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Living With PH

Pulmonary hypertension can affect every aspect of your day-to-day routine, whether you’re newly diagnosed, someone who has lived with PH for many years, a teen or young adult, a caregiver or a parent. Here's how to live your best life, take care of your health, find the support you need and manage insurance, treatment access and financial assistance.

From managing your medications, diet, exercise and mental health to finding the energy you need to work or travel, here are ways you can live your best life with pulmonary hypertension. In-person and online support is available, as well as advice on how to navigate insurance and treatment access issues and where to find financial assistance.

  • Managing Your Health

    Find tips for medication and treatments, plus information on nutrition, exercise, mental health, respiratory health, reproductive health and palliative care.

  • Managing Daily Life

    Balancing your health with a job, travel and day-to-day activities can sometimes be overwhelming. Find tools, tips and resources to manage those challenges and prepare for emergencies.

  • Support

    PHA support services offer connections, knowledge and empowerment. Connect through support groups, peer mentors or our patient and caregiver support line.

  • Insurance and Financial Assistance

    Discover resources to help you understand your health insurance benefits, Medicare and Social Security Disability. Plus, find financial assistance to help you pay for your medication and other health services.

  • Treatment Access

    People with pulmonary hypertension deserve prompt, affordable access to treatments their PH specialists prescribe.

  • PHA Classroom

    PHA Classroom is a 24/7 educational platform that features videos and resources on a variety of medical and lifestyle topics for people with PH and their families.

Your journey with PH

  • Newly Diagnosed

    Learning that you have pulmonary hypertension can be overwhelming, but you’re not alone, whether you have a type linked to left heart disease or sleep apnea or a rare form of pulmonary arterial hypertension. Your journey is unique to you, and we’re here to help you feel supported and provide you with the information you need.

  • Caregivers

    Caregivers or care partners provide essential support to an individual with pulmonary hypertension, from coping to managing care.

Empowered Patient Toolkit

Download these PDFs to help you organize your medications, keep emergency tips close at hand and take notes when you visit your PH care team.

Access the toolkit
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