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PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

Are You Your Best Advocate? Pathlight Shows How Persistence Pays Off

The fall issue of Pathlight magazine focuses on pulmonary hypertension (PH) advocacy and awareness. People with PH and caregivers share how they advocated for appropriate diagnosis and treatment, as well as tips for educating others. In the cover story, Mike Naple of Washington, D.C., relates “Putting Advocacy Experience to Work for PH Community.”

450+ Clinicians Attend PHA’s First Online Symposium

The Pulmonary Hypertension Association welcomed more than 450 attendees to its PH Professional Network Symposium Sept. 30-Oct. 3. Health care professionals spent four days learning about advancements in pulmonary hypertension (PH) research and care while earning continuing education credits.

Focusing on the Small Things to Breathe Easier

Moving to Oregon after her pulmonary hypertension (PH) diagnosis helped Donna Kay Hutchinson refocus on simple things in life: watching the ocean, taking drives in the neighborhood, volunteering at an art gallery. As she made relaxation a priority, her chronic pain and PH seemed to improve. Her doctors noticed too.

PHA Live: Learn about ‘PH and CTEPH’ Oct. 28

Join the Pulmonary Hypertension Association (PHA) at 3:30 p.m. Thursday, Oct. 28 for the PHA Live “PH and Chronic Thromboembolic Pulmonary Hypertension (CTEPH).” Ivan Robbins, M.D., will discuss diagnosis and treatment options. Email us your questions for Dr. Robbins by Monday, Oct. 25.

PHA Registry Enrollment Tops 1,700

People with pulmonary hypertension (PH) are increasingly signing on to help researchers better understand PH. Thanks to growing participation in the Pulmonary Hypertension Association Registry (PHAR), researchers have better access than ever to data from people with PH. PHAR enrollment recently surpassed a new milestone with more than 1,700 patients.

Merck to Acquire Acceleron

Pharmaceutical giant Merck is acquiring Acceleron Pharma, which is testing a potentially new add-on treatment for pulmonary arterial hypertension (PAH). The $11.5 billion deal is expected to close by year end. Acceleron’s sotatercept is undergoing Stage 3 trials for PAH.

CEO Update: How Symposium Benefits People with PH

The Pulmonary Hypertension Professional Network Symposium opens today for the first time as online event. Although Symposium is designed for health care providers, people with PH are the ultimate beneficiaries. The PH professionals who attend Symposium gain knowledge and resources to better care for their patients and take ideas and inspiration back to their clinics and colleagues.

Are You Eligible for a COVID-19 Booster? See Our FAQ for Answers

Adults with pulmonary hypertension are among those eligible for a third dose of the Pfizer COVID-19 vaccine, according to new Centers for Disease Control guidance. Those who should receive the booster: people 65 and over, adults living in long-term care facilities and people over 50 who have underlying health conditions. Learn more in our COVID-19 FAQ.

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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Support Group Meetings
GA - Savannah, Georgia (Virtual)
Monday, October 18, 7:00 PM - 8:30 PM EDT
PA - U of Penn (Virtual)
Tuesday, October 19, 11:00 AM - 12:30 PM EDT
CTEPH Telephone Support Group
Tuesday, October 19, 8:00 PM - 9:00 PM EDT
Caregiver Telephone Support Group
Wednesday, October 20, 8:00 PM - 9:00 PM EDT
ID - Treasure Valley (ID) (Virtual)
Saturday, October 23, 3:00 PM - 4:30 PM MDT
NJ - South Jersey (Virtual)
Tuesday, October 26, 12:00 PM - 1:00 PM EDT
NJ - South Jersey (Virtual)
Tuesday, October 26, 12:00 PM - 1:00 PM EDT
Young Adult Telephone Support Group
Tuesday, October 26, 8:00 PM - 9:00 PM EDT

Open the full calendar

PHA Event Calendar

Patient-to-Patient Support Line: 1-800-748-7274

PHA News

The latest PH and PHA news and events, on the web and in your inbox each week.

PHA Classroom

Free educational resources for PH patients and families.

Connect with other patients and caregivers online or by phone.

Earn CME/CE credits at PHA’s educational website for healthcare professionals.