PHA History

From simple beginnings – four women who met around a kitchen table in Florida in 1991 – the Pulmonary Hypertension Association (PHA) has evolved into an international community of over 16,000 pulmonary hypertension (PH) patients, caregivers, family members and healthcare professionals. While we have grown, PHA has stayed true to our roots and the vision and ingenuity of our founders.

To commemorate our 25th anniversary in 2016, PHA honors these Periwinkle Pioneers: 25 individuals and groups responsible for advancing care for PH patients and helping to change the history of this disease.

Read more about PHA’s history below, including stories from our founders.

The PHA Story: A Short History of PHA Download PDF

Written by founders Dorothy Olson, Pat Paton, Judy Simpson and Bonnie Dukart

A Detailed History of PHA, 1987-1999 Download PDF

Written by Gail Boyer Hayes, author of Pulmonary Hypertension: A Patient’s Survival Guide

PHA History: An Overview (-2011) Download PDF

A narrative from the early days through the organization’s founding and expansion.

Honoring Rino Aldrighetti, PHA’s first President & CEO

Rino Aldrighetti joined the Pulmonary Hypertension Association (PHA) as the first paid staff member in 1999. Since that time, PHA has grown to include more than 50 staff members with four chapters around the country.

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Leading from the Heart: An Interview with PHA’s First President and CEO

Prior to Rino’s retirement in 2016, he reflected on his time with the organization and all the change and progress he has experienced. Read about Rino’s contributions to PHA or listen to the audio interview below, conducted at PHA’s headquarters on Nov. 12, 2015, by Pathlight editor Megan Mallory Martin.

What was PHA like when you became the first staff member in 1999?

What has PHA’s impact been on the international community?