PULMONARY HYPERTENSION ASSOCIATION NEWS
PH and COVID-19: Visit PHA’s Online Resources
- COVID-19 FAQ for People with PH
- PHA Connects: Health and Wellness Series
- Therapy Access and Funding Assistance
- Videos to Help You Start a Home Exercise Routine
- Ways to Connect Virtually: Support Groups and More
- PH Community Making Masks: Learn How!
- Resources for HCPs
- COVID-19 in the News
Blood Donation Campaign Features PH/Sickle Cell Advocate
PHA board member Nicole Creech is helping raise awareness this month for sickle cell disease. Nicole, of Lexington, Kentucky is part of a campaign to encourage African American and Hispanic people to donate blood during Sickle Cell Awareness Month.
Oregon Doctor Shares Air Quality Precautions
People with pulmonary hypertension (PH) are vulnerable to the effects of hazardous air quality. Pulmonologist Wayne Strauss, M.D., Ph.D., offers tips to reduce the risks of particulate-matter exposure.
Help Determine How Donor Lungs are Distributed
The scoring system for allocating donor lungs is under review. You can weigh in on how donor lungs are distributed by taking a 10- to 15-minute survey from the Organ Procurement and Transplantation Network. The Pulmonary Hypertension Association (PHA) encourages people with pulmonary hypertension, their loved ones and health care teams to participate.
How to Maximize Your Support for PH Research and Awareness
Does your employer have a matching gift program? If so, you can double your contribution to the Pulmonary Hypertension Association (PHA). Depending on the employer, you might be eligible to provide twice the support for the pulmonary hypertension (PH) community, whether you’re an employee, spouse of an employee or retiree.
Learn About PH Drugs In Development
While the number of therapies available to treat PH has grown over the past few decades, more research is needed. Learn about current and emerging PH treatments Sept. 25 at 4 p.m. EDT in “Understanding the PH Drug Pipeline.” PH specialist Anna Hemnes will provide insight on available treatments, the biological pathways targeted and potential new drugs on the horizon.
Discover Patient and Researcher Perspectives on PH Drug Development
Would you like to learn more about the process of developing new drugs to treat pulmonary hypertension (PH)? Check out the latest issue of the Pulmonary Hypertension Association’s (PHA’s) official journal, Advances in Pulmonary Hypertension, now available online.
Former Runner Goes the Distance to Advance PH Research
Nick Simons ran 25 to 30 miles a week until 2008. A particularly disappointing run led to a doctor’s visit, tests and a pulmonary hypertension (PH) diagnosis. Eventually, he started contributing to the Pulmonary Hypertension Association (PHA) through payroll deductions.
Get Social! Join a PHA Facebook Group
Essential social support during the COVID-19 pandemic is possible thanks to the Pulmonary Hypertension Association (PHA)’s eight Facebook groups. Pam Kehoe of Wisconsin, who joined the CTEPH group after her diagnosis, shares how the group provides her with a supportive space to exchange stories, news and concerns.
PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.
Patient-to-Patient Support Line: 1-800-748-7274
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