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PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

New Protections Against Surprise Medical Bills Now in Place

The No Surprises Act took effect Jan. 1, thanks to the pulmonary hypertension and rare disease communities. The law applies to people with employer-provided or individual health insurance, such as marketplace plans. It protects them from being billed for out-of-network care in situations where they can’t choose providers, such as emergency care.

PHA Offers Copay Assistance Resource Center

This year is off to a difficult start for people who seek financial assistance for pulmonary hypertension (PH) treatment. For much of December and January, PH copay assistance grants have been closed. The Pulmonary Hypertension Association is monitoring the funds daily and will notify the community when the funds reopen.

O2breathe Fundraising Walks Return

Mark your calendars for new events to bring together the pulmonary hypertension community and raise money. The Pulmonary Hypertension Association is planning O2breathe events to support its patient and caregiver services, education programs and research initiatives.

Join PHA’s Fight to End PH Therapy Barriers

As the 117th session of Congress continues in 2022, the Pulmonary Hypertension Association (PHA) is keeping pressure on legislators to improve the lives of people affected by pulmonary hypertension. PHA’s advocacy can’t be successful without the PH community. Learn about three PHA legislative priorities and how to join the fight.

Renew or Join PHA Now to Apply for PHA 2022 Scholarships

If you plan to attend the Pulmonary Hypertension Association (PHA) 2022 International PH Conference and Scientific Sessions, it’s a good time to join PHA or renew your membership. Membership is required to apply for scholarships and receive discounted conference rates. For patients and caregivers, the $15 annual PHA membership rate saves at least $85 in registration fees. PHA 2022 is set for June 10-12 in Atlanta.

Finding Hope and Inspiration Among Peers

Mesha Guilloty wasn’t diagnosed with pulmonary hypertension (PH) until a decade after her symptoms began. Mesha’s story originally appeared in the December 2021 issue of Pathlight, PHA’s member magazine.

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PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Support Group Meetings
MA - Greater Boston (Virtual)
Saturday, January 29, 9:30 AM - 11:00 AM EST
ID - Treasure Valley (Virtual)
Saturday, January 29, 3:00 PM - 4:30 PM MST
NY - Mount Sinai (Virtual)
Monday, January 31, 5:00 PM - 6:30 PM EST
IN - Indianapolis Pediatric (Virtual)
Saturday, February 5, 11:00 AM - 12:30 PM EST
Parent Telephone Support Group
Wednesday, February 9, 8:00 PM - 9:00 PM EST
Bereavement Telephone Support Group
Thursday, February 10, 8:00 PM - 9:00 PM EST
MN - Twin Cities (Virtual)
Saturday, February 12, 10:00 AM - 12:00 PM CST
NV - SMRMC Reno (Virtual)
Saturday, February 12, 10:00 AM - 12:00 PM PST

Open the full calendar

PHA Event Calendar

Patient-to-Patient Support Line: 1-800-748-7274

PHA News

The latest PH and PHA news and events, on the web and in your inbox each week.

PHA Classroom

Free educational resources for PH patients and families.

Connect with other patients and caregivers online or by phone.

Earn CME/CE credits at PHA’s educational website for healthcare professionals.