Podcast: Scleroderma and PH
Patient Neal McDermott shares his journey managing scleroderma and PH.
Empowering the pulmonary hypertension community.
As the world’s largest pulmonary hypertension organization, PHA provides support and resources to extend and improve the lives of those affected by PH. Together, we end isolation, deliver education and offer hope for the future.
This week at PHA
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Traveling with PHTaking a trip this summer? Our in-depth travel guide will help you plan ahead for the logistical challenges.
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Young Adult Support GroupJoin fellow young adults who have pulmonary hypertension at our July 15 virtual support group.
About Pulmonary Hypertension
Learn about PH, tests to diagnose, available treatment and common risk factors.
- Types of PH
- Related conditions
- Pediatric PH
- Diagnosis and treatment
- Find a specialist or care center near you
Living with PH
Live your best life with PH, whether you’re newly diagnosed, a long-time thriver or taking care of someone you love.
- Medication management
- Emergencies
- Nutrition and exercise
- Coping and support
- Working and traveling
- Insurance and financial assistance
Patient and caregiver support
Patient and caregiver support is one of PHA’s founding principles. Our support groups, peer mentors and Patient and Caregiver Support Line foster connections, knowledge and empowerment.
- Join an in-person, online or Facebook group
- Connect with a peer mentor
- Call our support line
Events and Resources
Discover in-person events and patient education materials
- Order or download materials
- Watch videos in PHA Classroom
- Register for PHA Live webinar series
- Listen to PH Insights podcast
- PHA International PH Conference & Scientific Sessions
- Fundraising events
Get Involved
Become part of the PHA community.
- Become a member
- Volunteer
- Ways to give & fundraise
- Advocate
- Participate in research
- Advertising & sponsorships
Help us improve and extend the lives of people affected by PH
Help make life better for people with pulmonary hypertension and their families by supporting PHA.
- Join or organize a fundraising event
- Make PHA part of your estate plan
- Ensure consistent support through monthly giving or workplace programs
For PH Professionals
Connect, learn, share and discover.
- Professional member portal
- Become an accredited care center
- PHA Registry research
- Professional leadership opportunities
- Continuing education
- Apply for a grant
- PH Practice Library
News
Explore news from the Pulmonary Hypertension Association.
- Recent news
- News releases
- Advisories & policy statements
- Newsletters
- Right Heart Blog
- Pathlight magazine
- Advances in PH
News
Painting for PH awareness
Eight years ago, patients and caregivers from Fundación RHYO learned to paint as a way to set aside diagnoses, appointments and worries. Today, the nonprofit’s painting group sells hand-painted canvas tote bags to raise rare disease awareness and fund social activities. Lilian Cecilia Garzón Yory, PH patient leader and deputy director of projects, shares the painting group’s story.
Lilian’s story
Recent News
Visit our News section for the latest stories from PHA News, including association news and PH in the News.
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Survey Highlights Invisible Burden of Pediatric PH CaregiversNew survey findings reveal the invisible burdens faced by caregivers of children with PH.
News | Pediatric PH
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SOAR Act Gains Traction from PHA Advocacy EffortsPHA advocacy efforts helped the Supplemental Oxygen Access Reform Act gain 12 new cosponsors.
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PHA Welcomes New Officers, Board MembersMeet PHA’s new Board of Trustees officers and members serving in leadership roles starting July 1.
News