Full of Heart, Fueled by Hope
Read Charlotte McFarland’s PAH story and her family’s journey, shared to raise awareness during American Heart Month.
Right Heart Blog
The PHA community is a network of people with diverse backgrounds and experiences living their best lives. PHA highlights those experiences through inspiring first-person stories in our Right Heart Blog.
PH Community Stories
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Support Group: ‘The Right Place To Give Back’Olivia Edelen of PHA’s Piedmont PHriends Support Group shares her story in the December 2025 issue of Pathlight magazine.
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New Path Forward After PTE SurgeryKavon Clayton, 33, was diagnosed with pulmonary embolisms in 2022 and pulmonary hypertension in 2024. This year, Clayton, of Hammond, Louisiana, underwent pulmonary thromboendoarterectomy surgery to improve her quality of life.
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Musician Raises PH Awareness Through SongSinger-songwriter Chloe Temtchine has raised PH awareness through music since her 2013 diagnosis. Recently, Chloe collaborated with rapper Freeway on a song to shed light on PH and the power of organ donation.
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Stay Ahead of the GameRon Ancrum, 76, was diagnosed with pulmonary arterial hypertension in 2017. He retired in 2018 to focus on his physical and emotional health.
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Choosing Positivity: EmPHasizing Health While Living with PHDanielle Carchman, 28, shares her inspiration for PHA’s Pulmonary Hypertension Awareness Month theme. Since Carchman’s 2-24 pulmonary arterial hypertension diagnosis, she prioritizes mental and physical wellness.
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Finding peace in the eye of the stormKeish Jackson lives with four chronic illnesses — lupus, scleroderma, interstitial lung disease and pulmonary hypertension. For ILD Awareness Month, she shares her diagnosis journey and how she balances her conditions with being a mother, wife and patient advocate. Jackson is from New Orleans and has a 23-year-old son and 16-year-old daughter.
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Inspiring Hope Among Young Adults with PHJanessa Curnow, 34, is a Pulmonary Hypertension Association support group leader from Grand Rapids, Michigan. She worked in finance until 2013 when she was diagnosed with pulmonary arterial hypertension. She has volunteered for PHA’s Generation Hope programs since 2018.
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PH and Pageantry: Taking the Stage for Awareness and Self AdvocacyElise Firestone, the reigning Miss Connecticut for America Strong, has competed in pageants and fitness and dance competitions for many years. In addition to competing, she is a sales representative for Bausch and Lomb and has a 9-year-old daughter. Firestone, 42, was diagnosed in 2002 with idiopathic pulmonary arterial hypertension and raises PH awareness through competitions.
