PULMONARY HYPERTENSION ASSOCIATION NEWS
How PHA Spread Awareness in November
Throughout November, the Pulmonary Hypertension Association shared the stories of people who “Live PHearlessly” to raise awareness of pulmonary hypertension. More than 30 people with PH participated, including Esther Liu, Wendy McBride and Jamie Mykins. Others, such as Amy Burant and Nancy Zeppa, advocated for improved oxygen access by sharing their experiences. See their stories.
Summit Explores Ways to Improve Care Access, Research for Underserved Communities
A recent associated disease summit brought together the rare disease community to discuss challenges in increasing disease awareness and clinical trials participation among underserved communities. The summit, organized by the Pulmonary Hypertension Association, included representatives from 34 organizations.
PH Professionals: Share Your Expertise at PHA 2024
The Pulmonary Hypertension Association is accepting abstract and speaker proposals for PHA 2024 International PH Conference and Scientific Sessions, Aug. 15-18, 2024, in Indianapolis. Submit your proposals by Jan. 19, 2024. Learn more.
Support Group Leaders Discuss 2024 Plan
PHA’s Support Group Leader Advisory Board recently convened in-person for the first time in-person since 2019. The advisory board met Nov. 5 in Washington, D.C., where members discussed support group programming for PHA 2024 International PH Conference and Scientific Sessions, as well volunteer training and appreciation. Learn more.
Thank You for Your Generosity on GivingTuesday
Your GivingTuesday investment in our mission made a big impact. Together, we raised more than $85,000 through 180 individual donations and a $35,500 matching gift from PHA’s Kitchen Table Society. Learn more.
Learn How PH Associations Have Enhanced Patient Care
Pulmonary Hypertension Association CEO Matt Granato is among the speakers in the next Alliance for Pulmonary Hypertension webinar. The webinar is set for 12:30 p.m. EST Tuesday, Dec. 12. The webinar will provide a historical overview of pulmonary hypertension-related associations and their role in patient care and support. Learn more.
4 Stories of Living PHearlessly Around the World
As we celebrate Pulmonary Hypertension Awareness Month, we’re sharing the stories of people who commit to “Live PHearlessly” with pulmonary hypertension. In this issue, we focus on people from Australia, England, Nigeria and Spain. Read their stories.
Now Online: PHA Journal Focuses on Group 2 PH
The latest issue of Advances in Pulmonary Hypertension addresses Group 2 pulmonary hypertension, the most common cause of PH in the developed world. Caused by left heart disease, Group 2 PH has many diagnostic and therapeutic challenges. Learn more.
Fundraising Walks Wrap Up Until 2024
As Pulmonary Hypertension Awareness Month winds down, PHA is grateful for the support it receives through fundraising events, such as three O2breathe walks that took place in November. The walks were the last three of this year, but we look forward to more in 2024. Read more.
Now Online: PHA Journal
Focuses on Group 2 PH
The latest issue of Advances in Pulmonary Hypertension addresses Group 2 pulmonary hypertension, the most common cause of PH in the developed world. Caused by left heart disease, Group 2 PH has many diagnostic and therapeutic challenges. Learn more.
Navigating PH Now Available in Spanish
The Pulmonary Hypertension Association announces the publication of “Navegando las Aguas de la Hipertension Pulmonar: Guía para pacientes recién diagnosticados.” The 60-page book includes the same valuable information as the English version, “Navigating Pulmonary Hypertension: A Guide for Newly Diagnosed Patients.” The book helps readers understand PH, disease management, treatment options, diagnostic tests and more. Learn more.
PHA News, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Wednesday, December 13, 6:00 PM - 7:30 PM EST
Wednesday, December 13, 8:00 PM - 9:00 PM EST
Thursday, December 14, 11:00 AM - 12:30 PM EST
Thursday, December 14, 5:00 PM - 7:00 PM PST
Friday, December 15, 5:30 PM - 6:30 PM PST
Saturday, December 16, 2:00 PM - 4:00 PM PST
Tuesday, December 19, 6:30 PM - 8:00 PM EST
Tuesday, December 19, 8:00 PM - 9:00 PM EST
Thursday, December 14
Thursday, August 15
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