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PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

O2breathe Fundraising Walks Return

The Pulmonary Hypertension Association (PHA)’s O2breathe fundraising walks have returned in-person for the first time since 2019. The pulmonary hypertension (PH) community has come together this spring to raise money for PHA programs and services. Read about the events in Northern Virginia, Southern California and Tampa, Florida.

PHA Participates in Event to Educate European Policymakers About PH

The Pulmonary Hypertension Association Europe recently shared its updated call to action, “Unmet Needs of Patients with Pulmonary Hypertension – 2022” with the European Parliament. The call to action, which launched in 2012, states the importance of sharing PH knowledge across geographic boundaries. PHA CEO Matt Granato attended.

PHA Registry Enrollment Reaches 2,022 in 2022

Enrollment in the Pulmonary Hypertension Association Registry (PHAR) has surpassed 2,000 participants. The registry includes data from patients at more than 80 PHA-accredited PH Care Centers. The data represents demographic characteristics, diagnosis and treatment information, and quality-of-life metrics.

Dancing Through Life with PH

Pam Vinesett of North Carolina served three years of active duty and 17 years in the army reserves. The mother of seven and grandmother of eight enjoys swimming, fishing and tubing with her husband. In 2014, she noticed shortness of breath and other pulmonary hypertension symptoms. Since her eventual diagnosis and other health challenges, she is doing well and teaches four to six Zumba classes a week.

Give Hope to the PH Community

Marcie McGregor treasures every opportunity to wrap her arms around her granddaughters. After her pulmonary arterial hypertension (PAH) diagnosis in 2012, she didn’t think she’d live to see grandchildren. Marcie shares how the Pulmonary Hypertension Association (PHA) helped through every step of PH journey through its resources, support group and biennial conference. Her story is a reminder that when you give to PHA, you’re giving people with PH hope for the future.

PHA Offers New Research Grant

The Pulmonary Hypertension Association (PHA) is accepting applications for its new Innovation Research Award. The award supports new areas of pulmonary hypertension research that couldn’t have been explored without PHA funding. Any areas of innovative pulmonary hypertension research will be accepted. Up to $60,000 a year for two years is available.

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Marcie
The Right Heart
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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Support Group Meetings
NJ - South Jersey (Virtual)
Tuesday, May 24, 11:00 AM - 12:00 PM EDT
WI - Southeastern Wisconsin (In Person)
Tuesday, May 24, 6:00 PM - 7:00 PM CDT
Young Adult Telephone Support Group
Tuesday, May 24, 8:00 PM - 9:00 PM EDT
Grupo de apoyo telefónico en español
Wednesday, May 25, 8:00 PM - 9:00 PM EDT
FL - Orlando (Virtual)
Thursday, May 26, 12:00 AM - 12:00 AM EDT
Patient Telephone Support Group
Thursday, May 26, 8:00 PM - 9:00 PM EDT
VA - Richmond, Central VA (Virtual)
Saturday, June 4, 11:00 AM - 12:30 PM EDT
NY - Buffalo/Niagara PHriends (In Person)
Saturday, June 4, 12:00 PM - 2:00 PM EDT

Open the full calendar

PHA Event Calendar

Patient-to-Patient Support Line: 1-800-748-7274

PHA News

The latest PH and PHA news and events, on the web and in your inbox each week.

PHA Classroom

Free educational resources for PH patients and families.

Connect with other patients and caregivers online or by phone.

Earn CME/CE credits at PHA’s educational website for healthcare professionals.