The PHA community is a network of people with diverse backgrounds and experiences living their best lives. PHA highlights those experiences through inspiring first-person stories in our Right Heart Blog.
After a pulmonary hypertension diagnosis, Rebecca Colby Reed Walker found support groups offer connection, shared experiences, and treatment insights.
Fundación RHYO’s painting group sells hand-painted tote bags to raise rare disease awareness and support community activities.
Audra Armstrong honors her mom by volunteering at PHA 2026 PH Conference, sharing her story and serving on the welcome committee.
Mike Naple marks 10 years living with PH, shares advocacy insights and advice for first-time advocates in his Right Heart Blog post.
Living with PH
PHA advocate Jeff Harpp shares his son Cash’s clinical trial journey for World PH Day, highlighting hope and the impact of research.
Erin Baker, diagnosed with IPAH at 17, shares her journey to a double lung transplant and advocacy work in Australia.
Diagnosis & treatment
Diagnosed with pulmonary hypertension at 12, Rim Benjaada shares her journey to specialist care and authorship for World PH Day.
Karen Duncan shares practical PAH tips—affording meds, traveling with oxygen, exercising safely, and finding specialist care.
Carson Smith shares her pulmonary hypertension journey and volunteer impact in honor of PHA’s Volunteer Appreciation Week, April 19–25.
