School-age children and teens with pulmonary hypertension face various educational challenges related to their illness. Children with PH may miss school because of doctors’ appointments, PH symptoms and side effects. In addition to disrupting learning, PH sometimes creates physical difficulties for negotiating crowded and large schools. 

Families of children with chronic illnesses can get help to maximize their children’s education. Parents should familiarize themselves with the Individuals with Disabilities Education Act and their state’s policies and procedures for assisting students with disabilities. Policy changes in 2025 and beyond means regulations are in flux and websites might be outdated. It’s best to develop an Individualized Education Plan or 504 Plan for your local district so you can put your child’s needs and your expectations for school personnel in writing. 

A little education and communication can go a long way. Share this resource guide with the staff at your child’s school to ensure your child is in good hands in the classroom and on the playground. 

The materials here, created by parents and pulmonary hypertension-treating medical professionals, provide general educational information about PH and PH treatment to educate your child’s teachers and improve dialogue between families and educational professionals. 

Because every child with PH is unique, the Student Emergency Information and the Medication List/Activity Restriction forms help you personalize each sheet to describe your child’s needs. 

Pediatric medication information

Download your child’s treatment information for your school nurse.

Pediatric PH

Download a worksheet