PULMONARY HYPERTENSION ASSOCIATION NEWS
Content Creator Exceeds Expectations to Thrive at 30
Amy Earnest was diagnosed with pulmonary arterial hypertension shortly after she was born in 1994. Since then, she’s learned the importance of choosing the right doctor and advocating for herself. Earnest, of East Moline, Illinois, shares her story to spread awareness and connect with others. ‘I know I’m here for a purpose and want to live every day to the fullest.’
Preparing for the Unpredictable
RoxAnna Blackwell of Calhoun Falls, South Carolina, is an educator and mother of one son. Blackwell enjoys spending time with family and friends, good food and traveling. She originally shared her Hurricane Helene experience in Pathlight, PHA’s quarterly member magazine.
PHA Leads Advocacy on In-Flight Portable Oxygen Concentrators
The Pulmonary Hypertension Association is leading a multi-organization effort to make sure people can fly with supplemental oxygen. PHA has requested meetings with the Federal Aviation Administration and Department of Transportation and continues to meet with members of Congress.
Symposium to Feature Session on Foundation of Successful Care Team
Health care professionals: As you plan for PHA’s PH Professional Network Symposium, consider attending a featured session on multidisciplinary care teams. Speakers from four PHA-accredited PH Care Centers will discuss how they manage multidisciplinary teams, address challenges and support growth and development of their teams. The PH Professional Network Symposium runs from Sept. 18 through 20, in Seattle.
Spring O2breathe Walks Raise More Than $130K
Thanks to the support of the pulmonary hypertension community, six PHA O2breathe walks raised more than $130,000 to support PHA’s programs and services.
‘Medicaid is a Lifeline for Many of my Patients’
The Medicaid program is under threat in Congress. The budget bill could end health care benefits for nearly 11 million people. The bill also includes burdensome requirements that could restrict Medicaid eligibility. “[Medicaid] makes the difference between patients having access to care or going without,” says Kassandra Olgers, a PHA advocate and physician assistant at West Virginia University.
Share Your Ideas for the PHA 2026 Conference Theme
Help PHA come up with a theme for PHA 2026 International PH Conference and Scientific Sessions. Your idea could become the official conference theme. Enter by June 25 for a chance to win two free conference registrations, a $50 Amazon gift card, PHA swag and unlimited bragging rights.
PHA’s Statement on National Budget Bill
The Pulmonary Hypertension Association is concerned about the impact of the recently passed legislation, HB 1, on our PH community. PHA remains committed to advocating on a nonpartisan basis for the health and wellbeing of individuals living with pulmonary hypertension and their caregivers. Read the statement.
PHA Leads Advocacy on In-Flight Portable Oxygen Concentrators
The Pulmonary Hypertension Association is leading a multi-organization effort to make sure people can fly with supplemental oxygen. PHA has requested meetings with the Federal Aviation Administration and Department of Transportation and continues to meet with members of Congress.
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