PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

Enter the PHA 2022 Theme Contest

Help the Pulmonary Hypertension Association (PHA) come up with a theme for PHA 2022 International PH Conference and Scientific Sessions. If PHA chooses your idea, you could win a $25 Amazon gift card, a one-year PHA membership and PHA swag. PHA 2020 begins a year from today in Atlanta. The contest closes Wednesday, June 30, so enter today. We will announce the winner by July 31.

Family Affair: 30 Years of Volunteering

Terry and Tom McGraw are among the families who have lived with pulmonary hypertension (PH) for many years – in their case, decades. In the early 1990s, when Terry was diagnosed, little information was available about PH, and the McGraws didn’t find the fledgling Pulmonary Hypertension Association (PHA) for about five years. Initially, they got involved to find answers and eventually became volunteers and fundraisers. The McGraws initially shared their story with Pathlight, PHA’s member magazine, in connection with PHA’s 30th anniversary.

Familial PAH Diagnosis Prompts Need to Give Back

Kayla Naecker had classic signs of pulmonary hypertension (PH), a disease that killed her biological grandmother. But Kayla, of Benld, Illinois, didn’t suspect PH. She was in her 20s, and her grandmother’s case was thought to be associated with diet pill use. Genetic testing after a right heart catheterization confirmed familial PAH, so Kayla had her 3-year-old daughter tested, too. Kayla shares her story with the Pulmonary Hypertension Association’s Right Heart Blog for American Family Month.

Act Now: Ask Congress for Permanent Telehealth Access

During the COVID-19 pandemic, Medicare coverage of telehealth services increased. For the first time, people insured by Medicare became eligible for telehealth coverage no matter where they lived. The pandemic changes allowed telehealth visits from beneficiaries’ homes instead of approved telehealth locations.

Thankful for Treatment Advancements That Give Hope

Pulmonary hypertension (PH) was no stranger to Albert Wright when she was diagnosed in 2018. Her oldest sister and a niece died from it. But Alberta lives life to the fullest, taking nothing for granted. She leads the Pulmonary Hypertension Association’s Detroit Support Group and administers a PHA Facebook support group page. A full-time teacher’s aide, she shares her PH journey with PHA’s Right Heart Blog for National Family Month in June.

Support the PH Community for Another 30 Years

When Monica Penaranda was diagnosed with PH, she was 16 years old. Thanks to the Pulmonary Hypertension Association (PHA), she found resources to survive and thrive for the past 23 years. “PHA provided the hope I needed to get through the tough days,” she says. Monica, the face of PHA’s 30th anniversary spring fundraising campaign, encourages the PH community to help PHA continue providing support, education and research.

link to history page
The Right Heart
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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Support Group Meetings
CO – Denver Metro Area (Virtual)
Sunday, Jun 13, 1:00 pm - 3:00 pm MDT
PA – U of Penn (Virtual)
Tuesday, Jun 15, 11:00 am - 12:30 pm EDT
CTEPH Telephone Support Group
Tuesday, Jun 15, 8:00 pm - 9:00 pm EDT
Caregiver Telephone Support Group
Wednesday, Jun 16, 8:00 pm - 9:00 pm EDT
WI - Madison/Janesville (Virtual)
Saturday, Jun 19, 11:00 am - 12:00 pm CDT
Il – Chicago South Side (Virtual)
Saturday, Jun 19, 11:30 am - 1:00 pm CDT
Young Adult Telephone Support Group
Tuesday, Jun 22, 8:00 pm - 9:00 pm EDT
Grupo de apoyo telefónico en español
Wednesday, Jun 23, 8:00 pm - 9:00 pm EDT

Open the full calendar

PHA Event Calendar

Patient-to-Patient Support Line: 1-800-748-7274

PHA News

The latest PH and PHA news and events, on the web and in your inbox each week.

PHA Classroom

Free educational resources for PH patients and families.

Connect with other patients and caregivers online or by phone.

Earn CME/CE credits at PHA’s educational website for healthcare professionals.