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PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

Help Fight Copay Accumulators

Colleen, chair of the Pulmonary Hypertension Association (PHA) Board of Trustees, testified March 9 in support of a Connecticut bill to end the cost-shifting practice, which puts a higher burden on the patient. PHA President and CEO Matt Granato provided written testimony in support of the legislation.

FDA Approves First Drug for Group 3 PH

The FDA recently approved Tyvaso (treprostinil) Inhalation Solution to improve exercise ability for people who have PH associated with interstitial lung disease. Manufactured by United Therapeutics, Tyvaso is the first FDA-approved treatment for Group 3 PH.

Support Group Leader Stays Strong Through Faith and Family

Gwendolyn Brown has lived with pulmonary arterial hypertension (PAH) for more than 40 years. She has survived a heart attack, three strokes and 11 mini strokes. She leads the Pulmonary Hypertension Association (PHA)’s Cleveland Community Support Group and is a minister at Zion Pentecostal Church of Christ.

Living in the Moment With New Lungs

A month before Genevieve Hughes turned 50, severe shortness of breath forced her to seek emergency treatment. “I thought I was just getting older and out of shape,” says Genevieve, who later learned she had idiopathic pulmonary arterial hypertension and eventually would need a double-lung transplant. Now two years post-transplant, she’s breathing deeply and enjoying her gift of life.

Father Honors Daughter’s Memory Through Fundraising

Two years ago, Gary Atkinson created a fundraising team for the Boston O2breathe Walk to honor his daughter’s memory. Gary, a former resident of West Townsend, Massachusetts, named the team “Because of Sarah” for his daughter, who was born with pulmonary hypertension and died almost 21 years ago at age 18.

CEO Update: 30 Milestones in 30 Years

How far we’ve come since our beginnings at a kitchen table! As the Pulmonary Hypertension Association celebrates its 30th anniversary, we are proud to unveil an interactive timeline that provides the shared history of our organization and the PH community. Although we’ve accomplished far more than “30 Milestones in 30 Years,” the timeline highlights major achievements over our first three decades.

Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association
The Right Heart
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