The PHA community is a network of people with diverse backgrounds and experiences living their best lives. PHA highlights those experiences through inspiring first-person stories in our Right Heart Blog.
When Kathleen Grady started the Remodulin pump 11 years ago, she was sick, in pain and miserable. She felt sorry for herself all the time, especially after reading friends’ Facebook posts about fun activities. One day, she had an ah-ha moment.
Mark Synder of Waxhaw, North Carolina, was awaiting a cardiopulmonary exercise test in March after his first visit to a pulmonary hypertension specialist. The test was canceled as the COVID-19 pandemic forced clinics, businesses and public spaces to close.
Evans Wilson and his wife Alicia were affected by wildfire smoke on the West Coast in 2020. Evans has pulmonary arterial hypertension, pulmonary fibrosis and CTEPH.
Diana Lewis, 57, lives in Rio Rancho, New Mexico, with her husband, Adrian, and her son Joshua. Lewis, a pastor, was diagnosed with pulmonary hypertension five years ago. She shares her story about dealing with the COVID-19 pandemic.
Lisa Laughlin was terrified after her husband Michael fell and passed out in 2017. He had been short of breath for more than a year and no longer had energy for his nightly walks. His diagnosis of a disease they’d never heard of was equally frightening.
Rosemary Graham, of Atlanta, Georgia, is a long-time advocate for people with rare and chronic diseases. She was diagnosed in 2012 with pulmonary hypertension (PH) related to lupus, pulmonary fibrosis and sleep apnea. This is her story.
Aisha Woods Zarb-Cousin lives in San Antonio, Texas with her husband Adam, her 13-year-old stepdaughter Zion, and their dog Zoe. She retired from the Air Force in 2010 after seven years of active duty service. This is her story.
Amy Dolan, 30, lives in western Rhode Island with her husband and four children, Gehrig, Eila, Finley and Theodore. Before her pulmonary hypertension diagnosis, she worked in administration for an accounting firm. She and her family recently moved to the country and have four dwarf goats that they love to spoil.
Alicia Kubes was diagnosed with pulmonary hypertension in 2018. Along with her sister she started the New York City-Manhattan support group. She says PH is a road no one should walk alone and that there is hope when you have someone to count on.
