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PULMONARY HYPERTENSION ASSOCIATION NEWS

‘Advocating Keeps My Passion for Nursing Alive’

Health care professionals struggle every day to ensure patients get the right drugs. They know what’s working and what’s not. Yet insurance companies decide whether patients receive their prescribed medications. “We need a better way to ensure our patients get what they need when they need it,” says Donnielle Turner, a registered nurse at Houston Methodist.

How the Community’s Light Shined During Awareness Month

The PH community recently came together in November for PH Awareness Month. In addition to raising awareness, they advocated for better care and showed support for people living with PH.

Learn About PHA’s Prior Authorization Initiative

Pulmonary Hypertension Association has been working behind the scenes to get patients the treatments they need on time. Learn about a recent summit of insurance, pharmaceutical and specialty pharmacy company representatives and work to address treatment delays caused by prior authorization and re-authorization requirements.

CEO Update: New Guidance To Help Primary Doctors Recognize PH

PHA scientific leaders worked with American Lung Association to break down complex information about PH for health care professionals who might not be as familiar with the disease. Our new “Guidance to the Guidelines” acknowledges that many primary care physicians might need additional guidance for recognizing PH symptoms, ordering diagnostic tests and knowing when to refer patients to specialty care.

Review Your Medicare Formulary Now

Make sure you review drug formularies before committing to a Medicare plan for 2025. Some Medicare plans are removing PH therapies from their formularies next year, so review your plan or intended plan before open enrollment ends Dec. 7. The changes affect people with pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension. At least one plan no longer will cover Adempas, Opsumit, Tracleer and/or Ventavis. Learn more about the changes and what you can do.

Hiker Surmounts PH Through Backpacking Treks

For Pulmonary Hypertension Awareness Month, Zachary Schmidt shares how he lets his light shine through hiking around the world. Schmidt, diagnosed with pulmonary arterial hypertension when he was in middle school, says he feels grateful for what his body can do and blessed for the ability to keep hiking, one step at a time.

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CEO Update: New Guidance To Help Primary Doctors Recognize PH

PHA scientific leaders worked with American Lung Association to break down complex information about PH for health care professionals who might not be as familiar with the disease. Read more.

Review Your Medicare Formulary Now

PHA News, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.