Volunteer Shares Her PH ‘Tricks of the Trade’
Karen Duncan shares practical PAH tips—affording meds, traveling with oxygen, exercising safely, and finding specialist care.
Right Heart Blog
The PHA community is a network of people with diverse backgrounds and experiences living their best lives. PHA highlights those experiences through inspiring first-person stories in our Right Heart Blog.
PH Community Stories
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One Pedal Stroke at a Time: Finding Strength with PHCarson Smith shares her pulmonary hypertension journey and volunteer impact in honor of PHA’s Volunteer Appreciation Week, April 19–25.
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Crossing the Pacific for PH CareCheryl Dehoney couldn’t find specialized medical care for her PH in Hawaii, so she looked to her home state of California, where she still has a residence.
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Caregivers Need To Know How Important They AreSupport group leader and PHA board member Nicole Creech dedicates one meeting a year to the caregivers who share their time and love with her members. Creech, who was diagnosed with pulmonary hypertension due to sickle cell anemia in 2008, leads the group with Evelyn Mitchell.
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Caregiver Remembers Late Wife’s PH JourneyEach year, Keith Adams honors his late wife Caroline with a gift to PHA on her birthday. Caroline developed pulmonary hypertension symptoms in 2019 but didn’t receive a diagnosis for two years because of the pandemic.
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Full of Heart, Fueled by HopeKyle McFarland shares his daughter’s PAH journey during American Heart Month.
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Support Group: ‘The Right Place To Give Back’Olivia Edelen of PHA’s Piedmont PHriends Support Group shares her story in the December 2025 issue of Pathlight magazine.
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New Path Forward After PTE SurgeryKavon Clayton, 33, was diagnosed with pulmonary embolisms in 2022 and pulmonary hypertension in 2024. This year, Clayton, of Hammond, Louisiana, underwent pulmonary thromboendoarterectomy surgery to improve her quality of life.
News
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Musician Raises PH Awareness Through SongSinger-songwriter Chloe Temtchine has raised PH awareness through music since her 2013 diagnosis. Recently, Chloe collaborated with rapper Freeway on a song to shed light on PH and the power of organ donation.
