Discover the latest news from the Pulmonary Hypertension, including advocacy updates, research articles and event coverage.
A new-peer reviewed research paper showed that people with pulmonary arterial hypertension enrolled in the PHA Registry didn’t experience medication delays, increased emergency room visits or more hospital stays. The paper, which appeared in the April 18 issue of the Pulmonary Circulation Journal, is the 15th published paper based on PHA Registry data.
Learn how to maintain insurance coverage now that the COVID-19 public health emergency is over. Join the Pulmonary Hypertension Association (PHA) at 2 p.m. EDT, Wednesday, May 31, for a free webinar on Medicaid disenrollment. Jaeger Spratt, PHA’s advocacy and treatment access manager, will explain how states are removing beneficiaries from Medicaid plans and how you can navigate the system.
The New York City-Manhattan Support Group recently launched a book club to provide new opportunities for people with pulmonary hypertension (PH) to engage online. Leader Alicia Kubes started the support group in 2018 and has been expanding its focus since the pandemic began. The online group aims to discuss books through the lens of living with PH; patients throughout the U.S. are welcome to attend the June 9 meeting.
The Pulmonary Hypertension Association (PHA) recently updated its COVID-19 policy to reflect the Centers for Disease Control and Prevention guidelines. The policy focuses on individual responsibility at PHA events to use proven methods to reduce and prevent transmission.
The Detroit pulmonary hypertension (PH) community raised $6,795 for the Pulmonary Hypertension Association O2breathe walk on May 6. The event featured Tammera Tubolino, who recounted her sister Kristy’s CTEPH journey. The event also featured longtime support group leader Carla Kinsey.
Please join the Pulmonary Hypertension Association and more than 80 other patient organizations next week in observing World PH Day. Since 2012, the global pulmonary hypertension (PH) community has come together May 5 to bring attention to this rare lung disease. Whether you have PH, care for someone with PH or are a health care professional, please help us mark this important day.
Study suggests transdermal delivery could be alternative to existing treprostinil administration methods.
Thymmune is developing regenerative cell therapies for potential post-transplant treatment.
Some patients can now access OxiWear through Medicare and participating insurance providers.
