections Against Surprise Medical Bills Now in Place

The No Surprises Act took effect Jan. 1, thanks to the pulmonary hypertension and rare disease communities. The law applies to people with employer-provided or individual health insurance, such as marketplace plans. It protects them from being billed for out-of-network care in situations where they can’t choose providers, such as emergency care.

PHA Offers Copay Assistance Resource Center

This year is off to a difficult start for people who seek financial assistance for pulmonary hypertension (PH) treatment. For much of December and January, PH copay assistance grants have been closed. The Pulmonary Hypertension Association is monitoring the funds daily and will notify the community when the funds reopen.