PULMONARY HYPERTENSION ASSOCIATION NEWS
PH and COVID-19: Visit PHA’s Online Resources
- COVID-19 FAQ for People with PH
- PHA Connects: Health and Wellness Series
- Therapy Access and Funding Assistance
- Videos to Help You Start a Home Exercise Routine
- Ways to Connect Virtually: Support Groups and More
- PH Community Making Masks: Learn How!
- Resources for HCPs
- COVID-19 in the News
Enter the PHA 2022 Theme Contest
Help the Pulmonary Hypertension Association (PHA) come up with a theme for PHA 2022 International PH Conference and Scientific Sessions. If PHA chooses your idea, you could win a $25 Amazon gift card, a one-year PHA membership and PHA swag. PHA 2020 begins a year from today in Atlanta. The contest closes Wednesday, June 30, so enter today. We will announce the winner by July 31.
Family Affair: 30 Years of Volunteering
Terry and Tom McGraw are among the families who have lived with pulmonary hypertension (PH) for many years – in their case, decades. In the early 1990s, when Terry was diagnosed, little information was available about PH, and the McGraws didn’t find the fledgling Pulmonary Hypertension Association (PHA) for about five years. Initially, they got involved to find answers and eventually became volunteers and fundraisers. The McGraws initially shared their story with Pathlight, PHA’s member magazine, in connection with PHA’s 30th anniversary.
Familial PAH Diagnosis Prompts Need to Give Back
Kayla Naecker had classic signs of pulmonary hypertension (PH), a disease that killed her biological grandmother. But Kayla, of Benld, Illinois, didn’t suspect PH. She was in her 20s, and her grandmother’s case was thought to be associated with diet pill use. Genetic testing after a right heart catheterization confirmed familial PAH, so Kayla had her 3-year-old daughter tested, too. Kayla shares her story with the Pulmonary Hypertension Association’s Right Heart Blog for American Family Month.
Act Now: Ask Congress for Permanent Telehealth Access
During the COVID-19 pandemic, Medicare coverage of telehealth services increased. For the first time, people insured by Medicare became eligible for telehealth coverage no matter where they lived. The pandemic changes allowed telehealth visits from beneficiaries’ homes instead of approved telehealth locations.
Registration Open for PHPN Symposium
Allied health professionals: Sign up for the Pulmonary Hypertension Association (PHA) PH Professional Network (PHPN) Symposium, Sept. 30 through Oct. 3. Join your PH colleagues for our first online event to network and earn continuing education credit. This year’s theme is “PHiguring Out the Puzzle: Pieces to Innovative, Patient-Centered Care.” Register by July 7 for the early bird discount.
Generic Treprostinil Injection Available for Subcutaneous Administration
A generic form of Remodulin is available for to treat pulmonary arterial hypertension (PAH) subcutaneously, thanks to a new medication cartridge. The new cartridge became available May 21.
Thankful for Treatment Advancements That Give Hope
Pulmonary hypertension (PH) was no stranger to Albert Wright when she was diagnosed in 2018. Her oldest sister and a niece died from it. But Alberta lives life to the fullest, taking nothing for granted. She leads the Pulmonary Hypertension Association’s Detroit Support Group and administers a PHA Facebook support group page. A full-time teacher’s aide, she shares her PH journey with PHA’s Right Heart Blog for National Family Month in June.
Support the PH Community for Another 30 Years
When Monica Penaranda was diagnosed with PH, she was 16 years old. Thanks to the Pulmonary Hypertension Association (PHA), she found resources to survive and thrive for the past 23 years. “PHA provided the hope I needed to get through the tough days,” she says. Monica, the face of PHA’s 30th anniversary spring fundraising campaign, encourages the PH community to help PHA continue providing support, education and research.
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Sunday, Jun 13, 1:00 pm - 3:00 pm MDT
Tuesday, Jun 15, 11:00 am - 12:30 pm EDT
Tuesday, Jun 15, 8:00 pm - 9:00 pm EDT
Wednesday, Jun 16, 8:00 pm - 9:00 pm EDT
Saturday, Jun 19, 11:00 am - 12:00 pm CDT
Saturday, Jun 19, 11:30 am - 1:00 pm CDT
Tuesday, Jun 22, 8:00 pm - 9:00 pm EDT
Wednesday, Jun 23, 8:00 pm - 9:00 pm EDT
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