PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
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  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

Innovation for an Independent Life

Software developer Shavini Fernando invented a wearable device to continuously monitor oxygen saturation to help herself and other people with pulmonary hypertension. Her story originally appeared in the June 2021 issue of Pathlight, the Pulmonary Hypertension Association’s quarterly member magazine.

Michigan Man Honors Optimistic, Spirited Wife

John and Sandy Awood were planning a big bucket list trip in 2007: An excursion to Egypt with a boat trip up the Nile to see historical sites along the way. Later that year, they canceled the trip after Sandy was diagnosed with pulmonary arterial hypertension. John remembers his wife’s fighting spirit by supporting the Pulmonary Hypertension Association.

Learn Findings from the 2018 PHA Research Room

Join the Pulmonary Hypertension Association (PHA) at 3:30 p.m. EST Thursday, July 29 for “PHA Research Room Findings.” Hear from scientists and clinicians about Research Room study findings from the 2018 PHA International PH Conference and Scientific Sessions.

Advocacy Day to Kick Off PHPN Symposium

Allied health professionals, nurses, physicians and researchers: Join us Sept. 30 to advocate on behalf of the pulmonary hypertension (PH) community. Make virtual visits with congressional offices on Advocacy Day, which starts the Pulmonary Hypertension Association PH Professional Network Symposium.

PH Community Helps Win Connecticut Copay Accumulator Ban

State-regulated health insurance plans in Connecticut must count copay cards and other financial assistance toward deductibles and out-of-pocket maximums, thanks to the pulmonary hypertension (PH) community. The state law, enacted in June, is a major achievement for Connecticut residents with PH and other complex, costly health conditions.

How Can Wearable Technology Enhance PH Care? Find out in Pathlight magazine

The summer issue of Pathlight magazine focuses on pulmonary hypertension (PH) research. This issue of the Pulmonary Hypertension Association member magazine features focuses on research advancements, technology innovations and the importance of patient participation in clinical trials and studies. The cover story, “Innovation for an Independent Life,” by Shavini Fernando, discusses her PH journey and the device she invented to continuously monitor oxygen saturation.

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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Support Group Meetings
NV - SMRMC Reno (Virtual)
Saturday, July 31, 10:00 AM - 12:00 PM PDT
GA - CSRA Augusta (Virtual)
Saturday, July 31, 11:00 AM - 1:00 PM EDT
SD - Black Hills (Virtual)
Thursday, August 5, 5:00 PM - 6:30 PM MDT
AL - Alabama (Virtual)
Friday, August 6, 3:00 PM - 5:00 PM CDT
NY - Buffalo/Niagara PHriends (Virtual)
Saturday, August 7, 12:00 PM - 2:00 PM EDT
OR - Central Oregon (Virtual)
Saturday, August 7, 1:00 PM - 3:00 PM PDT
Parent Telephone Support Group
Wednesday, August 11, 8:00 PM - 9:00 PM EDT
IN - Indianapolis (Virtual)
Thursday, August 12, 12:00 PM - 1:00 PM EDT

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