PULMONARY HYPERTENSION ASSOCIATION NEWS
PHA Accredits 100th PH Care Center
Children’s Mercy Hospital in Kansas City, Missouri, became the 100th PHA-accredited Pulmonary Hypertension Care Center in April. Children’s Mercy is one of 3 pediatric Regional Clinical Programs in PHA’s care center network. “We trust accreditation will give patients and families confidence in the care we provide,” said Kate Carp, PH clinical nurse coordinator at Children’s Mercy.
Hill Day Visits Pay Off With Immediate ‘Win’
After PHA advocates visited members of Congress for World PH Day, Rep. Cleo Fields (D-La.) stepped up right away. Fields signed on as cosponsor of Supplemental Oxygen Access Reform Act the day after our in-person advocacy event on Capital Hill.
40-Year Thriver Finds Joy While Navigating Chronic Conditions
Kim Everett has lived with lupus for over 40 years and pulmonary arterial hypertension for over 20. For Lupus Awareness Month, she shares her diagnosis journey and advice for navigating life with chronic illnesses.
5 ATS Abstracts Feature PHA Registry Data
Research based on PHA Registry data appeared in five abstracts presented at the American Thoracic Society’s annual conference, May 18-21 in San Francisco.
Support Group Leader Finds Silver Linings
Rachel Gabbert Roberts was 30 when she was diagnosed with idiopathic pulmonary arterial hypertension in 2010. Since then, she has learned to listen to her body and have a positive outlook on life.
Help Improve the Lives of People With PH
Want to do your part to support the PH community? Anyone can be an advocate in as few as five minutes. PHA makes it quick and easy to connect with your members of Congress.
New Courses Available in PHA Online University
The Pulmonary Hypertension Association has added two new courses to its Online University: “Assessment 101: Differentiating PAH from other forms of PH” and “Palliative Care in Pulmonary Hypertension.”
PHA Accredits 100th PH Care Center
Children’s Mercy Hospital in Kansas City, Missouri, became the 100th PHA-accredited Pulmonary Hypertension Care Center in April. Children’s Mercy is one of 3 pediatric Regional Clinical Programs in PHA’s care center network.
Hill Day Visits Pay Off With Immediate ‘Win’
After PHA advocates visited members of Congress for World PH Day, Rep. Cleo Fields (D-La.) stepped up right away. Fields signed on as cosponsor of Supplemental Oxygen Access Reform Act the day after our in-person advocacy event on Capital Hill.
Patient-to-Patient Support Line: 1-800-748-7274
The latest PH and PHA news and events, on the web and in your inbox each week.
Free educational resources for PH patients and families.
Connect with other patients and caregivers online or by phone.
