PULMONARY HYPERTENSION ASSOCIATION NEWS
Join Us in Celebrating World PH Day
Please join PHA in observing World Pulmonary Hypertension Day on May 5. World PH Day is a global effort to raise PH awareness. Led by PHA Europe, this year’s campaign “Sometimes it’s Pulmonary Hypertension,” draws attention to the challenges of getting an accurate diagnosis. The campaign brings together people from around the world to shed light on the frustrating, frightening journey patients experience before hearing “It’s PH.”
Volunteer Takes on International Care Disparities
As the moderator of a PHA Facebook group, Janessa Curnow, 38, receives requests to join the group from people all over the world. For World Pulmonary Hypertension Day on May 5, Curnow shares what she’s learned from the international PH community. Curnow leads the PHA Young Adult Support Group and previously led the PHA Grand Rapids Support Group in Michigan.
Piper With PH Marches Onward
Carole Doody's passion, playing the bagpipes, saved her life. When she no longer could play the right tones or march, Doody knew something was wrong. Fifteen years after her PH diagnosis, the retired speech-language pathologist volunteers for PHA. She shares her story in honor of National Volunteer Week, which wraps up April 26.
Workshop Speakers, Support Groups Inspire Attendees
More than 80 people attended PHA’s PH Community Workshop March 22 in Charlotte, North Carolina. Diane Ramirez, who had PH for 36 years before a heart-lung transplant, shared her story in the keynote address. “Meeting and hearing from Diane was inspiring,” says Barbara Stubbs, leader of the PHA Upstate South Carolina Support Group. “Her enthusiasm for life was contagious.”
PHA Launches Certificate for Advance Practice Providers
Enrollment is now live for PHA’s PH Certificate Program for advanced practice providers. Advanced practice providers include nurse practitioners, pharmacists and physician associates and allied health professionals who can prescribe medicine.
Transplant Recipient Aids Research Through Own Gift
Lauri Stanfield of Tomball, Texas, received the gift of life in 2015 through a double lung transplant – and gave life by donating parts of her lungs for research. Stanfield, who works in the oil industry, likes to try new things and is weighing whether to learn pickle ball.
Making a Splash With Subcutaneous Therapy
Tiffani Brown was dismayed to give up water activities when she started subcutaneous treprostinil therapy in 2020. Since then, she worked with her pulmonary hypertension nurse Debbie Kittel to find a way to keep her site dry while swimming and showering.
Celebrating World PH Day
Please join PHA in observing World Pulmonary Hypertension Day on May 5. World PH Day is a global effort to raise PH awareness. Led by PHA Europe, this year’s campaign “Sometimes it’s Pulmonary Hypertension,” draws attention to the challenges of getting an accurate diagnosis.
Volunteer Takes on International Care Disparities
As the moderator of a PHA Facebook group, Janessa Curnow receives requests to join the group from people all over the world. For World Pulmonary Hypertension Day on May 5, Curnow shares what she’s learned from the international PH community.
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