Discover the latest news from the Pulmonary Hypertension, including advocacy updates, research articles and event coverage.
Pulmonary Hypertension Association CEO Matt Granato recently participated in a Spanish-language Instagram Live chat with the Sociedad Latina de Hipertensión Pulmonar. He discussed how PHA is fulfilling its duty to share knowledge and resources to rid the world of pulmonary hypertension.
Start brainstorming ideas for the PHA 2024 theme. Our theme contest kickoff is right around the corner for PHA 2024 International PH Conference and Scientific Sessions. Starting June 22, you can submit theme ideas and help set the tone for PHA 2024. The winner will receive unlimited bragging rights, a $25 Amazon gift card, PHA swag and a free one-year individual Pulmonary Hypertension Association membership.
Pulmonary hypertension advocates met with congressional offices in May to request support for health care reforms. The advocates urged legislators to cosponsor the Safe Step and the H.E.L.P. Copays acts. They also discussed the need for supplemental oxygen access reform. Find out which senator signed on to the Safe Step Act a few days after hearing from a PHA advocate.
The Pulmonary Hypertension Association recently asked the Institute for Clinical and Economic Review to modify its draft document about sotatercept for pulmonary arterial hypertension (PAH). PHA seeks changes to language about medication side effects, supplemental oxygen access and sotatercept’s unique characteristics to potentially treat PAH.
Insurance & treatment access
During HHT Awareness Month, the Pulmonary Hypertension Association joins Cure HHT to raise awareness of hereditary hemorrhagic telangiectasia, a condition that can cause pulmonary hypertension. We need your help to help educate others about PH and HHT. If you have HHT-related pulmonary arterial hypertension or want to understand your risks, complete our brief survey.
Support group leaders from California and Arizona participated in the Pulmonary Hypertension Association’s most recent Support Group Leader Training Institute. The May 7 event in San Diego featured interactive activities to enhance participants’ skills in planning, promoting, hosting and managing support group meetings.
Study suggests transdermal delivery could be alternative to existing treprostinil administration methods.
Thymmune is developing regenerative cell therapies for potential post-transplant treatment.
Some patients can now access OxiWear through Medicare and participating insurance providers.
