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PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

CEO Update: 30 Milestones in 30 Years

How far we’ve come since our beginnings at a kitchen table! As the Pulmonary Hypertension Association celebrates its 30th anniversary, we are proud to unveil an interactive timeline that provides the shared history of our organization and the PH community. Although we’ve accomplished far more than “30 Milestones in 30 Years,” the timeline highlights major achievements over our first three decades.

PH Changed Her Life. It Taught Her to Persevere

Diane Ramirez of Lexington, North Carolina, was diagnosed with pulmonary arterial hypertension in 1987. At the time, fewer than 200 cases were known of the disease then known as primary pulmonary hypertension (PH). Diane originally shared her PH journey in the December 2020 Pathlight magazine, which launched the Pulmonary Hypertension Association’s 30th anniversary celebration.

Habla español? Join our Spanish-Language Support Group

The Pulmonary Hypertension Association is launching a monthly telephone support group for Spanish-speaking patients. The first call is at 8 p.m. April 28 EDT. Future calls will be at 8 p.m. on the fourth Wednesday of every month. Register or join by phone or computer. Email us or call 301-565-3004 ext. 777 (in English).

Get to Know the PHA Chair

Join Colleen Brunetti, M.Ed., C.H.C, at 8 p.m. EDT Friday, April 9 for a conversation about grief, hope and pulmonary hypertension (PH). Colleen, the second patient to chair the Pulmonary Hypertension Association Board of Trustees, will share her perspective as a PH patient and leader. Bring your questions, share your stories and connect with the community.

Detroit Family Raises Money to Provide Hope

Candace and her family became involved in the Detroit O2breathe Walk to give back and get more involved in the PH community. She met others with PH like me through the walk, giving her hope and people to relate to.

Act Now: Ask Congress to Increase NIH and CDC Funding

As Congress develops the FY 2022 federal budget, ask your members of Congress to increase funding for the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention. Pulmonary hypertension researchers depend on NIH grants to support their work.

New Guide Available about PH That Occurs at Birth

The Pulmonary Hypertension Association recently published a new resource about persistent pulmonary hypertension of the newborn. The handout is intended to educate health care providers and parents about the condition, risks and treatment.

Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association
The Right Heart
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