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Managing Your Health

Find tips for medication and treatments, and other ways to manage your health, from questions to ask your pulmonary hypertension care team to focusing on nutrition, exercise and your mental health. We also offer guidance on respiratory health, reproductive health and how to involve palliative care.

Managing health care and medication regimens quickly becomes a major part of life for people living with pulmonary hypertension. PH may raise unique considerations such as catheter care, proper mixing and storage of medication and coping with nausea.

Many individuals with PH have more energy and improve their quality of life when they eat well, get plenty of rest and engage in exercise. A focus on your mental health and engaging in ways to reduce stress may also help.

Managing your symptoms and medications

  • Your PH Care Team 

    Your care team includes health care professionals who care for people with pulmonary hypertension, and most importantly, you.

  • Identifying Urgent PH Symptoms

    Knowing which symptoms are common to individuals with pulmonary hypertension and which require immediate attention is important to learn for both patients and caregivers.

  • Managing Nausea and Vomiting

    Nausea and vomiting can be side effects of some pulmonary hypertension drugs. Here’s what you can do. Since these symptoms can also be caused by heart failure common in PH, let your medical team know what you are experiencing.

  • Best Practices in Catheter Care

    If you are receiving medication through a pump, it’s important to prevent catheter-related infections and what to do in case of an emergency.

Treatment of PH is a partnership. Here’s how to be more involved.

Take an active role in your own treatment plan, from setting goals and expectations to voicing concerns about side effects. Learn more from a PH expert about asking the right questions and how to stay knowledgeable about your condition.

 

Be Involved

Ways to manage your health and wellbeing

  • Coping With Pulmonary Hypertension

    There is no wrong way to feel about a pulmonary hypertension diagnosis or about your first, second, tenth or twentieth year of living with the disease.

  • Diet and Nutrition

    To avoid medication interactions, reduce stress on your heart and improve your energy, it’s critical to monitor what you eat and drink if you have pulmonary hypertension.

  • Reproductive Health: PH, Pregnancy and Contraception

    If you are living with pulmonary hypertension, pregnancy requires special consideration due to known health risks, including an increased risk of death, for both mother and child. It is HIGHLY recommended to avoid pregnancy to help ensure the best possible outcomes and maintain quality of life for those with PH.

  • Palliative Care for Pulmonary Hypertension

    Along with medical care that addresses treatment of PH, individuals can also benefit from palliative care that helps improve quality of life, manage pain and reduce stress for those suffering from a serious disease.

Busting myths about PH

Pulmonary hypertension is a widely misunderstood and misrepresented condition and some of the alarmist and misleading information found on the internet doesn’t help. A PH specialist addresses some of the common myths you may have heard about PH and provides accurate, evidence-based information.

Learn more
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