About PHA

We are the largest and oldest pulmonary hypertension association in the world, and together, we are changing the history of an illness.

The PH patient is at the heart of all that we do.

We started from simple beginnings in 1991 when three patients and a nurse met around a kitchen table in Florida. Support groups and a printed newsletter, Pathlight, connected patients of a disease so rare most patients felt isolated and alone. Research conducted at our first conference in 1994 led to the first PH treatment.

Since then, the Pulmonary Hypertension Association has evolved into an international community of people with PH, caregivers, family members, health care professionals, industry professionals and researchers working to support patients and find treatments and improved care for PH.

In 2025 we accredited the 100th PH care center, a national program created to ensure and improve expert care. Today our voluntary patient registry across the US collects data from thousands of patients with the aim of improving care and treatment of all patients, from infants to seniors.

We work closely across the globe with affiliated patient-centered and professional organizations of related conditions and diseases on education, advocacy and disease awareness.

PHA is a 501(c)(3) nonprofit organization that relies on donations to fund its many programs, including a network of 200-plus patient and caregiver support groups, lifesaving early diagnosis awareness and education programs, specialty care resources, and research to prevent and cure PH.

We work every day to end isolation, provide education and find a cure for pulmonary hypertension.

• How PHA Fulfills Its Mission

  To achieve our mission and ultimately realize our vision, PHA will advocate for the PH community. Learn how we plan to extend and improve the lives of those affected.

• PHA Board of Trustees

  The Pulmonary Hypertension Association is governed by a diverse group of dedicated and passionate volunteers affected by pulmonary hypertension. Our Board of Trustees consists of people with PH, family members and medical professionals dedicated to treating and researching PH. All serve without compensation.

• History of the Pulmonary Hypertension Association

  This timeline shows the first 30 years of Pulmonary Hypertension Association history, starting with our founding in 1991.

• Accountability

  Browse the Pulmonary Hypertension Association’s most recent annual reports and financial statements.