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HURRICANE IRMA
HURRICANE HARVEY
Specialty Pharmacy, Support and Care Center Updates
PH EMERGENCY PREPAREDNESS
For patients on infused medication or supplemental oxygen
Our thoughts are with those who have been
PHA is continuing to work with partners to compile emergency contact
affected and displaced by recent natural disasters.
and disaster relief information for the PH community.
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Patients, families, supporters in the PHight against PH
TERRENCE J
Inadequate Coverage Nearly Cost Me My Life
By Sharon Thomas I had health care coverage when I found out I needed a life-saving heart and lung transplant for a disease called pulmonary
Announcing “The Right Heart” – New PHA Blog Series of People Living Their Best Lives With PH
Living with a serious and rare diagnosis like pulmonary hypertension (PH) can be isolating. The PHA community is a network where people can connect with others
PHA PHriends Offer Hope and Support for People With PH and Their Caregivers
PHA PHriends are patient and caregiver volunteers in the PH community who are available to offer hope and support throughout your PH journey. Under the supervision of
UPDATES: Resources and Information for People Affected by Hurricane Irma
Recent hurricanes and wildfires have displaced and affected many in the PHA community. PHA is working with health care professionals, industry partners, specialty pharmacies, local PH
Genetic Counseling and Testing May Provide Benefits for Patients With PAH
by Phyllis Hanlon, Contributing Writer Genetic testing is becoming more common for patients with certain medical conditions. For instance, cardiologists now refer patients more frequently for
Life with PH: Emergency Preparedness and Your PH Emergency Kit
Nearly 700 members of the PHA community where affected by the devastation and flooding caused by Hurricane Harvey. For those impacted, PHA has worked with
FDA Approves First PH Drug for Pediatric Patients
This week, Actelion announced the first drug approved for the treatment of pediatric PH patients. Prior to the announcement, there were 14 FDA-approved PH treatments
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