The Pulmonary Hypertension Association (PHA) joins Cure HHT in June to promote HHT awareness Month.

Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder that causes blood vessel abnormalities. The abnormalities usually result in excessive bleeding, known as hemorrhaging. About 13 percent of people with HHT have at least mildly elevated pulmonary artery pressures, which usually is caused by high output heart failure or through a gene mutation that causes HHT-associated pulmonary arterial hypertension.

Throughout June, PHA will use social media to spread awareness of the importance of detection and treatment of HHT for those with PH. We’re continuing to spread awareness by sharing stories of those whose lives have been impacted by HHT and PH.

Read their stories:

Could HHT Cause Your PH? It Did for Jessica Kiser

Hereditary hemorrhagic telangiectasia runs in Jessica Kiser’s family, so she knew from a young age that it likely was the cause of her frequent nosebleeds. But she didn’t know that it could cause pulmonary hypertension until she was an adult. Read Jessica’s story.

Riley: An Amazing PHighter

Through Riley’s pulmonary hypertension diagnosis, Riley’s parents discovered that she also had HHT. With her HHT diagnosis, they learned she has a rare form of HHT that was idiopathic. Read Riley’s story.

Please share your connection with HHT and PH. Submit your story to PHA’s Right Heart Blog.