Discover the latest news from the Pulmonary Hypertension, including advocacy updates, research articles and event coverage.
The Pulmonary Hypertension Association (PHA) needs your help to demand reform for challenges associated with supplemental oxygen. PHA, along with a coalition that includes the American Lung Association and other patient organizations, is bringing forward legislation this year to address the need for oxygen-access reform. Share your stories to educate lawmakers about this important issue.
Did you know that the Pulmonary Hypertension Association merged its telephone support groups with its online nationwide support groups? All nationwide meetings now take place through Zoom calls. PHA support groups are designed for people with common interests, such as parents, young adults, bereaved families, Spanish speakers, etc., to connect. Participants receive call-in numbers after registering for specific meetings.
Health care professionals: Register for the Pulmonary Hypertension Association PH Professional Network Symposium. If you’re a doctor, nurse or other health care professional who cares for people with pulmonary hypertension, join us Sept. 28-30 in Arlington, Virginia, or online.
Joanna Grey found hope in her doctors, her family and the pulmonary hypertension community after her 2016 diagnosis. Since her 2021 death from transplant complications, her family has been striving to keep her memory alive. Joanna's family shared her story with the Pulmonary Hypertension Association for the spring issue of Pathlight, PHA's quarterly magazine, and PHA's spring fundraising campaign.
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When the Pulmonary Hypertension Association (PHA) board met in early March, immediate past chair Colleen Brunetti made time to visit Capitol Hill. She visited lawmakers and legislative staff and created a powerful video from her time in Washington, D.C.
Participants in the Pulmonary Hypertension Association (PHA)’s first Advocacy Town Hall selected PHA’s top legislative priority for this year: protecting patient access to charitable assistance. The town hall also focused on another legislative priority: oxygen access.
Study suggests transdermal delivery could be alternative to existing treprostinil administration methods.
Thymmune is developing regenerative cell therapies for potential post-transplant treatment.
Some patients can now access OxiWear through Medicare and participating insurance providers.
