Share your voice to advocate for policies that will improve access to PH treatment, make health care more affordable and ensure funding for research.

Learn more about important bills before Congress and ask your lawmakers to support them. Click on an issue to email your members of Congress through our message templates.

Advocacy action alerts

SOAR Act

Keep Marketplace Plans Affordable

Safe Step Act

Clinical Trial Modernization Act

HELP Copays Act

Fund NIH in 2026

Personalizing your messages is a great way to stand out to your legislators, but don’t present your own political beliefs as statements on behalf of PHA. We engage with policy makers across the political spectrum to best serve our diverse community.

Schedule a meeting with your members of Congress

Your members of Congress work for you. Put PH at the top of their legislative agendas. Schedule a virtual advocacy visit by emailing us or calling 301-565-3004, ext. 758.

Schedule your virtual visit now

Advocacy news

  • Insurers Must Apply Copay Assistance Toward Your Health Care Costs medical-expenses-wide
    Insurers Must Apply Copay Assistance Toward Your Health Care Costs

    Insurance companies must now count copay assistance toward deductibles and out-of-pocket costs. Health and Human Services recently stopped fighting a 2020 federal court ruling that prevents insurance companies from shifting health care costs on patients through copay accumulators. The Pulmonary Hypertension Association has worked for years to end copay accumulators, which allowed insurance companies to profit from copay assistance without reducing patients’ financial burdens.

  • ‘Medicaid is a Lifeline for Many of my Patients’ Download this page as a PDF
    ‘Medicaid is a Lifeline for Many of my Patients’

    The Medicaid program is under threat in Congress. The budget bill could end health care benefits for nearly 11 million people. The bill also includes burdensome requirements that could restrict Medicaid eligibility. “[Medicaid] makes the difference between patients having access to care or going without,” says Kassandra Olgers, a PHA advocate and physician assistant at West Virginia University.

Stay informed

Sign up for PHA’s Advocacy Action Alert, a monthly newsletter about our advocacy initiatives, progress on legislative issues and tips to educate your elected officials about PH.

Subscribe to PHA newsletters