PULMONARY HYPERTENSION ASSOCIATION NEWS
PHA’s Statement on National Budget Bill
The Pulmonary Hypertension Association is concerned about the impact of the recently passed legislation, HB 1, on our PH community. PHA remains committed to advocating on a nonpartisan basis for the health and wellbeing of individuals living with pulmonary hypertension and their caregivers.
Learning To Live in the Moment in Oregon
Elizabeth Freyr was born with a congenital heart defect in 1991. Thirty years later, she learned she had pulmonary arterial hypertension. Since her PH diagnosis, she’s learned to be courageous, live in the moment and put herself first.
Live in the Denver Area? Sign up for our Next PH Community Workshop
Registration is open for the Pulmonary Hypertension Association’s free PH Community Workshop in Denver on Saturday, Aug. 23. The event will address topics related to adult and pediatric PH. “Knowledge is power,” says workshop co-chair Todd Bull, director of the pulmonary vascular disease program at the University of Colorado. “I am excited to share the exciting new direction of treatments for patients with pulmonary hypertension.”
Journal Addresses PHA 2024 Scientific Sessions
The latest issue of Advances in Pulmonary Hypertension provides an overview of scientific discussions that took place at PHA 2024 International PH Conference and Scientific Sessions. Advances is the Pulmonary Hypertension Association’s quarterly peer-reviewed clinical journal.
PHA Receives $50K Gift to Boost Pediatric Research
Matthew’s Gift, a private family foundation in Florida, donated $50,000 to the Pulmonary Hypertension Association. The donation will fund PHA’s pediatric research grants. The foundation is named for Matthew Gable who battled PH until age 5. It provides financial assistance to families with complex medical needs.
Play Trivia for a Cause at PHA’s Symposium
PH-treating health care professionals: Join us Saturday, Sept. 19, for the return of Trivia Night at PHA’s Pulmonary Hypertension Professional Network Symposium. All proceeds of Trivia Night benefit PHA’s Conference Scholarship Fund, which provides financial assistance for people with PH and their caregivers to attend PHA 2026 (June 11-14 in Dallas.)
Content Creator Exceeds Expectations to Thrive at 30
Amy Earnest was diagnosed with pulmonary arterial hypertension shortly after she was born in 1994. Since then, she’s learned the importance of choosing the right doctor and advocating for herself. Earnest, of East Moline, Illinois, shares her story to spread awareness and connect with others. ‘I know I’m here for a purpose and want to live every day to the fullest.’
PHA’s Statement on National Budget Bill
The Pulmonary Hypertension Association is concerned about the impact of the recently passed legislation, HB 1, on our PH community. PHA remains committed to advocating on a nonpartisan basis for the health and wellbeing of individuals living with pulmonary hypertension and their caregivers. Read the statement.
How We Protect the Privacy of PHA Registry Participants
The Pulmonary Hypertension Association is reminding participants in the PHA Registry about the steps it takes to keep your information safe and private. Learn more about how the PHA Registry protects your data.
Patient-to-Patient Support Line: 1-800-748-7274
The latest PH and PHA news and events, on the web and in your inbox each week.
Free educational resources for PH patients and families.
Connect with other patients and caregivers online or by phone.
