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PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

Help Determine How Donor Lungs are Distributed

The scoring system for allocating donor lungs is under review. You can weigh in on how donor lungs are distributed by taking a 10- to 15-minute survey from the Organ Procurement and Transplantation Network. The Pulmonary Hypertension Association (PHA) encourages people with pulmonary hypertension, their loved ones and health care teams to participate.

How to Maximize Your Support for PH Research and Awareness

Does your employer have a matching gift program? If so, you can double your contribution to the Pulmonary Hypertension Association (PHA). Depending on the employer, you might be eligible to provide twice the support for the pulmonary hypertension (PH) community, whether you’re an employee, spouse of an employee or retiree.

Learn About PH Drugs In Development

While the number of therapies available to treat PH has grown over the past few decades, more research is needed. Learn about current and emerging PH treatments Sept. 25 at 4 p.m. EDT in “Understanding the PH Drug Pipeline.” PH specialist Anna Hemnes will provide insight on available treatments, the biological pathways targeted and potential new drugs on the horizon.

Former Runner Goes the Distance to Advance PH Research

Nick Simons ran 25 to 30 miles a week until 2008. A particularly disappointing run led to a doctor’s visit, tests and a pulmonary hypertension (PH) diagnosis. Eventually, he started contributing to the Pulmonary Hypertension Association (PHA) through payroll deductions.

Get Social! Join a PHA Facebook Group

Essential social support during the COVID-19 pandemic is possible thanks to the Pulmonary Hypertension Association (PHA)’s eight Facebook groups. Pam Kehoe of Wisconsin, who joined the CTEPH group after her diagnosis, shares how the group provides her with a supportive space to exchange stories, news and concerns.

Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association
The Right Heart
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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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