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PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

Download PHA’s 2020 Annual Report

The Pulmonary Hypertension Association (PHA) is pleased to announce the publication of its 2020 Annual Report. The report reflects on PHA’s achievements during a challenging year, flanked by the emergence of the COVID-19 virus early on and emergency FDA vaccine approval as we entered 2021. The report shows the PHA’s impact on research, education, support and advocacy through stories of people with pulmonary hypertension, caregivers and health care providers.

PHPN Symposium: Don’t Miss Out

Allied health professionals: Just two weeks are left to register for the Pulmonary Hypertension Association (PHA)’s 2021 PH Professional Network (PHPN) Symposium. The event begins Sept. 30. Don’t miss outstanding continuing education sessions, including PH Through the Decades: Progress and Patient-Centered Care by Robert Frantz, M.D.; State of the Union in PH by Vallerie V. McLaughlin, M.D., and Victor F. Tapson, M.D.; and Navigating Difficult Discussions in PH by Rana Awdish, M.D., FACP, FCCP.

Amplify PHA’s Voice on Capitol Hill

Attending the Pulmonary Hypertension Professional Network Symposium? Start by participating in virtual Advocacy Day on Sept. 30. Ask Congress to advance legislation to reduce step-therapy requirements, increase PH research funding, and protect access to PH medication financial assistance. Maximize your impact by sharing your story through our email template. The Pulmonary Hypertension Association will send all messages to Congress on Advocacy Day to make a big impact.

Meet PHA’s New Advocacy Committee

The Pulmonary Hypertension Association (PHA) formed an Advocacy Committee to advise and mentor people interested in advocating for the pulmonary hypertension (PH) community. Each member of the Advocacy Committee will work with people from specific geographic regions.

Make a Difference in the Lives of Kids with PH

Eleven-year-old Tyler Garigen doesn’t let pulmonary hypertension stop him from doing the things he loves: teaching his dog Archie new tricks, learning guitar chords and playing his favorite sport, baseball. Tyler and his family are helping the Pulmonary Hypertension Association raise money to mark its 30th anniversary. Hear why they believe your donation gives hope to kids like Tyler and people of all ages with PH.

9 Tips for Sending Kids Back to School as Pandemic Evolves

COVID-19 concerns are front of mind as a second school years begins amid the pandemic. Whether to send children back to the classroom remains a difficult decision for families affected by pulmonary hypertension (PH). Discover updated advice from pediatric PH specialists on vaccination, masking and other back-to-school health issues.

Help 11-Year-Old Baseball Player Strike Out PH

When Tyler Garigen was 4 years old, he told his mom, “I can’t find my breathing.” He didn’t know another way to describe his shortness of breath. But his parents understood that he needed to see a doctor. Now 11, Tyler is the face of the Pulmonary Hypertension Association’s fall fundraising campaign. He and his parents shared his story to ensure PHA can continue its mission that began 30 years: to extend and improve the lives of people with PH.

  • John Berger

Learn About PH and Congenital Heart Disease

Join the Pulmonary Hypertension Association (PHA) at 4 p.m. Wednesday, Sept. 15 for the PHA Live “PH and Congenital Heart Disease.” John T. Berger III, M.D., will discuss congenital heart disease and review heart and blood vessel abnormalities that can occur during prenatal development and lead to pulmonary hypertension.

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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Support Group Meetings
FL - Orlando (Virtual)
Thursday, September 23, 6:30 PM - 8:30 PM EDT
Patient Telephone Support Group
Thursday, September 23, 8:00 PM - 9:00 PM EDT
GA- CSRA (Augusta) (Virtual)
Saturday, September 25, 11:00 AM - 1:00 PM EDT
NJ - South Jersey (Virtual)
Tuesday, September 28, 11:00 AM - 12:00 PM EDT
Young Adult Telephone Support Group
Tuesday, September 28, 8:00 PM - 9:00 PM EDT
OH - Southwest General (Virtual)
Thursday, September 30, 11:30 AM - 12:30 PM EDT
MA - Greater Boston (Virtual)
Saturday, October 2, 9:30 AM - 11:00 AM EDT
MI - Macomb-Oakland (Virtual)
Saturday, October 2, 12:00 PM - 1:30 PM EDT

Open the full calendar

PHA Event Calendar

Patient-to-Patient Support Line: 1-800-748-7274

PHA News

The latest PH and PHA news and events, on the web and in your inbox each week.

PHA Classroom

Free educational resources for PH patients and families.

Connect with other patients and caregivers online or by phone.

Earn CME/CE credits at PHA’s educational website for healthcare professionals.