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History of the Pulmonary Hypertension Association

This timeline shows the first 30 years of Pulmonary Hypertension Association history, starting with our founding in 1991.

Historical photo of PHA booth

From simple beginnings – four women who met around a kitchen table in Florida – the Pulmonary Hypertension Association has evolved into an international community of more than 16,000 pulmonary hypertension patients, caregivers, family members and health care professionals.

To commemorate our 30th anniversary, PHA created a timeline of the history of PHA and the PH community to that point. We also shared the stories of many people who have thrived with PHA for decades or many years.

PHA milestones

Scroll our 30 Milestones timeline, a celebration of the shared history of PHA and the PH community.

Stories about PHA history

  • Pat Paton: A Visionary for Patients

    Patricia “Pat” Paton was 83 when she died July 19, 2020, in Bonita Springs, Florida. Paton, along with her sister Judy Simpson and Teresa Knazik and Dorothy Olson, formed what became the Pulmonary Hypertension Association in 1991.

  • PHA Founders Among Philanthropy Award Recipients PHA2024_Kitchen_Table_wide
    PHA Founders Among Philanthropy Award Recipients

    Judy and Ed Simpson are among the recipients of the Pulmonary Hypertension Association philanthropy awards. Judy Simpson founded the organization that became PHA in 1991, along with her sister Pat Paton, Teresa Knazik, Dorothy Olson, and the women’s husbands. PHA announced the award recipients at PHA 2024 International PH Conference and Scientific Sessions.

  • Remembering Rino Aldrighetti 

    Rino Aldrighetti, who led the Pulmonary Hypertension Association for nearly two decades, died May 30, 2022. He was the first PHA employee and retired in 2016 as president and CEO.

Learn more about PHA’s history

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