Last Modified: June 5, 2026

The Pulmonary Hypertension Association (“PHA,” “we,” or “us”), respects and values your trust and is committed to protecting your personal information. This Privacy Policy explains how we collect, use, store and share your data when you interact with our website, services, programs and communications. It also outlines your rights under applicable privacy laws and how you can exercise those rights. We encourage you to read this policy carefully to understand how we safeguard your information and respect your privacy.

PHA collects personal information you choose to share with us when you engage with our organization. This includes information provided through our website, membership sign-up, registration forms, mobile apps, surveys, community forums or other services. Information we collect may include:

The information we collect varies depending on your relationship with PHA. Below, we describe the types of information collected from each group:

Patients and Community Members (Free Membership)
When you join PHA as a patient, caregiver, family member, or other community member, we collect the following required information: first name, last name, email address, country, mailing address, city, state, zip code, and your relationship to pulmonary hypertension. Optionally, you may provide date of birth, gender, ethnicity, pronouns, primary language, employer, and job title. For patient members, we may also collect optional health demographics including your type of PH (Group 1–5), related diseases, year of diagnosis, PH Care Center affiliation, insurance type, oxygen use, and current treatments or medications.

Healthcare Professionals and Industry Members (Paid Membership)
In addition to the required contact fields collected from all members, healthcare professionals provide credentials, medical specialty, institution or clinic name, job title, work address, and work phone. If you opt in to public directories such as Find a PH Specialist or Find a Care Center, you may also provide your practice address and board certifications. Professional members may participate in listservs hosted on third-party platforms; PHA does not collect data shared on these listservs, though discussions (which may include medical or treatment information) are saved on those platforms.

Healthcare Professionals and Industry Members (Paid Membership)
In addition to the required contact fields collected from all members, healthcare professionals provide credentials, medical specialty, institution or clinic name, job title, work address, and work phone. If you opt in to public directories such as Find a PH Specialist or Find a Care Center, you may also provide your practice address and board certifications. Professional members may participate in listservs hosted on third-party platforms; PHA does not collect data shared on these listservs, though discussions (which may include medical or treatment information) are saved on those platforms.

Conference, Symposium, and Event Attendees
When you register for PHA conferences, symposia, or other events, we collect your full contact information, relationship to PH, dietary restrictions, emergency contact details, t-shirt size, and support group leader or volunteer affiliation. Optionally, you may provide credentials, nickname, institution or PH Care Center affiliation, and indicate your interest in research studies, industry engagement, or our mailing list. If you require a U.S. visa letter, we will also collect your date of birth, gender, passport number and expiration date, nationality, and hotel name. For wellness expos, we collect first name, last name, email, address, and connection to PH. For webinars, we collect your name, email address, and relationship to PH, which is submitted to the webinar platform.

Scholarship Applicants and Awardees
If you apply for a conference scholarship, we collect your first name, last name, email, cell phone, connection to PH, PH diagnosis, household annual income, previous scholarship recipient status, last PHA conference attended, and scholarship type requested. If you are awarded a scholarship that includes travel or hotel accommodations, we also collect your departing airport, date of departure, and shoulder hotel night preferences, in addition to the standard registration information.

Grant Applicants and Awardees
Research grant applicants submit their name, email, institutional affiliation, CVs or biosketches, research proposals, and budget information through ProposalCentral (Altum), a third-party grant management system. PHA accesses and reviews this information but does not directly host or initially collect it. For awarded grants, PHA collects progress reports, financial reports, and institutional payment details. We also maintain limited information for Scientific Leadership Council Research Committee members, including name, email, and institutional affiliation, for purposes of grant review coordination.

Donors and Fundraisers
When you make a donation or participate in fundraising activities, we collect your contact information, relationship to PH, and payment method data (such as credit card number and expiration date). All payment data is encrypted and processed in compliance with the Payment Card Industry Data Security Standard (PCI-DSS). PHA does not store or collect your payment card details. PHA can see only the last four digits of your payment account. For monthly giving donors, staff may manually enter payment data, but full account information cannot be retrieved afterward, and is not visible to PHA. We do not store full credit card numbers or security codes.

Volunteers (Including Support Group Leaders and Committee Members)
If you sign up to volunteer, we collect your contact information, relationship to PH, and preferred language. Support Group Leaders provide their name, email, phone number, state, and city, which may be listed in a public directory with their consent. Committee and subcommittee applicants volunteering in a professional capacity provide their name, email,
credentials, phone, address, CV or resume, headshot, and years in practice. Professional Mentorship Program applicants also provide their institution. If you participate in advocacy through our Take Action feature, your name, email, address, and phone number are submitted to CongressWeb to facilitate contacting your congressional representatives.

Peer Mentor Program Participants
Participants in our Peer Mentor Program provide contact and demographic information, as well as their connection to PH (patient, caregiver, parent, etc.), treatments (current or prior), areas of experience (oxygen, titration, transplant support, CTEPH, caregiving, etc.), chronic illnesses connected to their PH, and year of diagnosis. This information is publicly shared so that patients can find mentors with relevant experience. By participating in the Peer Mentor Program, you consent to the public disclosure of this sensitive health information.

Online University and Continuing Education Participants
Participants in PHA’s Online University (RiSE) provide their first name, last name, email, country, address, city, state/province, postal code, medical specialty, profession, date of birth, and NABP eProfile ID (pharmacists only). This information is required for CME/CE accreditation and auditing purposes. PH Certificate Program registrants provide similar information including profession, credentials, year started practice, number of PH patients seen per year, and institution. Speakers receiving honoraria payments provide W-9 forms with Social Security Numbers and addresses, which are used solely for payment processing.

We collect information about your browser, device and interactions with PHA’s website. This data helps us improve the functionality, performance, user experience, analytics and effectiveness of our programs and outreach. Automatically collected data may be combined with other information you provide.

Below, we describe how we use information from each group:

Patients and Community Members
We use patient and community member information for marketing segmentation based on relationship to PH, location, and diagnosis data. This includes targeted email campaigns and direct mail for fundraising and outreach. PHA may send paid sponsored emails from pharmaceutical companies and research institutions to targeted groups based on demographic and diagnosis information; these emails include disclosure statements and opt-out options. Employer data may be used for workplace giving and matching gift fundraising efforts.

Healthcare Professionals and Industry Members
We use healthcare professional information for membership administration and access to professional resources, including treatment protocols, PHA Online University, and professional listservs. We also use this information for marketing segmentation and email campaigns. If you opt in to public-facing directories (Find a PH Specialist, Find a Care Center,), your information will be displayed as specified.

Conference, Symposium, and Event Attendees
We use event attendee information for event administration, logistics, and attendee management. Registration information is written to our database and used for identification and engagement scoring. We may use this information for marketing purposes and retargeting via third-party platforms to promote future events.

Scholarship Applicants and Awardees
We use scholarship applicant information to evaluate applications and award conference scholarships. Scholarship data may be manually extracted for recordkeeping purposes.

Grant Applicants and Awardees
We use grant applicant information for application review, evaluation, and grant administration via ProposalCentral (Altum). We maintain a historical internal database of previously funded grants for reporting and organizational records. Grant-related records may be retained for historical, reporting, and compliance purposes.

Donors and Fundraisers
We use donor information to process gifts, issue tax receipts, acknowledge contributions, and share updates about the impact of donor support. We may use this information for marketing segmentation and fundraising campaigns via email and direct mail. Employer data may be used for workplace giving and matching gift outreach. Donors may give anonymously or opt out of public recognition at any time.

Volunteers (Including Support Group Leaders and Committee Members)
We use volunteer information for volunteer coordination and program administration. Support Group Leaders who opt in may be listed in our public-facing directory. Committee and mentorship program data is used for program administration. Advocacy participant data submitted through Take Action is used to facilitate contacting your congressional representatives.

Peer Mentor Program Participants
Peer Mentor Program information is publicly shared so that patients can find mentors with relevant experience. This is the only group whose health data is intentionally made publicly available. You must consent to this public disclosure to participate in the program.

PHA Online University and Continuing Education Participants
We use PHA Online University and continuing education information for CME/CE accreditation compliance, program administration, and certificate issuance. Date of birth and NABP eProfile IDs are collected specifically for accreditation and regulatory requirements. Honoraria payment data is used solely for payment processing.

Site Registration and Profile Updates
Information provided during site registration is only used to provide you with targeted content and allows you to access specific features, such as updating your contact information. Profile updates to your contact information will only be used for internal purposes unless you have opted into a directory. We will only make your information available in a directory if you have opted in. When opting in to a directory, please take special note of what information will be made available in the directory and to whom.

Surveys and Voluntary Submissions
Occasionally, we may invite you to participate in online surveys. These surveys help us improve our programs and better serve the PH community. Participation is voluntary, and any personal information you share will not be disclosed to third parties without your consent, which may be collected at the time of the survey. Responses may be used to compile anonymous reports or determine eligibility for programs or events. If you share a personal story or agree to be featured in a PHA article, we will always obtain your consent before publishing your name or story. We may contact you about opportunities to participate in media, education, or awareness campaigns.

IP address: PHA may use the IP address of all site visitors to assist us in diagnosing problems with our server, analyzing user trends and traffic patterns, tracking user movement, improving web site design and layout, and administering the web site. Your IP address is a number automatically assigned to your computer when you use the Internet and cannot be linked to personally identifiable information. Accordingly, the information obtained from your IP address may be used only as aggregated and anonymous data, and we will never know who you are unless you specifically tell us.

Other device and technical information: We may collect information about the computer or mobile device you use to access our services, including:

  • IP address.
  • Hardware model.
  • Operating system version.
  • Browser type and settings.
  • Mobile network information.
  • Language and time zone settings.
  • General location or geolocation data.
  • Other technical identifiers.

User interaction and site activity: We may log information about your interactions with our services, such as:

  • Pages viewed and features accessed.
  • Date, time and duration of visit.
  • The referring website or link.
  • Navigation patterns within our site.
  • Whether you have started or completed a registration, form or donation.
  • Downloads or actions taken on specific pages.

Email and link engagement: If you receive emails from PHA, we or our third-party service providers may collect data about your interactions with those emails. This information may be collected through the use of pixel tags (also known as clear GIFs or web beacons), which may be embedded invisibly in PHA emails. Data collected may include:

  • Whether you opened the email
  • Which links you clicked
  • Whether the message was delivered or bounced
  • Your IP address, which is collected when you open an email campaign and may be used to determine your general geographic location for the purpose of identifying contacts within a specific area

We may also track how you interact with links from PHA across third-party platforms or communications.

Cookies and similar technologies: PHA and our service providers use cookies, pixel tags and other tracking tools to:

  • Save user preferences.
  • Analyze traffic and usage patterns.
  • Personalize your website experience.
  • Deliver more relevant outreach and advertising.

You can manage cookie preferences in your browser settings; however, please note that disabling cookies may impact some site features. For more, see the Cookies and tracking technologies section.

We may also collect information about you from additional online or offline sources. This includes:

  • Social media platforms.
  • Partner organizations.

We may combine this information with the personal information you’ve provided to help improve our outreach, services and communications.

We share data as needed to operate our services and fulfill the purposes described in this policy. We share data with service providers who process information on our behalf under written agreements that include confidentiality, security and data-use restrictions. These service providers are required to use the data only for the services they perform for PHA and to delete or return the information once their work is complete.

Categories of service providers and processors may include:

Payment processors: To securely process your donations or membership payments, we share necessary transaction information with trusted credit card processing companies.

Service providers: We may share information with companies or consultants that provide services on our behalf, such as:

  • Web hosting and IT support.
  • Email distribution and direct mail (e.g., Mailchimp, which we use to send newsletters and other communications).
  • Professional advisors.
  • Event management.
  • Payment processing.
  • Data analytics and market research.
  • Advertising platforms (Learn more in the Cookies and tracking technologies section).

These providers are permitted to use your information only to perform contracted services for PHA and may not use it for their own purposes.

Partner organizations: We may share limited information with research collaborators, awareness campaign partners, or nonprofits we work with to co-host events, administer programs or advance PH-related initiatives.
Compliance and legal obligations: We may disclose your information to comply with applicable laws and regulations, including court orders, subpoenas or law enforcement requests.

We may also share information to:

  • Enforce our terms of use or other policies.
  • Address suspected fraud or security concerns.
  • Respond to emergencies.
  • Protect the safety, rights or property of PHA or others.

Event sponsors: PHA may make certain event attendee information available to sponsors in connection with PHA conferences, symposia, and other events. This information is limited to the names of healthcare professional registrants and does not include email addresses or other contact details. PHA does not share the names or personal information of patient or caregiver attendees with sponsors. Sponsors do not receive any additional attendee data unless a participant elects to provide it directly to the sponsor. PHA may receive payment from sponsors in connection with making attendee names available as described in this section.

We permit access to personal data only to third-party service providers who perform essential functions on our behalf. These vendors are contractually required to protect your information, use it solely for the services they provide to PHA, and maintain its confidentiality.

We may disclose limited, non-identifiable data—such as zip code, age or gender, in aggregate form, to support research, outreach or reporting.

In certain cases, and only with your explicit consent (e.g., through an opt-in form), PHA may offer you third-party services or information tailored to your preferences.

As described above, PHA may make certain event attendee information available to sponsors in connection with PHA conferences, symposia, and other events.

PHA also reserves the right to revoke access to services or terminate user accounts if it learns that false or misleading registration information was submitted.

PHA occasionally sends promotional or engagement emails on behalf of third parties, including PH Care Centers, pharmaceutical companies, researchers, or other partners. These emails are sent by PHA directly — we do not share your personal information (such as your name, email, or medical history) with these third parties. Messages may include:

  • Invitations to participate in surveys or research studies.
  • Announcements about relevant educational or product offerings.
  • Opportunities to learn about clinical trials or programs related to PH.

These emails are targeted based on limited criteria, such as general interest, program engagement, or demographic information you have provided. PHA controls access to this information — sponsors do not receive any data unless you elect to provide it directly.

You can opt out of receiving these types of communications at any time by clicking the unsubscribe link in the engagement email or by updating your communication preferences in your PHA account.

When you subscribe to communications from PHA (newsletters, email alerts, event announcements), you can expect to receive updates about PHA programs, free resources, upcoming events, and ways to get involved in the PH community. We do not share our contact lists with third parties. You can opt out of these communications at any time by using the unsubscribe link in any email or by updating your preferences in your PHA account.

We use cookies, web beacons, pixels, and similar tracking technologies on our website to enhance your experience, analyze website traffic, and support our advertising efforts. Cookies are small text files stored on your device that help us understand how visitors use our site and allow us to serve more relevant content.

We use a consent management platform (CookieYes) to present cookie choices before setting non-essential cookies (e.g., analytics or advertising) in jurisdictions where consent is required, such as the European Union and United Kingdom. Visitors can change or withdraw consent at any time using the persistent “Cookie Settings” link in the website footer.

We use, and allow certain third parties to use, cookies, web beacons, and other similar technologies to enhance our services and to help collect data. We, or third parties, may use session cookies or persistent cookies. Session cookies only last for the specific duration of your visit and are deleted when you close your browser. Persistent cookies remain on your device until you delete them or they expire. Different cookies serve the following functions:

Strictly Necessary Cookies: These cookies are essential to enable you to move around our website and use its features, such as accessing secure areas via login. Without these cookies, certain services cannot function properly. These cookies cannot be disabled.

Functional Cookies: These cookies store data for website services and may be used to customize the user interface and store your preferences. Some forms may use functional cookies to remember if you have already registered or to show certain notifications. If you do not allow these cookies, some services may not function properly.

Performance and Analytics Cookies: We use cookies to see how visitors use our website in order to enhance performance and improve our services. We use Google Analytics, a web analytics service provided by Google Inc., which uses cookies to analyze your use of the website. The information generated by the cookie is usually transmitted to a Google server in the USA and stored there. For more information about Google Analytics, please visit www.google.com/policies/privacy/partners/. You can opt out of Google’s collection and processing of data by visiting https://tools.google.com/dlpage/gaoptout.

Targeting and Advertising Cookies: We receive audience-based data from certain third-party providers based on information such as IP addresses. These cookies may be used to build a profile of your interests and show you relevant advertisements on other sites. They do not directly store personal information but are based on uniquely identifying your browser and device. If you do not allow these cookies, you will experience less targeted advertising.

Social Media Cookies: These cookies are set by social media services that we have added to the site to enable you to share our content with your friends and networks. They are capable of tracking your browser across other sites and building up a profile of your interests. If you do not allow these cookies, you may not be able to use or see these sharing tools.

Managing Cookies: You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. The help feature on most browsers provides information on how to accept, disable, or be notified about cookies. Please note that blocking strictly necessary cookies will prevent you from accessing certain features of our website. For more information about cookies and how to block them, please visit allaboutcookies.org. To opt out of the use of cookies, you can disable them via your browser settings.

Do Not Track Signals: Your browser settings may allow you to automatically transmit a “Do Not Track” signal to online services you visit. Note, however, there is currently no industry consensus as to what site and app operators should do with regard to these signals. Accordingly, unless and until the law is interpreted to require us to do so, we do not monitor or take action with respect to “Do Not Track” signals. For more information on “Do Not Track,” visit https://www.allaboutdnt.com.

PHA uses third-party tools to track user interactions on our website and deliver targeted advertising to users based in the United States. These tools use cookies and similar technologies to help us build audience segments, retarget past visitors, and measure campaign effectiveness. The data collected may include your IP address, browser type, pages visited, and other usage information. Although PHA has a global audience, advertising campaigns only target users located in the United States, and users outside the U.S. are excluded from retargeting.

PHA currently uses:

  • Feathr: We use Feathr, a nonprofit marketing platform, for retargeting visitors to the PHA website with ads to promote events such as our Conference and Symposium. Feathr collects geolocation data and IP address to deliver relevant ads. To opt out of Feathr tracking, visit Feathr’s Privacy FAQs at https://www.feathr.co/privacy-policy.
  • Meta Pixel (formerly Facebook Pixel): We use the “visitor action pixels” from Meta on our website. This allows user behavior to be tracked after being redirected to our website by clicking on a Facebook ad. This enables us to measure the effectiveness of Facebook ads for statistical and market research purposes. The data collected is anonymous to us — we do not see the personal data of individual users. However, this data is stored and processed by Meta, which may link this information to your Facebook account and use it for promotional purposes in accordance with Meta’s Data Policy. You can object to the collection of your data by Meta Pixel, or to the use of your data for displaying Facebook ads, in your Facebook account settings. View Meta’s Privacy Policy at https://www.facebook.com/privacy/policy/.
  • LinkedIn Insight Tag: The LinkedIn Insight Tag is a piece of code on our website that enables campaign reporting and helps us understand our website visitors. We use it to track conversions, retarget website visitors, and gain insights about members interacting with our LinkedIn ads. The tag collects metadata such as IP address, timestamp, and page view events. All data is encrypted. The LinkedIn browser cookie is stored until deleted or expired. You can opt out of LinkedIn cookies in your LinkedIn settings. View LinkedIn’s Privacy Policy at https://www.linkedin.com/legal/privacy-policy.
  • Google Analytics: We use Google Analytics to monitor traffic to the PHA website. Google Analytics uses cookies to analyze your use of the website. None of this information can be used to identify individual users. You can opt out of Google’s collection and processing of data by going to https://tools.google.com/dlpage/gaoptout. Note that Google’s opt-out mechanism is specific to Google activities and does not affect the activities of other ad networks or analytics providers.

Online Advertising Networks: In the U.S., the opt-out pages offered by the Network Advertising Initiative and the DAA’s AboutAds program offer a means to opt out of a number of advertising cookies. Please visit the Network Advertising Initiative (https://thenai.org/opt-out/) and the DAA’s AboutAds program (https://optout.aboutads.info/) to learn more. Note that opting out does not mean you will no longer receive online advertising. It does mean that the company or companies from which you opted out will no longer deliver ads tailored to your web preferences and usage patterns.

Opting out through the above methods will cause one or more opt-out cookies to be set on your browser or device to indicate that you have opted out. Note that opt-outs are browser- and device-specific, so opting out on one browser will not affect a second browser or device that you use. For the same reason, if you buy a new device, change browsers, or clear all cookies, you will need to perform this opt-out task again.

This section describes your rights and explains how to exercise those rights. Subject to certain limitations (such as our legal obligations), you have the right to access, to obtain a copy of, to correct, to opt-out of the sale or sharing and to delete your Personal Information. You also can limit the means or frequency of certain communications. You may visit mypha.PHAssociation.org to access and update your contact information, or adjust your privacy settings and communication preferences directly in your account. To request access to review, update or correct your personal information, or to request deletion of your personal data, please contact us at Web@PHAssociation.org. Please provide credible documentation for any errors so we can verify and make appropriate corrections. To protect your privacy and security, we may need to verify your identity before processing your request.

Under Nevada law, certain Nevada consumers may opt out of the sale of personally identifiable information for monetary consideration to another person. PHA does not sell your personal information to third parties for monetary consideration. However, as explained in the Section 4 (How We Share Your Information) above, PHA may provide your name to event sponsors when you register to attend a PHA event or conference, and this may constitute a sale of your personal information under Nevada law. If you are a Nevada resident and have questions, or and wish to opt-out of having your information shared in this manner, please contact us at Web@PHAssociation.org.

PHA does not knowingly request or collect information from any person under 13 years of age without parental consent. If you believe that your child has submitted Personal Information to PHA without your consent and you would like this info restricted or removed, please email Web@PHAssociation.org.

All data collected by PHA is processed and stored in the United States, where our servers and service providers are located. By using our website or providing your information, you acknowledge that your personal data may be transferred to and processed in the United States, which may have different data protection standards than your country of residence.

We take reasonable measures to ensure that any personal information transferred internationally receives adequate protection in accordance with this Privacy Policy.

If you are in the state of Washington, please note that the My Health My Data Act provides additional protections for “consumer health data.” By submitting any information that may relate to your health through our website or related forms, you consent to its collection and use solely for the purpose for which it was provided (for example, to fulfill a support or event request). Please see PHA’s Washington My Health My Data Act Privacy Policy.

We recognize that you may wish to control or limit the ways in which we contact you and/or share your Personal Information, including for fundraising purposes.

Email: You can manage your email communication preferences at any time. Each marketing email from PHA includes an unsubscribe link at the bottom, allowing you to opt out of future promotional messages.

You may also log in to your PHA account at mypha.PHAssociation.org and customize the types of emails you receive, or stop them entirely by choosing the “unsubscribe from all” option.

Please note that even if you unsubscribe, we may still send transactional emails related to your account, donations or events you have signed up for.

If you later reengage with PHA (for example, by signing up for an event or newsletter), and do not indicate a preference to remain unsubscribed, we may resubscribe your email to ensure you receive important updates.

SMS opt-out: If you want to stop receiving text messages from PHA, reply with STOP or UNSUBSCRIBE to the number from which you received the message. After we receive your reply, you no longer will receive text messages from us.

Email Security: Email transmissions are generally not secure. PHA recommends that you do not send sensitive information such as account numbers, passwords, or financial information via email.

PHA complies with applicable laws governing electronic communications, including the CAN-SPAM Act and the Telephone Consumer Protection Act (TCPA). All promotional emails include a clear unsubscribe option and PHA’s physical mailing address.

For promotional SMS messages, PHA obtains prior express written consent before sending texts. By signing up for text message updates, you agree to receive text messages from Pulmonary Hypertension Association at the mobile number provided by the user. Message frequency may vary based on your interactions, upcoming events, or important notices from Pulmonary Hypertension Association. Message and data rates may apply.

You can request help by responding to a text message with HELP or by emailing web@phassociation.org. You can opt out of receiving text messages at any time by replying STOP to any message.

PHA takes reasonable measures to safeguard your personal information and ensure its accuracy and appropriate use. We maintain physical, electronic and administrative safeguards designed to protect your information from unauthorized access, loss, misuse or alteration.

Financial transactions are processed securely in compliance with the Payment Card Industry Data Security Standard (PCI DSS). These safeguards may include:

  • Secure socket layer (SSL) encryption.
  • Password-protected servers.
  • Role-based access controls.
  • Monitoring tools and periodic security audits.
  • Staff training on data protection best practices.

Despite our efforts, no website or data transmission is guaranteed to be 100% secure. Consequently, we cannot ensure or warrant the security of any information you transmit to us. Any information that you transfer to us is done at your own risk. If we learn of a data security breach, we may attempt to notify you electronically regarding security, privacy, and administrative issues relating to your use of our services, in accordance with applicable law.

PHA retains personal information only as long as necessary to fulfill the purposes for which it was collected, comply with legal obligations, resolve disputes, and enforce agreements.

Retention periods vary depending on the type of data and purpose of use:

  • Donation and financial records are retained for the period required by applicable tax and accounting laws (typically seven years).
  • Membership and program participation records are kept while your membership or participation is active and for a reasonable period afterward to maintain continuity and respond to inquiries.
  • Email and communication preferences are maintained until you unsubscribe or request deletion.
  • Analytics and website log data are retained for a shorter period (up to 36 months) to support site performance and usage analysis.
  • Event and consent forms (e.g., media releases or voluntary story submissions) are retained if the related content remains active or published, unless you withdraw consent.

When data is no longer needed, PHA securely deletes or anonymizes it in accordance with our data retention and destruction procedures. We may also retain data from which you cannot directly be identified, for example where stored against a randomly-generated identifier, for research purposes and to help us develop and improve our services.

When processing donations, membership fees, or event registrations, PHA uses third-party payment processors that are certified under the Payment Card Industry Data Security Standard (PCI-DSS). These processors handle all payment transactions on secure, encrypted servers. PHA does not store or collect your payment card details. That information is provided directly to our third-party payment processors, whose use of your personal information is governed by their respective privacy policies.

PHA may host or participate in online discussion boards, Facebook groups, email groups or other public forums. These platforms are not private and may be visible to other participants, members or third parties.

While we may moderate content to prevent abuse, we cannot guarantee the privacy of any personal, contact or medical information you disclose in these forums. You share information in public spaces at your own risk.

Our website may include links to third-party websites that we believe offer useful or educational content. PHA is not responsible for the content, practices or privacy policies of these external sites. We encourage you to review their privacy policies before providing personal information.

As PHA evolves, expanding our programs, services and digital tools, this Privacy Policy may be updated to reflect those changes. We reserve the right to revise this policy at any time, for any reason. When we do, we will update the “Last updated” date at the top of this page.

We encourage you to review this page periodically to stay informed about how we protect your information.

Questions or Concerns?

If you have any questions or concerns about our privacy policies or practices, we would like to know what they are so we can address them. Please contact us at PHA@PHAssociation.org.

Privacy Rights

If you have questions about your privacy rights or would like to appeal a response to a privacy request, please contact us at PHA@PHAssociation.org, and a member of our team will respond as soon as possible.