PULMONARY HYPERTENSION ASSOCIATION NEWS
PH and COVID-19: Visit PHA’s Online Resources
- COVID-19 FAQ for People with PH
- PHA Connects: Health and Wellness Series
- Therapy Access and Funding Assistance
- Videos to Help You Start a Home Exercise Routine
- Ways to Connect Virtually: Support Groups and More
- PH Community Making Masks: Learn How!
- Resources for HCPs
- COVID-19 in the News
Advisory: Reproductive Health and Pulmonary Hypertension
Pregnancy is considered high risk for people with pulmonary hypertension because their heart and lungs can’t easily adjust to the demands of pregnancy and childbirth.
O2breathe Fundraising Walks Return
The Pulmonary Hypertension Association (PHA)’s O2breathe fundraising walks have returned in-person for the first time since 2019. The pulmonary hypertension (PH) community has come together this spring to raise money for PHA programs and services. Read about the events in Northern Virginia, Southern California and Tampa, Florida.
PHA Participates in Event to Educate European Policymakers About PH
The Pulmonary Hypertension Association Europe recently shared its updated call to action, “Unmet Needs of Patients with Pulmonary Hypertension – 2022” with the European Parliament. The call to action, which launched in 2012, states the importance of sharing PH knowledge across geographic boundaries. PHA CEO Matt Granato attended.
PHA Registry Enrollment Reaches 2,022 in 2022
Enrollment in the Pulmonary Hypertension Association Registry (PHAR) has surpassed 2,000 participants. The registry includes data from patients at more than 80 PHA-accredited PH Care Centers. The data represents demographic characteristics, diagnosis and treatment information, and quality-of-life metrics.
Dancing Through Life with PH
Pam Vinesett of North Carolina served three years of active duty and 17 years in the army reserves. The mother of seven and grandmother of eight enjoys swimming, fishing and tubing with her husband. In 2014, she noticed shortness of breath and other pulmonary hypertension symptoms. Since her eventual diagnosis and other health challenges, she is doing well and teaches four to six Zumba classes a week.
Give Hope to the PH Community
Marcie McGregor treasures every opportunity to wrap her arms around her granddaughters. After her pulmonary arterial hypertension (PAH) diagnosis in 2012, she didn’t think she’d live to see grandchildren. Marcie shares how the Pulmonary Hypertension Association (PHA) helped through every step of PH journey through its resources, support group and biennial conference. Her story is a reminder that when you give to PHA, you’re giving people with PH hope for the future.
Act now: Urge Congress to Increase NIH Research Funding
Congress is already working on the budget for fiscal year 2023. That’s why it’s important to ask lawmakers now to increase investment in the National Institutes of Health (NIH). Increased funding will ensure life-saving research can continue.
PHA Offers New Research Grant
The Pulmonary Hypertension Association (PHA) is accepting applications for its new Innovation Research Award. The award supports new areas of pulmonary hypertension research that couldn’t have been explored without PHA funding. Any areas of innovative pulmonary hypertension research will be accepted. Up to $60,000 a year for two years is available.
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Tuesday, May 24, 11:00 AM - 12:00 PM EDT
Tuesday, May 24, 6:00 PM - 7:00 PM CDT
Tuesday, May 24, 8:00 PM - 9:00 PM EDT
Wednesday, May 25, 8:00 PM - 9:00 PM EDT
Thursday, May 26, 12:00 AM - 12:00 AM EDT
Thursday, May 26, 8:00 PM - 9:00 PM EDT
Saturday, June 4, 11:00 AM - 12:30 PM EDT
Saturday, June 4, 12:00 PM - 2:00 PM EDT
Saturday, June 4
Wednesday, June 22
Saturday, August 27
Patient-to-Patient Support Line: 1-800-748-7274
The latest PH and PHA news and events, on the web and in your inbox each week.
Free educational resources for PH patients and families.
Connect with other patients and caregivers online or by phone.
