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PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

COVID-19 FAQ for People with PH
PHA Connects: Health and Wellness Series
Therapy Access and Funding Assistance
Videos to Help You Start a Home Exercise Routine

Ways to Connect Virtually: Support Groups and More
PH Community Making Masks: Learn How!
Resources for HCPs
COVID-19 in the News

Get Ready for Our Open Enrollment Webinars in October

Get your questions on insurance and Medicare answered in our PHA Live webinars on open enrollment. The webinar series begins Oct. 6 and continues every Thursday in October. Danielle Burkett, C.M.A, of Duke University, will present two webinars on Medicare and participate in the final Q&A session with PHA’s Jaeger Spratt, M.S.W., who also will present the first session.

Former Teacher Finds Meaning as Support Group Leader

Becoming a support group leader has added meaning to Les Freeman’s life. The former teacher says being a support group leader is much like preparing lessons: He tries to blend education along with socialization. Les, who leads the Central Oregon PHA Support Group with his wife Michele, shares his story with the Pulmonary Hypertension Association’s Right Heart Blog.

Act Now: Protect the PH Community from Discrimination

You have an opportunity to increase protections against health care discrimination. Submit your comments to the Health and Human Services Department about a proposed update to the Affordable Care Act. The change would expand protections based on race, ethnicity, language, age, disability and sex, including pregnancy, sexual orientation and gender expression.

How to Prepare for Power Outages and Other Emergencies

Many people in the pulmonary hypertension community are preparing for power outages related to Hurricane Ian. If you’re in the path of a hurricane or other disaster, make sure you’re prepared for disruptions to utilities, medication and other supplies with the Pulmonary Hypertension Association’s disaster-readiness resources.

Spotlight on Support Groups

With some Pulmonary Hypertension Association support groups shifting from virtual to hybrid or in-person meetings, support group members have come up with creative ways to reconnect. Learn what support groups in Chicago, Los Angeles and Minneapolis-St. Paul, are doing to build connections.

Regional Workshop Brings PH Education to Kentucky

More than 70 members of the pulmonary hypertension (PH) community gathered Sept. 17 in Louisville, Kentucky, for PHA On the Road. The free, daylong workshop provided patients, caregivers, family members, health care professionals and industry sponsors with timely information about living with and managing pulmonary hypertension (PH).

Save 20% on PHA Professional Membership

Health care professionals: Save 20% when you become a new Pulmonary Hypertension Association professional member before Nov. 30. By joining our membership network, you can help improve quality of life and care for people with pulmonary hypertension. Our professional members include physicians, nurse practitioners, researchers and other allied health professionals.

CEO Update: Annual Report Reflects Patient-Focused History and Future Impact

The Pulmonary Hypertension Association Annual Report 2021 is now online. The report reflects PHA’s achievements during the second year of the pandemic, the support of our members and selfless efforts of our volunteers. For the first time, PHA’s annual report is solely digital – and interactive. Although the format is new, the report acknowledges PHA’s proudly patient-focused, patient-driven history – and its impact and momentum into the future.

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PHA Annual Report 2021

6 Sources of Financial Assistance for PH Therapy

Do the high costs of treatment prevent you from receiving treatment you need? The best solution for you depends on the kind of insurance you have, the type of medication you take and availability of financial assistance resources.

PHA News, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.