PULMONARY HYPERTENSION ASSOCIATION NEWS
PH and COVID-19: Visit PHA’s Online Resources
- COVID-19 FAQ for People with PH
- PHA Connects: Health and Wellness Series
- Therapy Access and Funding Assistance
- Videos to Help You Start a Home Exercise Routine
- Ways to Connect Virtually: Support Groups and More
- PH Community Making Masks: Learn How!
- Resources for HCPs
- COVID-19 in the News
Innovation for an Independent Life
Software developer Shavini Fernando invented a wearable device to continuously monitor oxygen saturation to help herself and other people with pulmonary hypertension. Her story originally appeared in the June 2021 issue of Pathlight, the Pulmonary Hypertension Association’s quarterly member magazine.
Do You Have What it Takes to Help Others? Volunteer for our Support Line
Share your strength and empathy with other members of the pulmonary hypertension community. The Pulmonary Hypertension Association (PHA) needs compassionate volunteers to take calls on its support line, an invaluable service PHA has provided since 1995.
Michigan Man Honors Optimistic, Spirited Wife
John and Sandy Awood were planning a big bucket list trip in 2007: An excursion to Egypt with a boat trip up the Nile to see historical sites along the way. Later that year, they canceled the trip after Sandy was diagnosed with pulmonary arterial hypertension. John remembers his wife’s fighting spirit by supporting the Pulmonary Hypertension Association.
Learn Findings from the 2018 PHA Research Room
Join the Pulmonary Hypertension Association (PHA) at 3:30 p.m. EST Thursday, July 29 for “PHA Research Room Findings.” Hear from scientists and clinicians about Research Room study findings from the 2018 PHA International PH Conference and Scientific Sessions.
Advocacy Day to Kick Off PHPN Symposium
Allied health professionals, nurses, physicians and researchers: Join us Sept. 30 to advocate on behalf of the pulmonary hypertension (PH) community. Make virtual visits with congressional offices on Advocacy Day, which starts the Pulmonary Hypertension Association PH Professional Network Symposium.
PH Community Helps Win Connecticut Copay Accumulator Ban
State-regulated health insurance plans in Connecticut must count copay cards and other financial assistance toward deductibles and out-of-pocket maximums, thanks to the pulmonary hypertension (PH) community. The state law, enacted in June, is a major achievement for Connecticut residents with PH and other complex, costly health conditions.
How Can Wearable Technology Enhance PH Care? Find out in Pathlight magazine
The summer issue of Pathlight magazine focuses on pulmonary hypertension (PH) research. This issue of the Pulmonary Hypertension Association member magazine features focuses on research advancements, technology innovations and the importance of patient participation in clinical trials and studies. The cover story, “Innovation for an Independent Life,” by Shavini Fernando, discusses her PH journey and the device she invented to continuously monitor oxygen saturation.
Former Teacher Educates Professionals About the Patient Experience
After a 42-year education career, Missy Storm volunteers for the Pulmonary Hypertension Association and the hospital where she underwent a pulmonary thromboendarterectomy in 2018. She started by sharing her experiences with medical staff fulfilling their continuing education requirements.
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
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