PULMONARY HYPERTENSION ASSOCIATION NEWS
PH and COVID-19: Visit PHA’s Online Resources
- COVID-19 FAQ for People with PH
- PHA Connects: Health and Wellness Series
- Therapy Access and Funding Assistance
- Videos to Help You Start a Home Exercise Routine
- Ways to Connect Virtually: Support Groups and More
- PH Community Making Masks: Learn How!
- Resources for HCPs
- COVID-19 in the News
PHA Releases Guide for Newly Diagnosed Patients
The Pulmonary Hypertension Association recently released “Navigating Pulmonary Hypertension: A Guide for Newly Diagnosed Patients.” The 60-page book is intended for patients and caregivers in the first weeks, months or years after diagnosis. It provides information about treatment, symptoms and quality of life, as well as checklists and more.
Reenergized and Holding on to Hope
In 1966, 8-year-old Laura Hooley underwent surgery to repair a congenital heart defect. The surgery allowed her to play volleyball, ski and enjoy relatively good health. But her CHD eventually led to pulmonary hypertension. For American Heart Month, she shares what gave her new hope.
How Does PH Affect Intimacy and Self Image?
Join the Pulmonary Hypertension Association (PHA) at 6 p.m. Feb. 24 for a special women-only webinar, “PH, Intimacy and Self-Image. Ioana Preston, M.D., will lead the Facebook Live discussion about enhancing intimate relationships, feeling more comfortable in sexual experiences and improving your self-image.
Health Insurance Marketplace Enrollment Reopens
Considering health insurance through the federal or a state marketplace? A special enrollment period allows you to apply for coverage or update an application through May 15.
Supporting a Cause That Prolonged Her Life
When Gale Perkins was diagnosed in 1983, she had to look up pulmonary hypertension in a library book. Nearly 10 years after her diagnosis, she discovered the Pulmonary Hypertension Association (PHA). Today, raises money through the PHA Kansas City O2breathe Walk and is a member of the monthly giving society, Sustainers Circle.
Support Group Leader Board Names New Members
The Pulmonary Hypertension Association (PHA) welcomes Diane Ramirez and Nikole Nichols to its Support Group Leader Advisory Board.
CEO Update: Raise Awareness About PH Link to Heart Disease
February is a great opportunity to raise awareness of the link between pulmonary hypertension and heart failure, as well as other rare diseases. This month, the Pulmonary Hypertension Association marks American Heart Month and Rare Disease Day.
Advances in Pulmonary Hypertension Takes on COVID-19
The latest issue of Advances in Pulmonary Hypertension addresses the effects of COVID-19 on pulmonary hypertension patients and the medical community. The issue covers unpredictable challenges that shaped 2020 and transformed patient care.