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Caregivers

Caregivers or care partners provide essential support, from coping to managing care, for people with pulmonary hypertension.

If someone you care about has been diagnosed with pulmonary hypertension, you may find yourself taking on unfamiliar responsibilities that put you in the role of a caregiver. Find out what you can do to help, and connect with other caregivers for information and support.

A Caregiver’s Role

Whether you’re a spouse, parent, son or daughter, friend, neighbor or teacher, your support can help your loved one lead a happy and full life. A good place to begin is to learn as much as possible about PH. And it’s important to take care of yourself, too.

  • Caregiver Self-Care  

    Recognizing the early warning signs of stress can help you make changes before you become overwhelmed.

    Living with PH

  • Caring for a Child with PH 

    Caring for a child diagnosed with pulmonary hypertension means making informed choices and ensuring your child receives the best care possible. Learn about the resources available as your family adjusts to life with this illness.

    Living with PH | Pediatric PH

Doctors who treat PH

A pulmonary hypertension specialist is important to treat PH, which is a complicated and progressive condition. If you need to find a clinician, take a look at our PH specialist directory to find a PH professional near you.

Find a specialist

Learn more about pulmonary hypertension

The more you know about PH, the more you can help your loved one. PHA offers free resources for those affected by PH. Choose the best way for you to learn, through videos, podcasts, online information, printed materials or in-person events.

‘I could write a book about the first two years after Barbara’s diagnosis. I learned a whole lot more than I wanted to know about PH.’

Chuck Thompson, Memphis, Tennessee

Order our free guide on PH

Empower your loved one with PHA’s free booklet, Navigating Pulmonary Hypertension, A Guide for Newly Diagnosed Patients. This 60-page booklet, available to order as a print copy or download, provides practical advice as you begin your journey together with PH.

Order Navigating PH

Connect with other caregivers

PHA offers multiple ways for caregivers to reach out to one another, share stories, support each other, swap strategies and connect. All PHA Support Groups welcome caregivers and many are run by individuals who care for someone with PH.

Caregiving Resources

  • Caring Connections, a program of the National Hospice and Palliative Care Organization, provides information for caregivers about providing physical care and comfort for your loved one, caring for yourself, financial information, advance care planning, tips for getting organized and caring for a child with a serious illness.
  • Family Caregiver Alliance offers programs at the national, state and local levels to support and sustain caregivers, and quick tips and FAQs about relevant caregiving topics.
  • The Family Care Navigator provides links to relevant state-by-state resources.
  • MedlinePlus’ resources for caregivers address a range of topics including how to cope with stress and burnout, financial issues, relevant research, statistics on caregiving and more
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