“Navigating Pulmonary Hypertension: A Guide for Newly Diagnosed Patients,” is a 60-page guide for people with PH and their loved ones. The book is designed to help you find answers, support and hope during the first few weeks, months or years after a PH diagnosis.
Educational Materials
Access our Pulmonary Hypertension Association’s educational materials for patients, including Navigating Pulmonary Hypertension, associated condition brochures and our intimacy guide.
PHA offers free printed materials for patients with pulmonary hypertension. Navigating Pulmonary Hypertension and our series of associated condition brochures are available to download in English or Spanish.
- Navigating Pulmonary Hypertension
- Navegando las aguas de la hipertensión pulmonar
Enterarse de que tiene hipertensión pulmonar puede resultar abrumador, pero no está solo. Al igual que las decenas de miles de personas diagnosticadas con HP antes que usted, cuenta con una comunidad compasiva e inspiradora de personas dispuestas a ayudarlo.
- Living With PH: A Guide to Intimacy
A Guide to Intimacy is for all couples who may find PH affects their body image, their energy and their intimate relationships.
- Related Conditions
There are many related conditions that increase the risk of pulmonary hypertension. Each related condition page includes a downloadable brochure.
Toolkits
PHA also offers additional resources for patients in PDF format for easy download. These include school resources for children with PH and an Empowered Patient Toolkit that includes emergency information for EMTs and ways to organize and document your test results and medications.
- Empowered Patient Toolkit
Worksheets and checklists help you stay organized for routine doctor’s appointments, hospital stays, travel and emergencies.
- PHA School Resource Guide
Use PHA’s templates and letters to educate your school staff about pulmonary hypertension, create a medication and activity list for the school nurse and prepare emergency information.
Are you a PH professional and a member of PHA?
Visit our members only section to find these resources: