Understanding Congenital Heart Disease

Raysa Morales-Demori, assistant professor at Texas Children’s Hospital, provides an overview of the types of congenital heart disease associated with pulmonary hypertension in pediatric patients. discusses what those living with pulmonary hypertension need to know about congenital heart disease. Demori provides details on how to treat and manage CHD. She also discusses when patients should consider heart transplantation as an option and when to discuss with your medical team.

Pediatric Pulmonary Hypertension: Guidance for Long-Term Care

This video series provides expert guidance on managing the long-term care of children living with PH.Presented by Elise Whalen, nurse practitioner at Texas Children’s Hospital and assistant professor at Baylor College of Medicine.

What’s New with Medicare

Learn about the changes to Medicare for 2024 that may make your prescription costs more manageable. Jaeger Spratt, MSW, PHA’s advocacy and treatment access program manager, reviews changes taking effect in 2024 from the Inflation Reduction Act, including how hitting the catastrophic coverage phase in your Part D Medicare plan could save you money if you have high prescription costs.

Assessing Risk in Pulmonary Arterial Hypertension: Is Your Treatment Plan Working?

Risk assessment for pulmonary arterial hypertension plays an important role in your overall care plan. View this video series to understand PAH risk assessment as a tool in your treatment plan; what to expect during an assessment; and the importance of managing your PAH with your health care team.

Hope Through Research in Pulmonary Hypertension: Clinical Trials

Health care professionals, Anna R. Hemnes, Matthew Lammi, Catherine Simpson, and PH patient, Julia Feitner share the latest pulmonary hypertension research and clinical studies. Learn about keyresearch developments and how they may impact PH patients in the future. PH patient, Julia Feitner shares her experience of participation in a clinical trial and why she volunteered to advance PH research.

Hope Through Research in Pulmonary Hypertension: Emerging Developments

Health care professionals, Anna R. Hemnes, Matthew Lammi, Catherine Simpson, and PH patient, Julia Feitner share the latest pulmonary hypertension research and clinical studies. Learn about keyresearch developments and how they may impact PH patients in the future. PH patient, Julia Feitner shares her experience of participation in a clinical trial and why she volunteered to advance PH research.

10 Facts You Should Know About CTEPH

William R. Auger shares 10 important facts pulmonary hypertension patients should know about CTEPH. Dr. Auger highlights how chronic thromboembolic pulmonary hypertension is diagnosed, the signs to look for and the latest treatment available.

Understanding the Connection between Idiopathic Pulmonary Fibrosis and PH

Navneet Singh, MD, MBA, and Christopher King, MD, discuss the tests needed for an accurate IPF and PH diagnosis and the latest treatment options available for each disease.

Treating and Managing PH: What You Need to Know

J. Wesley McConnell, M.D. encourages patients to speak up and ask questions during medical appointments, to maintain an open and collaborative partnership with their healthcare team to achieve successful outcomes together.

Pulling the Thread on Medicaid Unwinding

Jaeger Spratt walks through what pulmonary hypertension (PH) patients need to know about maintaining Medicaid coverage during these changes. Jaeger also reviews the specifics of Medicaid unwinding in different states and how to navigate the system to ensure you can maintain your coverage.

Diagnosing Pulmonary Hypertension in a Pediatric Patient

Michelle Sykes, M.D., Ph.D., details the process of diagnosing a child with pulmonary hypertension. From birth to adolescence, Dr. Sykes explains the diagnostic tests and procedures to help determine the degree of pulmonary hypertension as well as guide treatments in children.

Treating Pediatric Pulmonary Hypertension

Michelle Sykes, M.D., Ph.D., shares recommended treatments for pediatric pulmonary hypertension.

Understanding the Signs and Symptoms of Pulmonary Hypertension in a Child

Michelle Sykes, M.D., Ph.D., discusses key signs and symptoms of pediatric PH which may be confused with other common childhood conditions.

Respiratory Infections and Pulmonary Hypertension

Ivan Robbins, M.D., and Nidhy Varghese, M.D., discuss the impact viral respiratory infections have on adults and children with PH. They share information on the symptoms of viral infections, the impact of RSV on children and older adults with PH and give an overview of how to treat these conditions safely while on PH medication.

Journey through Pulmonary Hypertension Diagnosis and Treatment

Christina Benninger, M.S.N., APRN, FNP-BC, AGACNP-BC explains the pulmonary hypertension (PH) diagnostic process and what the test results can provide to clinicians. Find out why understanding the results of echocardiograms, right heart catheterizations and other imaging techniques and lab tests is essential to determining effective PH treatment.

Understanding the Side Effects of Pulmonary Hypertension Medication

Gillian Leung, PharmD, BCCP; Yash Kothari, M.D. cover common side effects of pulmonary hypertension (PH) medications. Drs. Leung and Kothari share tips for managing undesirable effects to get the most out of PH therapy.

Spotlight on Pulmonary Hypertension Clinical Studies and Research

J. Wes McConnell, M.D., explains how research process and can lead to promising clinical trials for new therapies and how patient registries can advance pulmonary hypertension. Dr. McConnell also shares news about how to participate in regional clinical trials.

2022 Focus on Pulmonary Hypertension Research

Pulmonary hypertension experts Anna Hemnes, M.D., and Evan Brittain, M.D., M.Sc., moderate a panel discussion on the latest advances in pulmonary hypertension (PH) research.

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