Patricia “Pat” Paton was 83 when she died July 19, 2020, in Bonita Springs, Florida. Paton, along with her sister Judy Simpson and Teresa Knazik and Dorothy Olson, formed what became the Pulmonary Hypertension Association in 1991.
History of the Pulmonary Hypertension Association
This timeline shows the first 30 years of Pulmonary Hypertension Association history, starting with our founding in 1991.
From simple beginnings – four women who met around a kitchen table in Florida – the Pulmonary Hypertension Association has evolved into an international community of more than 16,000 pulmonary hypertension patients, caregivers, family members and health care professionals.
To commemorate our 30th anniversary, PHA created a timeline of the history of PHA and the PH community to that point. We also shared the stories of many people who have thrived with PHA for decades or many years.
PHA milestones
Scroll our 30 Milestones timeline, a celebration of the shared history of PHA and the PH community.
Stories about PHA history
- Pat Paton: A Visionary for Patients
- PHA Mourns Passing of Co-Founder Jerry Paton
Jerry Paton, husband of Pat Paton, and one of the founders of PHA, died Jan. 6, 2020, after a long illness.
- PHA Founders Among Philanthropy Award Recipients
Judy and Ed Simpson are among the recipients of the Pulmonary Hypertension Association philanthropy awards. Judy Simpson founded the organization that became PHA in 1991, along with her sister Pat Paton, Teresa Knazik, Dorothy Olson, and the women’s husbands. PHA announced the award recipients at PHA 2024 International PH Conference and Scientific Sessions.
- Remembering Rino Aldrighetti
Rino Aldrighetti, who led the Pulmonary Hypertension Association for nearly two decades, died May 30, 2022. He was the first PHA employee and retired in 2016 as president and CEO.
- Flolan at 25: First PH Treatment Offered Second Chance at Life
In 1995, Flolan (epoprostenol) became the first drug approved for pulmonary arterial hypertension treatment. Although Flolan is no longer manufactured, epoprostenol is available as a generic and under the brand name Veletri.